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21. Research White Paper Patient- or Participant-Generated Registries Addendum Registries for Evaluating Patient Outcomes Third Edition (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/wysiwyg/patient-participant-generated-registries-guide-3rd-ed-addendum-white-paper.pdf
    February 01, 2018 - and completed research.54 A recent report from the Institute of Medicine on this topic recommended sharing … Such efforts may be assisted through sharing of case studies that highlight successful uses of PGRs … Sharing study results with trial participants: time for action. … Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk. http://www.nap.edu/catalog/18998 … http://www.nap.edu/catalog/18998/sharing-clinical-trial-data-maximizing-benefits-minimizing-risk http

22. Launch of SRDR Features Major Upgrades for the AHRQ-Funded Open-Access Publicly-Available Tool for Systematic Review Producers | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/news/srdr-plus-launch
    September 01, 2019 - SRDR+ features major upgrades for: Researchers  as a free platform for extracting, archiving, and sharing

23. Disposition of Comments: Technical Brief 34, Impact of Community Health Worker Certification on Workforce and Service Delivery for Asthma and Other Selected Chronic Diseases (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/technical-brief-34-health-worker-certification-comments.pdf
    March 27, 2020 - Thanks for sharing details of your working group. … Thanks for sharing details of your working group. … Thank you for sharing your thoughts. … Thank you for sharing your thoughts about program versus individual level certification.

24. HIV/AIDS | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/health-topics/hivaids
    November 21, 2016 - It may also spread by sharing drug needles or through contact with the blood of an infected person.

25. Community-Based Participatory Research Slides Text Version (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/lessons-presentation.pdf
    January 01, 2013 - CBPR can enhance stakeholder engagement methodology § To encourage greater dialogue and resource sharing … values (4) § shared understanding of the missions and the strategies § Power dynamics (9) § Power sharing … Slide 19 CBPR Value System for Program Development, Evaluation and Information Sharing in a Health

26. Osheroff_Respondent_DuBenske 4 (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/web-based_osheroff_respondent.pdf
    January 01, 2009 - Caregivers  also  play  an  important  role  in  information  gathering  and   sharing

27. Resources for Getting Involved and Involving Others | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/get-involved/resources
    November 30, 2022 - Health Care Program Research Report September 30, 2013 Engaging Patients in Information Sharing

28. Resources for Getting Involved and Involving Others | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/get-involved/resources?page=0
    November 30, 2022 - Health Care Program Research Report September 30, 2013 Engaging Patients in Information Sharing

29. Development and Implementation of Secure Statistical Analyses on Distributed Databases | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/dsitributed-database-analyses/abstract
    December 01, 2019 - Obviating this need will save the time and resources currently spent developing data-sharing agreements

30. Slide 1
    effectivehealthcare-admin.ahrq.gov/sites/default/files/community-based-participatory-research-slides.pptx
    January 01, 2013 - from CBPR can enhance stakeholder engagement methodology To encourage greater dialogue and resource sharing … Core values (4) shared understanding of the missions and the strategies Power dynamics (9) Power sharing … Metrics: Trust Indicators CBPR Value System for Program Development, Evaluation and Information Sharing

31. Innovations in Stakeholder Engagement Conference Summary (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/innovations_in_stakeholder_engagement_conference_summary2.pdf
    October 01, 2011 - Technology is simply one tool for sharing knowledge and best practices. … In the field of health care, online communities can be used for sharing health experiences and health … Information-sharing can allow patients to be better informed about what to expect from their condition … Sharing findings that result from their contributions to the site helps users understand the purpose … The participants may feel more comfortable sharing personal details with someone to whom they can relate

32. SRDR-Charter-140305 (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/wysiwyg/data-repository-reviews-charter-140305.pdf
    June 01, 2012 - extracted data  from primary  studies could improve  the   efficiency  of conducting SRs by  sharing … to: − Formulate and  develop SRDR vision, scope, and  key  policy  issues (e.g., data  sharing

33. Resources for Getting Involved and Involving Others | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/get-involved/resources?page=1
    June 01, 2013 - Health Care Program Research Report September 30, 2013 Engaging Patients in Information Sharing

34. Distributed Ambulatory Research in Therapeutics Network (DARTNet): Summary Report | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/distributed-network-ambulatory-therapeutics/research
    January 01, 2019 - A federated database structure facilitates sharing and interchanges of data among autonomous databases … The federated architecture provides mechanisms for sharing data, for sharing transactions, for combining … Grid computing facilitates flexible, secure, coordinated resource sharing among dynamic collections of … This sharing is not primarily file exchange but rather direct access to computers, software, data, and … , and the conditions under which sharing occurs.

35. The Facilitation Primer: Strategies, Tools & Considerations to Get You Started | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/stakeholders-engagement-others/research-2012
    November 01, 2017 - EHC Program stakeholder related meetings often involve sharing information among a diverse array of decision-makers

36. DARTNet Summary Report (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/distributed-network-ambulatory-therapeutics_research.pdf
    July 01, 2009 - The federated architecture provides mechanisms for sharing data, for sharing transactions, for combining … Grid computing facilitates flexible, secure, coordinated resource sharing among dynamic collections … The specific challenge that underlies the Grid concept is coordinated resource sharing and problem … This sharing is not primarily file exchange but rather direct access to computers, software, data … share, and the conditions under which sharing occurs.

37. Registry of Patient Registries (RoPR): Overview | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/registry-of-patient-registries/overview
    March 01, 2022 - use of common data fields and definitions in similar health conditions to improve opportunities for sharing

38. Community Forum: Introduction to Online Tools To Support Public Deliberation (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/deliberative-methods_presentation-2013.pdf
    January 01, 2013 - chats, polling, and discussion boards; and Promote collaboration and policy input through document sharing … Traditional online deliberative tools include: 5 Document sharing, which provides participants with

39. Research White Paper Biorepositories Addendum Registries For Evaluating Patient Outcomes Third Edition (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/wysiwyg/biorepositories-registries-guide-3rd-ed-addendum-white-paper.pdf
    February 01, 2018 - NIH has established some resources to enable such information sharing, including the NCI Specimen Resource … • Procedures Related to Access, Sharing, and Recontact. … the research, including who will have access to the data and biospecimens, whether large-scale data sharing … Participants should also be informed that large-scale data-sharing can impact other aspects of the research … as more biospecimens are needed for research, there has been an increased emphasis on the need for sharing

40. Bernhardt_final[9] (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/bernhardt.pdf
    January 27, 2011 - • Web applications that facilitate interactive information sharing, interoperability, user-­‐ centered