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psnet.ahrq.gov/node/842426/psn-pdf
January 11, 2023 - Structural racism and impact on sickle cell disease: sickle
cell lives matter. … Structural racism and impact on sickle cell disease: sickle cell lives matter. … https://psnet.ahrq.gov/issue/structural-racism-and-impact-sickle-cell-disease-sickle-cell-lives-matter … cell disease. … https://psnet.ahrq.gov/issue/structural-racism-and-impact-sickle-cell-disease-sickle-cell-lives-matter
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digital.ahrq.gov/sites/default/files/docs/citation/improving-sickle-cell-transitions-of-care-through-health-it-final-action-report.pdf
January 01, 2015 - Population estimates of sickle cell
disease in the U.S. … What You Should Know About Sickle Cell
Disease. CDC. … Barriers in transition from pediatrics to adult
medicine in sickle cell anemia. … Cell Disease
Tracker NA December 2012
2
SCD Resource Locator https://itunes.apple.com/us/app/sickle-cell-disease … Barriers in transition from pediatrics to adult
medicine in sickle cell anemia.
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www.ahrq.gov/sites/default/files/wysiwyg/policymakers/chipra/factsheets/fullreports/chipra-139-section-2.pdf
January 01, 2014 - Cell Disease Measure 13 Transcranial Doppler Ultrasonography Screening for
Children with Sickle Cell … Detailed Measure Specifications
Sickle Cell Disease
Measure 13: Transcranial Doppler Ultrasonography … Screening for Children
with Sickle Cell Disease
Description
The percentage of children ages 2 through … cell disease who had appropriate sickle cell
disease-related ICD-9 codes on three or more separate … Code(s)
Hb SS-disease (sickle cell anemia) Hb F,S 282.6, 282.61, 282.62
Specification
Denominator
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www.ahrq.gov/sites/default/files/wysiwyg/policymakers/chipra/factsheets/fullreports/chipra-135-graphics-section-5.pdf
November 26, 2013 - Cell Disease Measure 2: Timeliness of Antibiotic Prophylaxis for Children with Sickle
Cell Disease … The
Management of Sickle
Cell Disease. National
Institutes of Health.
Bethesda, MD, 2002. … The panel
notes that, “Because babies with sickle cell
disease may develop sepsis as young as 4
months … Newborn screening for
sickle cell disease and
other
hemoglobinopathies. … Management of children
with sickle cell disease: a
comprehensive review of
the literature.
-
www.ahrq.gov/pqmp/publications/search.html
January 01, 2021 - Improving Preventive Care for Children With Sickle Cell Anemia: A Quality Improvement Initiative. … PMID: 31916247
Keywords: Sickle cell anemia
Designing a Multistakeholder Collaboration to Improve … Designing a Multistakeholder Collaboration to Improve Preventive Care for Children With Sickle Cell Anemia … Barriers to Pediatric Sickle Cell Disease Guideline Recommendations. … Keywords: Sickle cell disorders
Use of EHR-Based Pediatric Quality Measures: Views of Health System
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www.ahrq.gov/pqmp/publications/search.html?page=0
January 01, 2021 - Improving Preventive Care for Children With Sickle Cell Anemia: A Quality Improvement Initiative. … PMID: 31916247
Keywords: Sickle cell anemia
Designing a Multistakeholder Collaboration to Improve … Designing a Multistakeholder Collaboration to Improve Preventive Care for Children With Sickle Cell Anemia … Barriers to Pediatric Sickle Cell Disease Guideline Recommendations. … Keywords: Sickle cell disorders
Use of EHR-Based Pediatric Quality Measures: Views of Health System
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www.ahrq.gov/sites/default/files/wysiwyg/pqmp/toolkits/sicklecell-clinic-followup.pdf
June 02, 2025 - Sickle Cell Disease Clinic - Sample Follow Up Care Process
O
ffi
ce
S
ta
ff
Reviews master
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digital.ahrq.gov/ahrq-funded-projects/improving-sickle-cell-transitions-care-through-health-information-technology/annual-summary/2012
January 01, 2012 - -1
Project Period
August 2012 – May 2014
AHRQ Funding Amount
$630,811
Summary: Sickle … cell disease (SCD) is a genetic blood disorder that produces abnormal “sickle-shaped” red blood cells … cell disease during transitions of care. … cell disease, including patients, families, and providers. … Target Population: Chronic Care*: Sickle Cell Disease, Pediatric*, Teenagers
Strategic Goal: Develop
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www.ahrq.gov/sites/default/files/wysiwyg/policymakers/chipra/factsheets/fullreports/chipra-135-graphics-section-6-b.pdf
November 26, 2013 -
Q‐METRIC Sickle … Cell Disease Measure 2: Timeliness of Antibiotic Prophylaxis for Children with Sickle
Cell Disease … Validity
Table 6: Michigan Validation Testing for Sickle Cell Disease Measure 2
(Percentage of Children … in State with SCD Receiving Antibiotics by 3 Months
of Age)
Medicaid
Claims
Data
Sickle Cell … Disease Case Roster Data
2010 2011
Yes No Total Yes No Total
Yes
No
36%
31%
11%
22%
47%
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www.ahrq.gov/sites/default/files/wysiwyg/pqmp/measures/chronic/chipra-216-section-5-table-4.pdf
January 01, 2011 - Cell Disease
Type of
evidence
Key findings Level of
evidence
(USPSTF
ranking*)
Citation(s) … The
Management of Sickle
Cell Disease. National
Institutes of Health.
Bethesda, MD, 2002. … Health
supervision for children
with sickle cell disease.
Pediatrics. … Sickle cell disease in
children and
adolescents: diagnosis,
guidelines for
comprehensive care, … Quality‐
of‐care indicators for
children with sickle cell
disease.
-
www.ahrq.gov/sites/default/files/wysiwyg/policymakers/chipra/factsheets/fullreports/chipra-135-graphics-section-8.pdf
November 26, 2013 -
Q‐METRIC Sickle … Cell Disease Measure 2: Timeliness of Antibiotic Prophylaxis for Children with Sickle
Cell Disease … results on IEF are referred to
the Sickle Cell Disease
Association of America-
Michigan Chapter (SCDAA … Abbreviations: SCD = sickle cell disease; HPLC = high performance liquid chromatography; Hgb = hemoglobin … ; IEF =
iso-electric focusing; SCDAA-MI = Sickle Cell Disease Association of America-Michigan Chapter
-
www.ahrq.gov/pqmp/implementation-qi/toolkits.html
August 01, 2021 - Transcranial Doppler Ultrasonography (TCD) Screening for Children with Sickle Cell Disease .
… Transcranial Doppler Ultrasonography (TCD) Screening for Children with Sickle Cell Anemia
This measure … calculates the percentage of children ages 2 through 15 years old with sickle cell anemia who received … , and TCD screening is a reasonable method to assess stroke risk among children with sickle cell anemia … The TCD screening for children with sickle cell anemia measure has National Quality Forum endorsement
-
digital.ahrq.gov/sites/default/files/docs/survey/improving-sickle-cell-transitions-focus-group-moderator-guide-%20it-developers.pdf
June 16, 2021 - enabled tool to support management of transitions across the
health care system for individuals with Sickle … Cell disease. … Cell Disease. … Sickle cell disease (SCD) is an inherited red blood cell disorder that affects close
to 100,000 people … Cell
Disease.
-
www.ahrq.gov/sites/default/files/wysiwyg/pqmp/measures/chronic/chipra-0138-section-6b.pdf
December 01, 2013 -
Q‐METRIC Sickle … Cell Disease Measure 3: Appropriate Antibiotic Prophylaxis for Children with Sickle
Cell Disease … Medical Records) for Antibiotic
Prescriptions for Children with Sickle Cell Disease
Antibiotic
Prescription
-
www.ahrq.gov/sites/default/files/wysiwyg/policymakers/chipra/factsheets/fullreports/chipra-135-graphics-section-6-a.pdf
November 26, 2013 -
Q‐METRIC Sickle … Cell Disease Measure 2: Timeliness of Antibiotic Prophylaxis for Children with Sickle
Cell Disease … Scientific Soundness
VI.A Reliability
Table 5: Sickle Cell Disease Measure 2 (Percentage of Children
-
www.ahrq.gov/sites/default/files/wysiwyg/pqmp/measures/chronic/chipra-0138-section-7a.pdf
June 02, 2025 -
Q‐METRIC Sickle … Cell Disease Measure 3: Appropriate Antibiotic Prophylaxis for Children with Sickle
Cell Disease … Race/Ethnicity
Table 7: Race/Ethnicity by State in 2009 for Children (Ages 0-18 years) with Sickle … Cell Disease
State White
Black or
African
American
Hispanic/Latino
Race Unknown
Other Race
-
digital.ahrq.gov/principal-investigator/jain-anjali
January 01, 2023 - development of a health information technology enabled tool to support transitions of care for those with sickle … cell disease.
-
digital.ahrq.gov/organizations/lewin-group-inc
January 01, 2023 - development of a health information technology enabled tool to support transitions of care for those with sickle … cell disease.
-
www.ahrq.gov/sites/default/files/wysiwyg/pqmp/measures/chronic/chipra-0138-section-6a.pdf
December 01, 2013 - Cell Disease Measure 3: Appropriate Antibiotic Prophylaxis for Children with Sickle
Cell Disease … VI.A Reliability
Figure 1: Provision of Antibiotic Prescriptions, 300‐Day Rate, for Children with Sickle … Cell Disease
0%
5%
10%
15%
20%
25%
30%
35%
40%
2005 2006 2007 2008 2009
%
o
f … Cell Disease
0%
5%
10%
15%
20%
25%
30%
35%
40%
2005 2006 2007 2008 2009
%
o
f … Cell Disease Measure 3 Reliability in Six States (Percentage of Children in State with SCD Receiving
-
www.ahrq.gov/sites/default/files/wysiwyg/pqmp/measures/chronic/chipra-213-section-6-tables-5-6.pdf
June 02, 2025 - CHIPRA 213: Section 6, Tables 5 and 6
Table 5: Agreement and Kappa Statistics for Sickle Cell Disease … 100% 1.00
Table 6: Anticipatory Guidance Regarding Hydroxyurea Treatment for Children with Sickle … Cell Disease
Site
Rate
Numerator
Denominator
Hospital #1
51%
18