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1. Research White Paper_Outcome Measure Harmonization and Data Infrastructure for Patient-Centered Outcomes Research in Depression: Data Use and Governance Toolkit (pdf file)
   effectivehealthcare.ahrq.gov/sites/default/files/pdf/outcomes-research-depression.pdf
   October 01, 2021 - Policies and procedures for sharing data may depend on what types of data are available for sharing … the potential for sharing data or develop formal policies for data sharing. … For the purposes of the literature review, sharing data referred to the sharing of registry, clinical … would be caused by sharing data and to consider whether sharing may benefit the patients. … Who/What funds the sharing of data? 7. Who develops/developed the policies for data sharing?

2. Gibbons (pdf file)
   effectivehealthcare.ahrq.gov/sites/default/files/gibbons.pdf
   January 01, 2010 - Slide  3: The  Social Media  Phenomenon • Interaction, sharing information, and collaboration … able to ‘‘tell their story and be heard.’’ • They also emphasize the importance of information  sharing … rather than  decisionmaking sharing. • They often  believe there is an  acceptable role for … care-­‐oriented  activities Slide  10: Provider-­‐related Opportunities • Improve information sharing

3. Hesse (pdf file)
   effectivehealthcare.ahrq.gov/sites/default/files/hesse.pdf
   January 01, 2010 - Sharing  medical data  for personal action  and quality improvement 6. … opinion o Method to poll/record vote o Individual competency o Mutual goal o Diversity Slide 16: Sharing … —Dave  deBronkart, e-­‐Patient Dave Slide 17: Sharing  Medical Data for Personal Action and Quality

4. Ced-Topic-Refinement (pdf file)
   effectivehealthcare.ahrq.gov/sites/default/files/related_files/ced-topic-refinement.pdf
   November 01, 2022 - T Sharing The investigators commit to sharing data, methods, and analytic code with CMS. … Merged with R N/A N/A Sharing No existing requirement Perceived need for requirement about sharing … The investigators commit to sharing data, methods, and analytic code with CMS. … The schedule for sharing is included among the study milestones. … The schedule for sharing is included among the study milestones.

5. Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries and Research Networks (pdf file)
   effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_white-paper.pdf
   September 01, 2013 - Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries … Research Networks Community Forum White Paper Engaging Patients in Information Sharing … Research Networks Community Forum White Paper Engaging Patients in Information Sharing … Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries … goal to establish collaborative relationships with similar 7 organizations for the purpose of sharing

6. S9 (pdf file)
   effectivehealthcare.ahrq.gov/sites/default/files/s9.pdf
   October 01, 2007 - on their income and asset levels that cover part or all of the premium subsidy amount and plan cost sharing … ; and (4) risk-sharing arrangements involving symmetrical risk corridors in which the government either … Benefits data files contain detail on plan benefit offerings and related cost sharing. … following purposes: (1) calculate and verify true out-of-pocket costs; (2) reconcile low-income cost sharing … and reinsurance; (3) im- plement risk-sharing provisions; and (4) in future years, make beneficiary-level

7. Options for Developing a Web-Based Forum on Patient Registries (pdf file)
   effectivehealthcare.ahrq.gov/sites/default/files/pdf/registries-forums_research_0.pdf
   May 01, 2014 - Diverse members “bring the practice in” by describing their experience and sharing stories. … • Serves as an organized system for learning and information sharing. … Knowledge-sharing in an online community of health-care professionals. … Sharing best practices through online communities of practice: a case study. … Bridging the gap: knowledge seeking and sharing in a virtual community of emergency practice.

8. Preventing Complications and Treating Symptoms of Diabetic Peripheral Neuropathy (pdf file)
   effectivehealthcare.ahrq.gov/sites/default/files/related_files/diabetic-neuropathy-disposition-170707.pdf
   March 24, 2017 - Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience.

9. Preventing Complications and Treating Symptoms of Diabetic Peripheral Neuropathy (pdf file)
   effectivehealthcare.ahrq.gov/sites/default/files/diabetic-neuropathy-disposition-170707.pdf
   March 24, 2017 - Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience.

10. Web Interactive Presentation of EPC Reports: A Foray Into Interactive Reports (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/methods-report-web-interactive-presentation.pdf
    September 01, 2019 - • We organized stakeholder feedback in three themes, namely expository, analytic, and information-sharing … ., allow on- the-fly subgroup analyses, explore tradeoffs between several outcomes) and information sharing … Information Sharing Augmentations Finally, the tool should be able to provide salient information about … Expository augmentation (dynamic exhibits) / Information sharing augmentation (human-readable) … Systematic Review Data Repository) Information sharing augmentation (machine readable) Export

11. Knowledge Brief #1 Public Deliberation on Health Topics (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/deliberative-methods_research.pdf
    February 01, 2013 - would be potential customers of the California health insurance exchange considered how to align cost-sharing … obligations and health needs, with a focus on structuring cost sharing in a way that would maximize … Participants prioritized chronic and catastrophic care for the lowest cost-sharing requirements. … Sharing in the Costs of Care: Perspectives from Potential Health Plan Users of the California Health

12. SAMHSA (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/goldstrom.pdf
    May 29, 2025 - Many can establish a rapport with respondents who feel much more comfortable sharing honest opinions … If academics are getting consultant rates for sharing their knowledge and experience, so should consumers

13. Research White Paper Patient- or Participant-Generated Registries Addendum Registries for Evaluating Patient Outcomes Third Edition (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/patient-participant-generated-registries-guide-3rd-ed-addendum-white-paper.pdf
    February 01, 2018 - and completed research.54 A recent report from the Institute of Medicine on this topic recommended sharing … Such efforts may be assisted through sharing of case studies that highlight successful uses of PGRs … Sharing study results with trial participants: time for action. … Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk. http://www.nap.edu/catalog/18998 … http://www.nap.edu/catalog/18998/sharing-clinical-trial-data-maximizing-benefits-minimizing-risk http

14. Disposition of Comments: Technical Brief 34, Impact of Community Health Worker Certification on Workforce and Service Delivery for Asthma and Other Selected Chronic Diseases (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/technical-brief-34-health-worker-certification-comments.pdf
    March 27, 2020 - Thanks for sharing details of your working group. … Thanks for sharing details of your working group. … Thank you for sharing your thoughts. … Thank you for sharing your thoughts about program versus individual level certification.

15. Community-Based Participatory Research Slides Text Version (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/lessons-presentation.pdf
    January 01, 2013 - CBPR can enhance stakeholder engagement methodology § To encourage greater dialogue and resource sharing … values (4) § shared understanding of the missions and the strategies § Power dynamics (9) § Power sharing … Slide 19 CBPR Value System for Program Development, Evaluation and Information Sharing in a Health

16. Osheroff_Respondent_DuBenske 4 (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/web-based_osheroff_respondent.pdf
    January 01, 2009 - Caregivers  also  play  an  important  role  in  information  gathering  and   sharing

17. Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries and Research Networks | Effective Health Care (EHC) Program
    effectivehealthcare.ahrq.gov/products/stakeholders-engagement-others/white-paper

18. Innovations in Stakeholder Engagement Conference Summary (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/innovations_in_stakeholder_engagement_conference_summary2.pdf
    October 01, 2011 - Technology is simply one tool for sharing knowledge and best practices. … In the field of health care, online communities can be used for sharing health experiences and health … Information-sharing can allow patients to be better informed about what to expect from their condition … Sharing findings that result from their contributions to the site helps users understand the purpose … The participants may feel more comfortable sharing personal details with someone to whom they can relate

19. Slide 1
    effectivehealthcare.ahrq.gov/sites/default/files/community-based-participatory-research-slides.pptx
    January 01, 2013 - from CBPR can enhance stakeholder engagement methodology To encourage greater dialogue and resource sharing … Core values (4) shared understanding of the missions and the strategies Power dynamics (9) Power sharing … Metrics: Trust Indicators CBPR Value System for Program Development, Evaluation and Information Sharing

20. SRDR-Charter-140305 (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/data-repository-reviews-charter-140305.pdf
    June 01, 2012 - extracted data  from primary  studies could improve  the   efficiency  of conducting SRs by  sharing … to: − Formulate and  develop SRDR vision, scope, and  key  policy  issues (e.g., data  sharing