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21. Community-Based Participatory Research Slides Text Version (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/lessons-presentation.pdf
    January 01, 2013 - CBPR can enhance stakeholder engagement methodology § To encourage greater dialogue and resource sharing … values (4) § shared understanding of the missions and the strategies § Power dynamics (9) § Power sharing … Slide 19 CBPR Value System for Program Development, Evaluation and Information Sharing in a Health

22. Slide 1
    effectivehealthcare.ahrq.gov/sites/default/files/community-based-participatory-research-slides.pptx
    January 01, 2013 - from CBPR can enhance stakeholder engagement methodology To encourage greater dialogue and resource sharing … Core values (4) shared understanding of the missions and the strategies Power dynamics (9) Power sharing … Metrics: Trust Indicators CBPR Value System for Program Development, Evaluation and Information Sharing

23. Innovations in Stakeholder Engagement Conference Summary (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/innovations_in_stakeholder_engagement_conference_summary2.pdf
    October 01, 2011 - Technology is simply one tool for sharing knowledge and best practices. … In the field of health care, online communities can be used for sharing health experiences and health … Information-sharing can allow patients to be better informed about what to expect from their condition … Sharing findings that result from their contributions to the site helps users understand the purpose … The participants may feel more comfortable sharing personal details with someone to whom they can relate

24. Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries and Research Networks | Effective Health Care (EHC) Program
    effectivehealthcare.ahrq.gov/products/stakeholders-engagement-others/white-paper
    September 30, 2013 - Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries

25. Distributed Ambulatory Research in Therapeutics Network (DARTNet): Informing Practice and Improving Depression Care | Effective Health Care (EHC) Program
    effectivehealthcare.ahrq.gov/products/depression-care-distributed-networks/abstract
    May 08, 2009 - Aim 2: Evaluate alternative data extraction and data sharing arrangements which include: Data extraction

26. SRDR-Charter-140305 (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/data-repository-reviews-charter-140305.pdf
    June 01, 2012 - extracted data  from primary  studies could improve  the   efficiency  of conducting SRs by  sharing … to: − Formulate and  develop SRDR vision, scope, and  key  policy  issues (e.g., data  sharing

27. SRDR-Charter-140305 (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/data-repository-reviews-charter-140305.pdf
    June 01, 2012 - extracted data  from primary  studies could improve  the   efficiency  of conducting SRs by  sharing … to: − Formulate and  develop SRDR vision, scope, and  key  policy  issues (e.g., data  sharing

28. Discerning the Perception and Impact of Patients Involved in Evidence-based Practice Center Key Informant Interviews | Effective Health Care (EHC) Program
    effectivehealthcare.ahrq.gov/products/key-informant-interviews/research
    September 14, 2017 - after the group stakeholder discussion by providing them with the timeline for project completion, sharing

29. Evaluation of Mental Health Applications | Effective Health Care (EHC) Program
    effectivehealthcare.ahrq.gov/products/mental-health-apps/protocol
    May 03, 2021 - Growing concerns over data sharing 8 - 10 and clinical safety 11 have created a demand for an assessment … by patients/clients and health care providers; security and privacy features such as data usage and sharing … Assessment of the Data Sharing and Privacy Practices of Smartphone Apps for Depression and Smoking Cessation

30. Distributed Ambulatory Research in Therapeutics Network (DARTNet): Summary Report | Effective Health Care (EHC) Program
    effectivehealthcare.ahrq.gov/products/distributed-network-ambulatory-therapeutics/research
    July 28, 2009 - A federated database structure facilitates sharing and interchanges of data among autonomous databases … The federated architecture provides mechanisms for sharing data, for sharing transactions, for combining … Grid computing facilitates flexible, secure, coordinated resource sharing among dynamic collections of … This sharing is not primarily file exchange but rather direct access to computers, software, data, and … , and the conditions under which sharing occurs.

31. Community Forum: Introduction to Online Tools To Support Public Deliberation (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/deliberative-methods_presentation-2013.pdf
    January 01, 2013 - chats, polling, and discussion boards; and Promote collaboration and policy input through document sharing … Traditional online deliberative tools include: 5 Document sharing, which provides participants with

32. Research White Paper Biorepositories Addendum Registries For Evaluating Patient Outcomes Third Edition (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/biorepositories-registries-guide-3rd-ed-addendum-white-paper.pdf
    February 01, 2018 - NIH has established some resources to enable such information sharing, including the NCI Specimen Resource … • Procedures Related to Access, Sharing, and Recontact. … the research, including who will have access to the data and biospecimens, whether large-scale data sharing … Participants should also be informed that large-scale data-sharing can impact other aspects of the research … as more biospecimens are needed for research, there has been an increased emphasis on the need for sharing

33. Research White Paper Biorepositories Addendum Registries For Evaluating Patient Outcomes Third Edition (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/biorepositories-registries-guide-3rd-ed-addendum-white-paper.pdf
    February 01, 2018 - NIH has established some resources to enable such information sharing, including the NCI Specimen Resource … • Procedures Related to Access, Sharing, and Recontact. … the research, including who will have access to the data and biospecimens, whether large-scale data sharing … Participants should also be informed that large-scale data-sharing can impact other aspects of the research … as more biospecimens are needed for research, there has been an increased emphasis on the need for sharing

34. Bernhardt_final[9] (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/bernhardt.pdf
    January 27, 2011 - • Web applications that facilitate interactive information sharing, interoperability, user-­‐ centered

35. Primary-Healthcare-Spending-Draft-Tech-Brief-Appendix-H (xls file)
    effectivehealthcare.ahrq.gov/sites/default/files/related_files/primary-healthcare-spending-draft-tech-brief-appendix-h.xlsx
    January 01, 2011 - including, but not limited to, incentive payments and care coordination payments; and all patient cost-sharing … nongroup insurance), eligible for ACA Marketplace insurance coverage with premium subsidies and/or cost-sharing

36. Evaluation of Mental Health Mobile Applications: Appendixes (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/related_files/Appendixes_1.pdf
    May 11, 2021 - Sends alerts, messages, reminders, feedback, enables sharing) Interest: Is the app interesting … Sends alerts,messages, reminders, feedback, enables sharing) Customisation: Does it allow you … Sends alerts,messages, reminders, feedback, enables sharing) Interactivity: Does it allow user … NA MIND2 Interoperability & Data Sharing Do you ow n your data? … NA MIND2 Interoperability & Data Sharing Can you email or export your data?

37. Developing Quality Indicators for Cancer End-of-Life Care: Proceedings From a National Symposium | Effective Health Care (EHC) Program
    effectivehealthcare.ahrq.gov/products/cancer-end-of-life-indicators-symposium/research
    September 08, 2010 - Coordination, Continuity, and Care Transitions Sharing information is critical to continuity of care … While ideally the information shared among the care team would be comprehensive in scope, sharing the … information technology, including EMRs, are applicable to this domain as they may help facilitate information sharing … members; Structural indicators of information technology, including EMRs, can facilitate information sharing

38. Data Points #10: Proton beam radiotherapy in the U.S. Medicare population: growth in use between 2006 and 2009 | Effective Health Care (EHC) Program
    effectivehealthcare.ahrq.gov/products/radiotherapy-proton-beam/research
    May 07, 2012 - Payment rates (which include both Medicare trust fund reimbursement and patient cost sharing) for proton

39. Braddock (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/braddock.pdf
    January 01, 2011 -   trustworthy behaviors  Shared decision making  Patient-­‐centered communication • Transparent sharing

40. Epstein (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/epstein.pdf
    January 01, 2011 - alibi Slide  14: Shared mind ….situations in which new ideas and perspectives emerge through the sharing