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  1. effectivehealthcare.ahrq.gov/health-topics/personal-health-records
  2. effectivehealthcare.ahrq.gov/sites/default/files/pdf/registry-of-patient-registries_research-2012-3_0.pdf
    January 01, 2012 - ClinicalTrials.gov also already exists, and can be modified to accommodate patient registry records. … ClinicalTrials.gov will be modified to accommodate patient registry-specific records as follows: a new … be added to ClinicalTrials.gov to support the workflow for registering, viewing, and searching RoPR records … The PRS will act as a common registration portal for different types of records, including clinical … to the RoPR record.
  3. effectivehealthcare.ahrq.gov/sites/default/files/pdf/pediatric-ehr_research-protocol.pdf
    January 01, 2014 - Do integrated record systems lead to integrated services? … Electronic health records and quality of care for heart failure. … Electronic health records and ambulatory quality of care. … systems, computerized” retrieves 2165 records. … system” and “electronic health records” retrieves an additional 1105 records- many of which may not
  4. Naik (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/naik.pdf
    January 01, 2009 - Naik Slide 1: Using  Electronic Health Records  to … and Communication o Conceptual model of communication among clinicians o Using Electronic health records … Slide 6: Aims  of the Paper • Define terms and communication model • Role of Electronic Health Records … Increasing favored form of communication in co-­‐managed, integrated health systems • Electronic Health Records …  and  population  registries o Simultaneous update of patient’s dz management record whenever
  5. effectivehealthcare.ahrq.gov/sites/default/files/pdf/methods-report-machine-learning-screening.pdf
    November 01, 2019 - Each record was screened by two reviewers. … dAfter a 200-record training set. … , the 200- record training produced unreliable predictions. … We used a 200-record training set and a small sample of three SRs. … : user guide is not that helpful; unclear how to change the order of the records; record IDs not shown
  6. effectivehealthcare.ahrq.gov/sites/default/files/pdf/transparency-tympanostomy_research.pdf
    June 01, 2017 - in the registry records pertains to their design (if the registry record includes protocol information … ) or their findings (if the record includes results). … Studies Included in the Original Review, With a Registry Record Only six studies (in seven records) … on those records. … Studies Included in the Original Review with No Registry Record We were able to find a registry record
  7. effectivehealthcare.ahrq.gov/sites/default/files/upenn-final-report-2005-certs-ce-supplement.pdf
    January 01, 2005 - (SCD/VA) in an administrative dataset of 1999-2000 Medicaid and Medicare data using expert medical record … No diagnosis was present on the provider record in 12%, and Penn CERTs Comparative Effectiveness … Thus, even when the encounter diagnosis was highly accurate, other information from the medical record … As medical record validation was deemed the gold standard, this definition was used during the review … The abstractors’/co-PI’s determination of validity (via medical record review) was considered the gold
  8. effectivehealthcare.ahrq.gov/sites/default/files/pdf/administrative-data-validity_research.pdf
    January 01, 2007 - (SCD/VA) in an administrative dataset of 1999-2000 Medicaid and Medicare data using expert medical record … No diagnosis was present on the provider record in 12%, and Penn CERTs Comparative Effectiveness … Thus, even when the encounter diagnosis was highly accurate, other information from the medical record … As medical record validation was deemed the gold standard, this definition was used during the review … The abstractors’/co-PI’s determination of validity (via medical record review) was considered the gold
  9. effectivehealthcare.ahrq.gov/sites/default/files/pdf/transparency-neuropathy_research.pdf
    March 01, 2018 - We matched ClinicalTrials.gov records to publications. … Two reviewers extracted data from ClinicalTrials.gov records. … Our search of ClinicalTrials.gov yielded 266 records. … None of these records had posted results. Table 2. … About one-third (18 out of 53 records; 34%) of the ClinicalTrials.gov records posted results.
  10. effectivehealthcare.ahrq.gov/sites/default/files/pdf/registry-of-patient-registries_research-2012-2_1.pdf
    January 01, 2012 - ........................................................................... 8 Contacting Registry Record … Therefore, there will be a periodic (e.g., monthly) review of all RoPR records to manage duplicates. … patient registry record. … Once a protocol record has been published on ClinicalTrials.gov, it remains in the system even after … Under rare circumstances, such as the discovery of duplicate records, a sponsor may request that a record
  11. effectivehealthcare.ahrq.gov/sites/default/files/pdf/methods-research-report-unhealthy-alcohol-use-final.pdf
    September 01, 2018 - Evidence-Based Screening and Counseling for Unhealthy Alcohol Use With Epic-Based Electronic Health Record … Evidence-Based Screening and Counseling for Unhealthy Alcohol Use With Epic- Based Electronic Health Record … Evidence-Based Screening and Counseling for Unhealthy Alcohol Use With Epic- Based Electronic Health Record … unhealthy alcohol use in a General Internal Medicine (GIM) Clinic that included Epic electronic health record … The approach included Epic electronic health record tools, including visit-based reminders for nurses
  12. effectivehealthcare.ahrq.gov/products/pediatric-ehr/research-protocol
  13. effectivehealthcare.ahrq.gov/products/pediatric-ehr/technical-brief
  14. effectivehealthcare.ahrq.gov/sites/default/files/related_files/long-covid-appendix-a.pdf
    December 01, 2022 - https://www.clinicaltrials.gov/ ct2/show/record/NCT051672 27 https://onlinelibrary.wiley.com/doi/toc … canjhealthtechnol.ca/index.php/cjht/article/view/ES0372/ES0372 https://www.clinicaltrials.gov/ct2/show/record … /NCT05167227 https://www.clinicaltrials.gov/ct2/show/record/NCT05167227 https://www.clinicaltrials.gov … /ct2/show/record/NCT05167227 Source Program name Resource type Description Link Health Information
  15. effectivehealthcare.ahrq.gov/sites/default/files/pdf/cancer-quality-indicator-testing_research.pdf
    April 01, 2010 - JHH/SKCCC had a combination of several paper and electronic health records, and VAGLAHS used the VA … integrated electronic health record. … At JHH/SKCCC, after abstracting 148 medical records, we concluded that we had an adequate sample to … To assess inter-rater reliability (IRR), all nurses at each site abstracted a sample of records (5%, … At VAGLAHS, we assessed validity by physician implicit review (JLM or KAL) of records of cases that
  16. effectivehealthcare.ahrq.gov/sites/default/files/ch_8-user-guide-to-ocer_130129.pdf
    October 01, 2013 - The widespread availability of existing data from electronic health records, personal health records … Electronic Health Record (EHR) Data Electronic health records (EHRs) are used by health care providers … Is there a record of emergency department visits in addition to a record of outpatient and hospitalized … personal health records (PHRs) an alternative to electronic medical records. … Electronic medical record/electronic health record systems of office-based physicians: United States
  17. effectivehealthcare.ahrq.gov/sites/default/files/pdf/transparency-tympanostomy_research-protocol.pdf
    September 02, 2016 - For newly found studies, we will record additional data and assess their risk of bias. … A researcher other than the one who initially screened the record in will reassess study eligibility … , the additional information in the registry records pertains to their design (if the registry record … includes protocol information) or their findings (if the record includes results). … When results are reported in registry records, we will describe whether registry records and publications
  18. effectivehealthcare.ahrq.gov/sites/default/files/pdf/transparency-infertility_research.pdf
    June 01, 2017 - ), we abstracted selected variables from the CT.gov record to determine whether key study design variables … Of the 24 trials: • 8 were matched to a CT.gov record by NCTID • 3 were matched by other trial ID … Only one-third of the included trials were matched to a CT.gov record using the NCTID, the most reliable … using all available data, 50% (95% CI, 30 to 50%) of the eligible studies were matched to a CT.gov record … Prospective registration may yield more complete records and more informative data.
  19. effectivehealthcare.ahrq.gov/products/eccs-2009/white-paper
  20. effectivehealthcare.ahrq.gov/sites/default/files/selection-of-data-sources-chapter-8.pptx
    January 01, 2013 - Paper-based records The exclusion of sites without electronic records may bias results. … Electronic Medical Record Data Electronic medical records (EMRs) are used by health care providers to … Paper-Based Records Although time intensive to access, the use of paper-based records is sometimes required … Administrative record linkage as a tool for public health research. … to electronic medical records are personal health records (PHRs).

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