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  1. effectivehealthcare.ahrq.gov/sites/default/files/branson-text.pdf
    October 13, 2011 - interest that would significantly impact the research process Slide 6 Identifying the “Right” Consumer Representative … Identifying the “Right” Consumer Representative … Slide 9 Techniques for Selecting Patient Representatives § Include more than one patient/consumer representative … activity: § Provides a broader perspective of the individual experience § Provides the patient/consumer representative
  2. effectivehealthcare.ahrq.gov/sites/default/files/ahrq_community_forum_webinar_branson.pdf
    October 13, 2011 - SRA. 6 Identifying the “Right” Consumer Representative • Allow adequate time for recruiting … SRA. 7 Identifying the “Right” Consumer Representative • Include patient and consumer representatives … Techniques for Selecting Patient Representatives • Include more than one patient/consumer representative … – Provides a broader perspective of the individual experience – Provides the patient/consumer representative
  3. Meeting Summary (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_slides-2011.pdf
    January 01, 2011 - Identifying the “right” patient/consumer representative is largely dependent on the goals of the particular … of recruitment approaches to determine if an individual would be an appropriate patient/consumer representative … However, if the representative is being asked to participate in formal efforts to prioritize AHRQ … The information should be provided well in advance and ideally, the representative should have an … Involving more than one patient/consumer representative in research activities is another approach
  4. effectivehealthcare.ahrq.gov/sites/default/files/related_files/assessing-applicability-quiz.ppt
    May 29, 2025 - of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative … of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative … of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative … of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative
  5. effectivehealthcare.ahrq.gov/sites/default/files/assessing-applicability-quiz.ppt
    May 29, 2025 - of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative … of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative … of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative … of a drug on bone mineral density in young, male, well-trained astronauts in outer space may not be representative
  6. effectivehealthcare.ahrq.gov/sites/default/files/bonoff-text.pdf
    January 01, 2000 - Methods to support patient and consumer involvement are evolving § NBCC Project LEAD § FDA Patient Representative … Program § Congressionally Directed Medical Research Program Consumer Representative Program § Consumers … § Project LEAD § Research Advocacy Network § CDMRP § Cochrane Consumers Network § FDA Patient Representative
  7. Slide 1 (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/ahrq_community_forum_webinar_bonoff.pdf
    January 01, 2000 - Methods to support patient and consumer involvement are evolving – NBCC Project LEAD – FDA Patient Representative … Program – Congressionally Directed Medical Research Program Consumer Representative Program – … Project LEAD – Research Advocacy Network – CDMRP – Cochrane Consumers Network – FDA Patient Representative
  8. effectivehealthcare.ahrq.gov/sites/default/files/pdf/dementia-databases-methods_research.pdf
    May 01, 2008 - Effective Health Care Research Report Number 4 Abstract Objectives: To establish nationally representative … The aim of this project was to provide nationally representative estimates of the prevalence of the … The MCBS is a nationally representative survey of Medicare beneficiaries residing in the United States … Effective Health Care Research Report Number 4 weights that can be used to produce nationally representative … Effective Health Care Research Report Number 4 Discussion This study used a large nationally representative
  9. effectivehealthcare.ahrq.gov/sites/default/files/pdf/methods-guidance-applicability_methods.pdf
    January 01, 2011 - used to determine whether the populations, interventions, and comparisons in existing studies are representative … sample—this may require analysis of more representative registry or cohort data. … Unclear whether the participating centers and surgeons are representative of the larger population … The age of enrolled patients was representative of prostate cancer patients in the community, but subgroup … Additional follow-up from one study suggests that outcomes at 10 years are representative of longer-term
  10. effectivehealthcare.ahrq.gov/sites/default/files/methods_guide_atkins.pdf
    January 01, 2011 - used to determine whether the populations, interventions, and comparisons in existing studies are representative … sample—this may require analysis of more representative registry or cohort data. … Unclear whether the participating centers and surgeons are representative of the larger population … The age of enrolled patients was representative of prostate cancer patients in the community, but subgroup … Additional follow-up from one study suggests that outcomes at 10 years are representative of longer-term
  11. effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/pdf/epc-ki-tep-confidentiality-form.pdf
    August 01, 2020 - All communications between the EPC and Key Informants or Technical Experts should include the AHRQ representative … All communications between the EPC and Key Informants or Technical Experts should include the AHRQ representative
  12. effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/pdf/epc-rev-team-confidentiality-form.pdf
    September 01, 2018 - review team should not accept unsolicited input and should refer unsolicited communications to the AHRQ representative … review team should not accept unsolicited input and should refer unsolicited communications to the AHRQ representative
  13. effectivehealthcare.ahrq.gov/sites/default/files/related_files/knowledge-brief-2-methods-public-deliberation-130213.pdf
    February 01, 2013 - method that involves either random or purposive sampling, depending on whether they are seeking a more representative … A representative sample is particularly important if sponsors want to be able to say something through … They consist of a steering or advisory body and representative participants; they emphasize expert testimony
  14. effectivehealthcare.ahrq.gov/sites/default/files/knowledge-brief-2-methods-public-deliberation-130213.pdf
    February 01, 2013 - method that involves either random or purposive sampling, depending on whether they are seeking a more representative … A representative sample is particularly important if sponsors want to be able to say something through … They consist of a steering or advisory body and representative participants; they emphasize expert testimony
  15. effectivehealthcare.ahrq.gov/sites/default/files/lavallee-text.pdf
    October 13, 2011 - Ford Patient Advocate, Ovarian Cancer Advocacy Alliance Andrea Furia-Helms FDA Patient Representative
  16. Slide 1 (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/cf_intro_ehc_cf_overview_1012.pdf
    October 13, 2011 - Ford Patient Advocate, Ovarian Cancer Advocacy Alliance Andrea Furia-Helms FDA Patient Representative
  17. effectivehealthcare.ahrq.gov/sites/default/files/lessons-presentation.pdf
    January 01, 2013 - Research Director Center for Medical Technology Policy Dwyan Monroe Community Outreach Trainer/Patient Representative … Slide 35 Reaction from the patient perspective Dwyan Monroe Community Outreach Trainer/ Patient Representative … Dwyan Monroe Community Outreach Trainer/ Patient Representative Image: Photograph of the speaker
  18. effectivehealthcare.ahrq.gov/sites/default/files/pdf/methods-assessing-impact.pdf
    September 01, 2018 - ..............................................................................1 Health System and Representative … 1 9 min 0.75 min 6 min 0.5 min Health-System Representative 2 12 min 3 min 11 min 5 min … Methods Health System and Representative Description Duke University Health System is a world-class … min 15 min 10 min Pharmacy Student/Medical Fellow 3 15 min 4 min 3 min 1 min Health-System Representative … 1 9 min 0.75 min 6 min 0.5 min Health-System Representative 2 12 min 3 min 11 min 5 min
  19. Epstein (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/epstein1.pdf
    January 01, 2009 - The Patient-­‐Centered  Medical Home • PCP  as the communication  hub • PCP  as trusted  representative
  20. effectivehealthcare.ahrq.gov/sites/default/files/community-based-participatory-research-slides.pptx
    January 01, 2013 - Center for Medical Technology Policy Webinar Speakers Dwyan Monroe Community Outreach Trainer/Patient representative … research agenda (system and capacity changes) Dwyan Monroe Community Outreach Trainer/ Patient Representative … Community Forum Community Forum Community Forum Dwyan Monroe Community Outreach Trainer/ Patient Representative

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