-
effectivehealthcare.ahrq.gov/sites/default/files/branson-text.pdf
October 13, 2011 - interest that would significantly impact the research process
Slide 6
Identifying the “Right” Consumer Representative … Identifying the “Right” Consumer Representative … Slide 9
Techniques for Selecting Patient Representatives
§ Include more than one patient/consumer representative … activity:
§ Provides a broader perspective of the individual experience
§ Provides the patient/consumer representative
-
effectivehealthcare.ahrq.gov/sites/default/files/ahrq_community_forum_webinar_branson.pdf
October 13, 2011 - SRA. 6
Identifying the “Right”
Consumer Representative
• Allow adequate time for recruiting … SRA. 7
Identifying the “Right”
Consumer Representative
• Include patient and consumer representatives … Techniques for Selecting Patient
Representatives
• Include more than one patient/consumer
representative … – Provides a broader perspective of the
individual experience
– Provides the patient/consumer representative
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_slides-2011.pdf
January 01, 2011 - Identifying the “right”
patient/consumer representative is largely dependent on the goals of the particular … of recruitment approaches to determine if an
individual would be an appropriate patient/consumer representative … However, if the representative is being asked to participate in formal efforts to prioritize
AHRQ … The
information should be provided well in advance and ideally, the representative should
have an … Involving more than one patient/consumer
representative in research activities is another approach
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/assessing-applicability-quiz.ppt
May 29, 2025 - of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative … of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative … of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative … of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative
-
effectivehealthcare.ahrq.gov/sites/default/files/assessing-applicability-quiz.ppt
May 29, 2025 - of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative … of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative … of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative … of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative
-
effectivehealthcare.ahrq.gov/sites/default/files/bonoff-text.pdf
January 01, 2000 - Methods to support patient and consumer involvement are evolving
§ NBCC Project LEAD
§ FDA Patient Representative … Program
§ Congressionally Directed Medical Research Program Consumer Representative
Program
§ Consumers … § Project LEAD
§ Research Advocacy Network
§ CDMRP
§ Cochrane Consumers Network
§ FDA Patient Representative
-
effectivehealthcare.ahrq.gov/sites/default/files/ahrq_community_forum_webinar_bonoff.pdf
January 01, 2000 - Methods to support patient and consumer
involvement are evolving
– NBCC Project LEAD
– FDA Patient Representative … Program
– Congressionally Directed Medical Research Program
Consumer Representative Program
– … Project LEAD
– Research Advocacy Network
– CDMRP
– Cochrane Consumers Network
– FDA Patient Representative
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/dementia-databases-methods_research.pdf
May 01, 2008 - Effective Health Care Research Report Number 4
Abstract
Objectives: To establish nationally representative … The aim of this project was to provide nationally representative estimates of the prevalence
of the … The
MCBS is a nationally representative survey of Medicare beneficiaries residing in the United
States … Effective Health Care Research Report Number 4
weights that can be used to produce nationally representative … Effective Health Care Research Report Number 4
Discussion
This study used a large nationally representative
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/methods-guidance-applicability_methods.pdf
January 01, 2011 - used to determine whether the
populations, interventions, and comparisons in existing studies are representative … sample—this
may require analysis of more representative registry or cohort data. … Unclear
whether the participating
centers and surgeons are
representative of the
larger population … The age of enrolled patients was representative of prostate
cancer patients in the community, but subgroup … Additional follow-up from one
study suggests that outcomes at 10 years are representative of longer-term
-
effectivehealthcare.ahrq.gov/sites/default/files/methods_guide_atkins.pdf
January 01, 2011 - used to determine whether the
populations, interventions, and comparisons in existing studies are representative … sample—this
may require analysis of more representative registry or cohort data. … Unclear
whether the participating
centers and surgeons are
representative of the
larger population … The age of enrolled patients was representative of prostate
cancer patients in the community, but subgroup … Additional follow-up from one
study suggests that outcomes at 10 years are representative of longer-term
-
effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/pdf/epc-ki-tep-confidentiality-form.pdf
August 01, 2020 - All communications between the EPC and Key
Informants or Technical Experts should include the AHRQ representative … All communications between the EPC and Key Informants or Technical Experts should include the AHRQ representative
-
effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/pdf/epc-rev-team-confidentiality-form.pdf
September 01, 2018 - review team should not accept unsolicited input and
should refer unsolicited communications to the AHRQ representative … review team should not accept unsolicited input and should refer unsolicited communications to the AHRQ representative
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/knowledge-brief-2-methods-public-deliberation-130213.pdf
February 01, 2013 - method that involves either random
or purposive sampling, depending on whether they are seeking a more representative … A representative sample is
particularly important if sponsors want to be able to say something through … They consist of a steering or advisory body and
representative participants; they emphasize expert testimony
-
effectivehealthcare.ahrq.gov/sites/default/files/knowledge-brief-2-methods-public-deliberation-130213.pdf
February 01, 2013 - method that involves either random
or purposive sampling, depending on whether they are seeking a more representative … A representative sample is
particularly important if sponsors want to be able to say something through … They consist of a steering or advisory body and
representative participants; they emphasize expert testimony
-
effectivehealthcare.ahrq.gov/sites/default/files/lavallee-text.pdf
October 13, 2011 - Ford Patient Advocate, Ovarian Cancer Advocacy
Alliance
Andrea Furia-Helms FDA Patient Representative
-
effectivehealthcare.ahrq.gov/sites/default/files/cf_intro_ehc_cf_overview_1012.pdf
October 13, 2011 - Ford Patient Advocate, Ovarian Cancer Advocacy
Alliance
Andrea Furia-Helms FDA Patient Representative
-
effectivehealthcare.ahrq.gov/sites/default/files/lessons-presentation.pdf
January 01, 2013 - Research Director
Center for Medical Technology Policy
Dwyan Monroe
Community Outreach Trainer/Patient Representative … Slide 35
Reaction from the patient perspective
Dwyan Monroe
Community Outreach Trainer/ Patient Representative … Dwyan Monroe
Community Outreach Trainer/ Patient Representative
Image: Photograph of the speaker
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/methods-assessing-impact.pdf
September 01, 2018 - ..............................................................................1
Health System and Representative … 1
9 min 0.75 min 6 min 0.5 min
Health-System
Representative
2
12 min 3 min 11 min 5 min … Methods
Health System and Representative Description
Duke University Health System is a world-class … min 15 min 10 min
Pharmacy
Student/Medical
Fellow 3
15 min 4 min 3 min 1 min
Health-System
Representative … 1
9 min 0.75 min 6 min 0.5 min
Health-System
Representative 2
12 min 3 min 11 min 5 min
-
effectivehealthcare.ahrq.gov/sites/default/files/epstein1.pdf
January 01, 2009 - The Patient-‐Centered
Medical Home
• PCP
as the communication
hub
• PCP
as trusted
representative
-
effectivehealthcare.ahrq.gov/sites/default/files/community-based-participatory-research-slides.pptx
January 01, 2013 - Center for Medical Technology Policy
Webinar Speakers
Dwyan Monroe
Community Outreach Trainer/Patient representative … research agenda (system and capacity changes)
Dwyan Monroe
Community Outreach Trainer/
Patient Representative … Community Forum
Community Forum
Community Forum
Dwyan Monroe
Community Outreach Trainer/
Patient Representative