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  1. Slide 1 (ppt file)

    effectivehealthcare.ahrq.gov/sites/default/files/module_iv1.ppt
    October 08, 2025 - Locating patients and consumers or front-line clinicians has been more challenging. … include: Professional colleagues and networks Professional societies and associations AHRQ staff Patient … Particularly, a different approach may needed for patient, consumers and practicing physicians. … It is also a shift toward viewing patients, consumers, and others as having important, expert knowledge … it.Therefore, it is critical that investigators hear from actual patients and other decision-makers
  2. Bar-Cohen_ ECCS2012 (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/bar-cohen_-eccs2012.pdf
    January 01, 2012 - from  well-­‐designed  research  (preferably   randomized controlled trials), and physician experience … o Understand the chance that you will experience the outcome. … • Does the risk information reasonably apply to the patient? … • Does the change in risk information reasonably apply to the patient? … o Provide context so the  patient can develop  a sense of how big  (o small) the risk really is
  3. effectivehealthcare.ahrq.gov/sites/default/files/related_files/nppv-respiratory-failure_disposition-comments.pdf
    July 01, 2012 - The importance of provider training and experience cannot be overemphasized and probably represents … My overall experience is that NPPV usefulness is significantly limited by the clinicians experience … Seems almost as important to me as the difficult patient sub group types. … a bit more success with NPPV, although this is just from personal experience. … Regions are used as proxy for experience with NPPV.
  4. effectivehealthcare.ahrq.gov/sites/default/files/web-based_dubenske_presenter.pdf
    January 01, 2009 - Web-­‐based  Cancer  Communication  and  Decision-­‐making   Systems:     Connecting  Patients … right”  answer   • Shift  from  paternalism  to  consumerism  model   • Need  for  patients … Internet  control)     Slide  16:  CHESS  Benefits  for  Patients   • Potential …   • Key  considerations:     o Appropriate  sampling    Timing,  demographics,  experience … Critical  to  match  intervention  to  need   • Technology  as  barrier:   o Lack  experience
  5. effectivehealthcare.ahrq.gov/sites/default/files/module-iv-skills-for-successful-engagement.pdf
    October 08, 2025 - Locating patients and consumers or front-line clinicians has been more challenging. … § Professional colleagues and networks § Professional societies and associations § AHRQ staff § Patient … Particularly, a different approach may needed for patient, consumers and practicing physicians. … Speaker notes: AHRQ has high expectations for involving patients, consumers, frontline clinicians, and … it.Therefore, it is critical that investigators hear from actual patients and other decision-makers
  6. Ced-Appendix-3 (xls file)

    effectivehealthcare.ahrq.gov/sites/default/files/related_files/ced-appendix-3.xlsx
    June 24, 2022 - experience data and on whether individual patients seek care for the condition. … NEST_data • Patient-centeredness: Patients are engaged in the RWD/RWE process and provide consent when … How is this variability related to different levels of resources, experience, or expertise? … NAM2019 What level(s) of resources/experience/expertise are now present in the care settings in which … NAM2019 What level(s) of resources/experience/expertise are now present in the care settings in which
  7. effectivehealthcare.ahrq.gov/sites/default/files/related_files/bereaved-persons-protocol.pdf
    June 01, 2023 - experience KQ2: Diagnostic accuracy KQ3: Costs, patient experiences KQ4: Patient experiences … (patient experience, medicalizing grief, abnormalizing grief, feeling of pathologizing a normal process … : This domain will address whether the selection of patients could have introduced bias, taking into … Complicated grief and its correlates in patients with bipolar disorder. … The varieties of grief experience.
  8. Organisation (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/related_files/cancer-radiation_appendixes.pdf
    June 16, 2008 - Institute experience. … Results in 67 patients. … Influence of patient age on biochemical freedom from disease in patients undergoing conformal proton … Experience and plans. … Experience with pion radiotherapy.
  9. effectivehealthcare.ahrq.gov/sites/default/files/pdf/methods-guidance-tests-prognostic_methods.pdf
    July 01, 2012 - In some contexts, it may be informative to categorize subjects as those who did or did not experience … test on patient outcomes, and cost effectiveness. … The percentage of patients who experience the outcome usually increases with time thereby changing the … who did or did not experience the outcome of interest within a specific time period? … The NRI is the simple sum of net improvement in classifcation of patients that did or did not experience
  10. effectivehealthcare.ahrq.gov/sites/default/files/pdf/head-neck-cancer-update_clinician.pdf
    August 01, 2015 - RT is offered to nearly 75 per- cent of patients with head and neck cancer with curative or palliative … This summary is provided to inform discussions of treatment options with patients and/or caregivers … tumor characteristics on the relative effectiveness of RT modalities ��� ��� ��� Effects of user experience … , and the physician/RT team (e.g., experience), or by radiation treatment planning (e.g., target volume … outcomes with validated instruments What To Discuss With Your Patients and/or Their Caregivers �
  11. effectivehealthcare.ahrq.gov/sites/default/files/cer-249-malnutrition-hospitalized-adults-evidence-summary.pdf
    October 01, 2021 - o Patients requiring ICU care and diagnosed with malnutrition (using SGA) are likely to experience prolonged … ]) may experience more hospital acquired complications compared to well-nourished patients requiring … Risk Screening [NRS]-2002) may experience more hospital acquired conditions compared to well-nourished … o Patients hospitalized with cancer and diagnosed with malnutrition (using SGA) may experience prolonged … vital to standardize malnutrition assessment and further understand its downstream implications on patient-relevant
  12. effectivehealthcare.ahrq.gov/sites/default/files/related_files/cer-249-malnutrition-hospitalized-adults-evidence-summary_0.pdf
    October 01, 2021 - o Patients requiring ICU care and diagnosed with malnutrition (using SGA) are likely to experience prolonged … ]) may experience more hospital acquired complications compared to well-nourished patients requiring … Risk Screening [NRS]-2002) may experience more hospital acquired conditions compared to well-nourished … o Patients hospitalized with cancer and diagnosed with malnutrition (using SGA) may experience prolonged … vital to standardize malnutrition assessment and further understand its downstream implications on patient-relevant
  13. effectivehealthcare.ahrq.gov/sites/default/files/pdf/prehospital-airway-management-protocol.pdf
    December 20, 2019 - characteristics, level of training, and experience. … Patient characteristics? Key Question 2 a. … Patient characteristics? … Patient characteristics? Table 1. … ) • Patients treated with naloxone to reverse opioid-related respiratory failure • Patients cared
  14. effectivehealthcare.ahrq.gov/sites/default/files/related_files/nppv-respiratory-failure_executive.pdf
    July 01, 2012 - , organizational factors, and patient factors may differ substantially. … Additionally, it is uncertain whether the effects of NPPV vary by clinician experience and 3 training … continents) as a proxy for experience and completed subgroup analyses for this classification. … We also sought to determine whether the effects of NPPV varied by clinical setting, the experience and … of the treating clinicians and patient characteristics.
  15. effectivehealthcare.ahrq.gov/sites/default/files/cer-243-prehospital-airway-management-evidence-summary_0.pdf
    June 01, 2021 - Key Question 3 – SGA versus ETI; and Key Question 4 – how the benefits and harms differ based on patient … Continued on page 3 3 Background and Purpose Emergency medical services care for people who experience … Individual research studies, experience with hospitalized patients, and EMS agency resources and personnel … experience have led to questions about which prehospital airway management approach is best for what …  Construct comparisons that are more clearly defined by specific emergency types, patient groups
  16. effectivehealthcare.ahrq.gov/sites/default/files/lessons-transcript.pdf
    October 08, 2025 - She has experience with CBPR directly with working with John’s Hopkins University in chronic disease … She has 25 years of CBPR research experience and her work is focused on developing culturally centered … The highest level of patient involvement indicates the patients actually drive the research agenda and … If a physician is getting $500 per patient to recruit patients that might make a difference in whether … When we talk about getting patients who is recruiting the patient? Who’s doing the follow up care?
  17. effectivehealthcare.ahrq.gov/sites/default/files/pdf/patient-family-engagement-protocol.pdf
    December 31, 2019 - to improve care delivery, efficiency, outcomes, and patient experience, and reduce health care costs … tied Medicare reimbursements with scores on a patient experience survey.28 A 2016 survey of over 1450 … outcomes (e.g., patient activation, patient experience/satisfaction, patient-provider communication … Prior to the call key informants receive this information to guide the call: Think about: From your experience … context” [tiab] OR “patient capacity” [tiab] OR “patients capacity” [tiab] 33927 2.
  18. effectivehealthcare.ahrq.gov/sites/default/files/cer-245-breast-reconstruction-after-mastectomy-evidence-summary-updated-1.pdf
    October 01, 2021 - Results We found 160 primary studies comprising 478,650 patients in total. … However, ADM use and nonuse groups probably experience comparable risks of seroma (summary adjOR 1.52 … ADM use and nonuse groups may experience comparable risks of necrosis (summary adjOR 0.89, 95% CI 0.63 … We encourage clinicians to inform patients about the limitations of existing research and to help patients … reconstruction based on their values and preferences, together with the clinician’s expertise and experience
  19. effectivehealthcare.ahrq.gov/sites/default/files/related_files/telehealth-covid-19-disposition-comments.pdf
    January 03, 2023 - Affiliation Section Comment Response Public Commenter #2 (Cystic Fibrosis Foundation KQ3 The ExperiencePatient and family experience of telehealth care delivery as part of the CF chronic care model early … disabilities either cannot drive and lack services to transport them to in-person appointments, or experience … health and mental health is uniquely suited for the use of telehealth and this specialty does not experience … highlighting the need for further outcome research on transgender and gender diverse communities’ experience
  20. effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/stakeholder-report_0824.pdf
    August 01, 2024 - The panel was composed of 13 individuals bringing a combination of professional experience, research … background, and personal experience living with one or more disabilities. … Need for tools to help capture the patient perspective • What tools do clinicians and researchers … or experience with such interventions, and that funders can be reluctant to fund complex, innovative … on professional judgment and patient preferences.

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