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  1. effectivehealthcare.ahrq.gov/sites/default/files/pdf/outcomes-research-depression.pdf
    October 01, 2021 - Policies and procedures for sharing data may depend on what types of data are available for sharing … the potential for sharing data or develop formal policies for data sharing. … For the purposes of the literature review, sharing data referred to the sharing of registry, clinical … would be caused by sharing data and to consider whether sharing may benefit the patients. … Who/What funds the sharing of data? 7. Who develops/developed the policies for data sharing?
  2. effectivehealthcare.ahrq.gov/products/web-interactive-presentation/methods-report
    September 01, 2019 - We organized stakeholder feedback in three themes, namely expository, analytic, and information-sharing … e.g., allow on-the-fly subgroup analyses, explore tradeoffs between several outcomes) and information sharing … representatives found it useful and practical, and requested analytical, expository, and information sharing
  3. Gibbons (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/gibbons.pdf
    January 01, 2010 - Slide  3: The  Social Media  Phenomenon • Interaction, sharing information, and collaboration … able to ‘‘tell their story and be heard.’’ • They also emphasize the importance of information  sharing … rather than  decisionmaking sharing. • They often  believe there is an  acceptable role for … care-­‐oriented  activities Slide  10: Provider-­‐related Opportunities • Improve information sharing
  4. effectivehealthcare.ahrq.gov/products/srdrplus/overview
    April 02, 2019 - At the same time, there has been strong momentum towards promoting open science and data sharing. … and users of systematic reviews, through a data system that is robust, user-friendly, and amenable to sharing
  5. Hesse (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/hesse.pdf
    January 01, 2010 - Sharing  medical data  for personal action  and quality improvement 6. … opinion o Method to poll/record vote o Individual competency o Mutual goal o Diversity Slide 16: Sharing … —Dave  deBronkart, e-­‐Patient Dave Slide 17: Sharing  Medical Data for Personal Action and Quality
  6. effectivehealthcare.ahrq.gov/sites/default/files/related_files/ced-topic-refinement.pdf
    November 01, 2022 - T Sharing The investigators commit to sharing data, methods, and analytic code with CMS. … Merged with R N/A N/A Sharing No existing requirement Perceived need for requirement about sharing … The investigators commit to sharing data, methods, and analytic code with CMS. … The schedule for sharing is included among the study milestones. … The schedule for sharing is included among the study milestones.
  7. S9 (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/s9.pdf
    October 01, 2007 - on their income and asset levels that cover part or all of the premium subsidy amount and plan cost sharing … ; and (4) risk-sharing arrangements involving symmetrical risk corridors in which the government either … Benefits data files contain detail on plan benefit offerings and related cost sharing. … following purposes: (1) calculate and verify true out-of-pocket costs; (2) reconcile low-income cost sharing … and reinsurance; (3) im- plement risk-sharing provisions; and (4) in future years, make beneficiary-level
  8. effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_white-paper.pdf
    September 01, 2013 - Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries … Research Networks Community Forum White Paper Engaging Patients in Information Sharing … Research Networks Community Forum White Paper Engaging Patients in Information Sharing … Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries … goal to establish collaborative relationships with similar 7 organizations for the purpose of sharing
  9. effectivehealthcare.ahrq.gov/products/stakeholders-engagement-others
    June 10, 2011 - September 30, 2013 Research Report Engaging Patients in Information Sharing
  10. effectivehealthcare.ahrq.gov/news/srdr-plus-launch
    SRDR+ features major upgrades for: Researchers  as a free platform for extracting, archiving, and sharing
  11. effectivehealthcare.ahrq.gov/sites/default/files/pdf/registries-forums_research_0.pdf
    May 01, 2014 - Diverse members “bring the practice in” by describing their experience and sharing stories. … • Serves as an organized system for learning and information sharing. … Knowledge-sharing in an online community of health-care professionals. … Sharing best practices through online communities of practice: a case study. … Bridging the gap: knowledge seeking and sharing in a virtual community of emergency practice.
  12. effectivehealthcare.ahrq.gov/sites/default/files/pdf/methods-report-web-interactive-presentation.pdf
    September 01, 2019 - • We organized stakeholder feedback in three themes, namely expository, analytic, and information-sharing … ., allow on- the-fly subgroup analyses, explore tradeoffs between several outcomes) and information sharing … Information Sharing Augmentations Finally, the tool should be able to provide salient information about … Expository augmentation (dynamic exhibits) / Information sharing augmentation (human-readable) … Systematic Review Data Repository) Information sharing augmentation (machine readable) Export
  13. effectivehealthcare.ahrq.gov/sites/default/files/diabetic-neuropathy-disposition-170707.pdf
    March 24, 2017 - Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience.
  14. effectivehealthcare.ahrq.gov/sites/default/files/related_files/diabetic-neuropathy-disposition-170707.pdf
    March 24, 2017 - Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience. … Thank you for sharing your clinical experience.
  15. effectivehealthcare.ahrq.gov/products/stakeholders-engagement-others/research-2012
    January 24, 2012 - EHC Program stakeholder related meetings often involve sharing information among a diverse array of decision-makers
  16. effectivehealthcare.ahrq.gov/sites/default/files/pdf/deliberative-methods_research.pdf
    February 01, 2013 - would be potential customers of the California health insurance exchange considered how to align cost-sharing … obligations and health needs, with a focus on structuring cost sharing in a way that would maximize … Participants prioritized chronic and catastrophic care for the lowest cost-sharing requirements. … Sharing in the Costs of Care: Perspectives from Potential Health Plan Users of the California Health
  17. effectivehealthcare.ahrq.gov/sites/default/files/pdf/patient-participant-generated-registries-guide-3rd-ed-addendum-white-paper.pdf
    February 01, 2018 - and completed research.54 A recent report from the Institute of Medicine on this topic recommended sharing … Such efforts may be assisted through sharing of case studies that highlight successful uses of PGRs … Sharing study results with trial participants: time for action. … Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk. http://www.nap.edu/catalog/18998 … http://www.nap.edu/catalog/18998/sharing-clinical-trial-data-maximizing-benefits-minimizing-risk http
  18. effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/patient-participant-generated-registries-guide-3rd-ed-addendum-white-paper.pdf
    February 01, 2018 - and completed research.54 A recent report from the Institute of Medicine on this topic recommended sharing … Such efforts may be assisted through sharing of case studies that highlight successful uses of PGRs … Sharing study results with trial participants: time for action. … Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk. http://www.nap.edu/catalog/18998 … http://www.nap.edu/catalog/18998/sharing-clinical-trial-data-maximizing-benefits-minimizing-risk http
  19. effectivehealthcare.ahrq.gov/products/dsitributed-database-analyses/abstract
    July 28, 2010 - Obviating this need will save the time and resources currently spent developing data-sharing agreements
  20. SAMHSA (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/goldstrom.pdf
    January 06, 2017 - Many can establish a rapport with respondents who feel much more comfortable sharing honest opinions … If academics are getting consultant rates for sharing their knowledge and experience, so should consumers

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