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221. Knowledge Brief #2 Methods and Measures of Public Deliberation (pdf file)
     effectivehealthcare.ahrq.gov/sites/default/files/related_files/knowledge-brief-2-methods-public-deliberation-130213.pdf
     February 01, 2013 - Knowledge Brief #2 Methods and Measures of Public Deliberation AHRQ’s Effective Health Care Program and the Community Forum The Effective Health Care Program was initiated in 2005 to provide valid evidence about the comparative effectiveness of different medical interventions. The object is to help consumer…

222. Registry of Patient Registries (RoPR) Policies and Procedures (pdf file)
     effectivehealthcare.ahrq.gov/sites/default/files/pdf/registry-of-patient-registries_research-2012-2_1.pdf
     January 01, 2012 - This may reduce duplication of effort and result in knowledge sharing across disease areas, ultimately

223. Fagerlin-notes-151007 copy-Teresa (pdf file)
     effectivehealthcare.ahrq.gov/sites/default/files/fagerlin-presentation.pdf
     November 11, 2015 - Fagerlin-notes-151007 copy-Teresa When  we talk about patient engagement and  shared  decision-­‐making there are a number of different problems that evolve. 1 First, patients often do not have information they need to make decisions, nor are they involved in the  decisions as much  as they would  …

224. Ced -Appendix-2 (xls file)
     effectivehealthcare.ahrq.gov/sites/default/files/related_files/ced%20-appendix-2.xlsx
     October 12, 2022 - AHRQ revise its report to clarify certain elements of the proposed data sharing recommendation under

225. Technical Brief 16 Disposition of Comments Report (pdf file)
     effectivehealthcare.ahrq.gov/sites/default/files/related_files/advanced-care-decision-aids_disposition-comments.pdf
     July 29, 2014 - Technical Brief 16 Disposition of Comments Report Technical Brief Disposition of Comments Report Research Review Title: Decision Aids for Advance Care Planning Draft review available for public comment from February 12, 2014 to March 11, 2014. Research Review Citation: Butler M, Ratner E, McCreedy …

226. Models of Care That Include Primary Care for Adult Survivors of Childhood Cancer | Effective Health Care (EHC) Program
     effectivehealthcare.ahrq.gov/products/pediatric-adolescent-cancer-survivorship/protocol
     November 12, 2020 - Current Page Topic Timeline May. 19, 2020 Topic Initiated Nov. 12, 2020 Research Protocol Models of Care That Include Primary Care for Adult Survivors of Childhood Cancer Research Protocol November 12, 2020 I. Background Statement of the Problem and Decisional Dilemmas The American Cancer Societ…

227. Outcome Measure Framework Design Document (pdf file)
     effectivehealthcare.ahrq.gov/sites/default/files/pdf/registry-of-patient-registries_research-2014_0.pdf
     January 01, 2014 - use of common data fields and definitions in similar health conditions to improve opportunities for sharing … feedback shaped the plans described here for displaying information within the OMF, collecting and sharing

228. Ch 8-User-Guide-To-Ocer 130129 (pdf file)
     effectivehealthcare.ahrq.gov/sites/default/files/ch_8-user-guide-to-ocer_130129.pdf
     October 01, 2013 - Organizations may have their own unique limits on data sharing and pooling. … be accessed without patient consent, which may include explicit documentation of the level of data-sharing

229. Understanding Health-Systems’ Use of and Need for Evidence To Inform Decisionmaking (pdf file)
     effectivehealthcare.ahrq.gov/sites/default/files/pdf/health-systems-research.pdf
     October 01, 2017 - health-system partnership ranging from academic to nonacademic from across the country in a data sharing … Health study wanted evidence on interventions that enhance coordination and transitions of care, data sharing

230. Outcome Measure Framework Design Document (pdf file)
     effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/registry-of-patient-registries_research-2014.pdf
     January 01, 2014 - use of common data fields and definitions in similar health conditions to improve opportunities for sharing … feedback shaped the plans described here for displaying information within the OMF, collecting and sharing

231. Disposition of Comments Report for Outpatient Case Management for Adults With Medical Illness and Complex Care Needs (pdf file)
     effectivehealthcare.ahrq.gov/sites/default/files/related_files/case-management_disposition-comments.pdf
     January 01, 2013 - However, explicitly sharing the setting "outpatient" is necessary to prevent any misunderstanding. … condition beyond physical functioning) was not studied in any of the studies reviewed it is worthwhile sharing

232. Meeting Summary (pdf file)
     effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_slides-2011.pdf
     January 01, 2011 - Meeting Summary AHRQ Community Forum Page | 1 Supporting Patient and Consumer Involvement in Patient Centered Outcomes Research Meeting Summary Agency for Healthcare Research and Quality Community Forum Wednesday, July 13, 2011 On July 13, 2011, the Agency for Healthcare Research and Quality’s (A…

233. Topic Suggestion Description | Effective Health Care Program
     effectivehealthcare.ahrq.gov/get-involved/nominated-topics/chronic-pelvic-pain-syndrome-men
     May 18, 2021 - Home » Get Involved » Nominated Topics » Topic Suggestion Description Topic Suggestion Description Date submitted: May 18, 2021 Evaluation and Treatment of Chronic Pelvic Pain Syndrome in Men 1. What is the decision or change you are facing or struggling with where a s…

234. Use of a Clinical Pathway To Facilitate the Translation and Utilization of AHRQ EPC Report Findings (pdf file)
     effectivehealthcare.ahrq.gov/sites/default/files/pdf/clinical-pathway-methods-report.pdf
     December 01, 2018 - • Additional recommendations for the AHRQ EPC program include (1) facilitating the sharing of clinical … Other recommendations for the AHRQ EPC program include (1) facilitating the sharing of clinical pathways

235. Discontinuation of Disease-Modifying Treatment for Multiple Sclerosis | Effective Health Care (EHC) Program
     effectivehealthcare.ahrq.gov/products/multiple-sclerosis/research-protocol
     December 17, 2013 - Current Page Topic Timeline Oct. 15, 2010 Topic Suggestion Dec. 17, 2013 Research Protocol Apr. 28, 2015 Systematic Review Oct. 9, 2015 Disposition of Comments Report Discontinuation of Disease-Modifying Treatment for Multiple Sclerosis Research Protocol Archived December 17, 2013 Download Main Document PDF 370.5 …

236. Innovative Methods in Stakeholder Engagement: An Environmental Scan | Effective Health Care (EHC) Program
     effectivehealthcare.ahrq.gov/products/stakeholders-engagement-others/research-2012-1
     May 01, 2012 - Innovative Methods in Stakeholder Engagement: An Environmental Scan Presentation May 1, 2012 Download Main Document PDF 533.1 KB This report is available in PDF (533 kB) only. People using assistive technology may not be able to fully access information in this file. For additional assistance, please …

237. Slide 1
     effectivehealthcare.ahrq.gov/sites/default/files/selection-of-data-sources-chapter-8.pptx
     January 01, 2013 - be accessed without patient consent, which may include explicit documentation of the level of data sharing

238. Core Functionality for Pediatric Electronic Health Records | Effective Health Care (EHC) Program
     effectivehealthcare.ahrq.gov/products/pediatric-ehr/research-protocol
     August 18, 2014 - “gag clauses” that prevent users and purchasers of their software from discussing problems or even sharing

239. pediatric-EHR-protocol-140818 (pdf file)
     effectivehealthcare.ahrq.gov/sites/default/files/pdf/pediatric-ehr_research-protocol.pdf
     January 01, 2014 - “gag clauses” that prevent users and purchasers of their software from discussing problems or even sharing

240. UBIQUS Document (pdf file)
     effectivehealthcare.ahrq.gov/sites/default/files/oct_13_webinar_transript_10-13-11.pdf
     October 13, 2011 - advocates who have worked with you and better understand your needs are the best ambassadors for sharing … We provide sample press releases for example including short versions for sharing in blogs so that