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  1. effectivehealthcare.ahrq.gov/products/cultural-competence/research-protocol
    July 08, 2014 - Patient experience and satisfaction, such as improved perceptions of care C. … Utilization of health services Patient experience and satisfaction, such as improved perceptions of … learning/ knowledge Utilization of health services Patient experience/ satisfaction Patient health … experience/satisfaction Final health or patient-centered outcomes – reduced disparities in terms … experience/satisfaction Patient health behaviors Use of preventive services and other access to
  2. effectivehealthcare.ahrq.gov/sites/default/files/pdf/home-based-care_research-protocol.pdf
    November 19, 2014 - Patients in institutions Patients who live in nursing homes, prisons, or long-term care hospitals. … Patient and caregiver experience c. … and Caregiver Experience • Quality of life o Time patient remains in home and/or location of death … /death at home if that is patient preference o Patient and caregiver burden and/or anxiety • Patient … and caregiver experience, and utilization of services).  
  3. effectivehealthcare.ahrq.gov/products/home-based-care/research-protocol
    November 19, 2014 - Patients in institutions Patients who live in nursing homes, prisons, or long-term care hospitals … Patients who have a high level of health service needs or patients with high levels of utilization or … and Caregiver Experience Quality of life Time patient remains in home and/or location of death/death … at home if that is patient preference Patient and caregiver burden and/or anxiety Patient and … and caregiver experience, and utilization of services).
  4. effectivehealthcare.ahrq.gov/sites/default/files/pdf/patient-participant-generated-registries-guide-3rd-ed-addendum-white-paper.pdf
    February 01, 2018 - primarily as patients. … traditional registries is that they are founded, managed and/or governed by individuals with a lived experience … hypothesis that right-handed participants with amyotrophic lateral sclerosis (ALS) were more likely to experience … in building and sustaining patient trust and encouraging patients’ participation in research. … drivers of data entry, such as a tendency for participants to enter data more frequently when they experience
  5. effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/patient-participant-generated-registries-guide-3rd-ed-addendum-white-paper.pdf
    February 01, 2018 - primarily as patients. … traditional registries is that they are founded, managed and/or governed by individuals with a lived experience … hypothesis that right-handed participants with amyotrophic lateral sclerosis (ALS) were more likely to experience … in building and sustaining patient trust and encouraging patients’ participation in research. … drivers of data entry, such as a tendency for participants to enter data more frequently when they experience
  6. effectivehealthcare.ahrq.gov/sites/default/files/web-based_willis_respondent.pdf
    January 01, 2009 -  Cancer  Survivorship   Silver  Spring,  MD     Slide  2:  About  NCCS   • Patient … :  Changing  the  Culture  of  Oncology   • Resistance  from  physicians  and  patients …   • Assumption  that  all  patients  want  to/can  be  highly  involved   • Cancer … Decision  Aids   • Patients  need  competencies   • Implementation  AND  evaluation   …  where  they  are  (in  their  cancer  experience,  with  their  self-­‐ advocacy
  7. effectivehealthcare.ahrq.gov/sites/default/files/related_files/engaging-caregivers-appendix-b.xlsx
    January 08, 2024 - uses widely available online program called Parenting Wisely Adolescents treated for substance abuse experience … discharged from the inpatient complex care service Exclusion: International patients and patients who … in the ICU tool; (4) Patients who had a Richmond Agitation-Sedation Scale score ≥2; or (5) Patients … reconstruct memories by providing an illustrated account of their ICU experience. … Family Bridge Program using patient navigation and communication coaching B. NA A.
  8. effectivehealthcare.ahrq.gov/sites/default/files/ebc-challenge-webinar-transcript.pdf
    June 01, 2014 - We also appreciate this opportunity to discuss our project, our team, our rewarding experience and how … This system  of connecting the patient with the provider begins when the patient enters the clinic. … As patient and provider meet, patients will already know what to expect from   the provider.   … of the patients.   … Some of the patients, this is Lindy with QR Medica, some of the patients that we’ve talked to I think
  9. effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/healthcare-algorithms-agenda-for-March-23.pdf
    March 13, 2023 - (Other experience and insights from the audience or related topics that were not covered in this session … Pennsylvania School of Medicine) Focus: Results for Contextual Question 3  To what extent are patientsPatient perspective Presenter: Crystal Grant, PhD (American Civil Liberties Union) 2:30–2:40 p.m … professionals and communities, especially vulnerable groups and minorities o Approaches to involving patients … International experience and approaches to AI mitigation Presenter: Bilal Mateen, MBBS, MPH (Wellcome
  10. Slide 1 (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/johnson_-ahrq-mcda-presentation.pdf
    August 27, 2012 - a trade name of Research Triangle Institute. www.rti.org The Use of Conjoint Analysis to Elicit Patient … and making informed decisions requires identifying relevant endpoints  Increased concern about patient … Treat with a prescription medicine RISK OF BLEEDING ULCER 1 patient out of 100 (1 … RTI International Research Triangle Institute Physician Versus Patient Preferences Hepatitis B …  Idea of treating patient-preference measures as evidence is novel for most clinicians.
  11. effectivehealthcare.ahrq.gov/sites/default/files/product/pdf/practical-considerations.pdf
    March 01, 2022 - The information in this report is intended to help healthcare decision makers—patients and clinicians … information, i.e., in the context of available resources and circumstances presented by individual patients … AHRQ’s Experience ................................................................................... … More time and experience are needed to understand the impact on accuracy or burnout. … AHRQ’s Experience 2.1 Interim Reports Before the Original Systematic Review Is Complete 2.2 Scope
  12. effectivehealthcare.ahrq.gov/sites/default/files/pdf/epc-health-care-practice-delivery.pdf
    November 01, 2022 - The program has 25 years of experience in synthesizing research to inform evidence-based healthcare … models of care (e.g., impact of telehealth on health outcomes, mobile health technology for diabetes, patient
  13. effectivehealthcare.ahrq.gov/products/cancer-pancreas/research
    September 23, 2014 - For data on single-test accuracy, procedural harms, patient tolerance, and screening accuracy, we tabulated … was sufficient to conclude that MDCT and EUS-FNA have similar accuracy in assessing resectability in patients … comparative data on clinical management, survival, quality, or the impact on comparative accuracy of patient … characteristics, tumor characteristics, or operator experience. … conclusions we did draw are as follows: MDCT and EUS-FNA have similar accuracy in assessing resectability in patients
  14. effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholder-engagement-benefits_white-paper.pdf
    March 01, 2014 - Researchers and consumers (“patients, carers or family members, health service users, patient representatives … What types of stakeholders (e.g., clinical experts, patients, patient representatives) do you typically … What (in your experience) is lost by not engaging stakeholders? a. … “I have seen the inclusion of patients and patient advocates in the formulation of the questions be critically … “You also get patients coming to speak who are complete outliers to the general experience of patients
  15. effectivehealthcare.ahrq.gov/sites/default/files/hibbard-presentation.pdf
    November 11, 2015 - engagement and patient activation? … We sawthat people who measured lowon this scale they had much more experience with failure; they were … breaking them down  into small steps, and in doing so we can increase the opportunity forpeople to experience … activation scores from patients that went into the electronic medical record. … So let’s just go back and  review the  less activated patients.
  16. effectivehealthcare.ahrq.gov/sites/default/files/related_files/Evidence%20Summary.pdf
    October 01, 2021 - successful patient interventions. … We also identified prior high use and race as consistent predictors of being an HNHC patient. … requires capturing a combination of their prior use of and experience accessing healthcare services … building a trusting relationship between the patient and care providers. … Using patient characteristics available in electronic patient data is a first step, but identification
  17. effectivehealthcare.ahrq.gov/sites/default/files/related_files/hnhc-evidence-summary.pdf
    October 01, 2021 - successful patient interventions. … We also identified prior high use and race as consistent predictors of being an HNHC patient. … requires capturing a combination of their prior use of and experience accessing healthcare services … building a trusting relationship between the patient and care providers. … Using patient characteristics available in electronic patient data is a first step, but identification
  18. effectivehealthcare.ahrq.gov/products/pain-chronic/research-protocol
    July 28, 2010 - physiological, psychological, and social factors that serve to perpetuate and potentially worsen the pain experience … In what setting (in-patient or out-patient) was the study done? … Patients/patient advocates What has been your experience with MPP (or that of other patients)? … What was your experience (or other patients) with reimbursement? … physiological, psychological, and social factors that serve to perpetuate and potentially worsen the pain experience
  19. effectivehealthcare.ahrq.gov/sites/default/files/pdf/pain-chronic_research-protocol.pdf
    July 28, 2010 - physiological, psychological, and social factors that serve to perpetuate and potentially worsen the pain experience … In what setting (in-patient or out-patient) was the study done? 5. … Patients/patient advocates 1. … What has been your experience with MPP (or that of other patients)? 2. … What was your experience (or other patients) with reimbursement? 7.
  20. Layout 1 (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/related_files/breast-biopsy-executive.pdf
    December 01, 2009 - or the training or experience of the persons performing the biopsies to explore the effect of such factors … methods Insufficient Clinician characteristics Operator Accuracy improves Insufficient data Insufficient experience … with experience Insufficient data for any other factor related to clinician Inconclusive characteristics … rated The size of the needle did not affect the accuracy of the procedure Clinician and facility Experience … No conclusion possible Size of needle Insufficient No conclusion possible Clinician and facility Experience

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