-
effectivehealthcare.ahrq.gov/sites/default/files/branson-text.pdf
October 13, 2011 - § Patients/survivors/thrivers
§ Patient advocacy group members
§ Community advocacy group members … § Patient/caregiver experience
§ Advocacy experience
§ Ability to represent other patients/survivors … the patient/consumer representative with a colleague in the experience
Slide 10
SRA International … § Founded in 1978, SRA is dedicated to solving complex problems of global significance
for clients … § PRSM supports clients, including the DOD Congressionally Directed Medical Research
Programs (CDMRP
-
effectivehealthcare.ahrq.gov/sites/default/files/ahrq_community_forum_webinar_branson.pdf
October 13, 2011 - • Patients/survivors/thrivers
• Patient advocacy group members
• Community advocacy group members … SRA.
4
Characteristics of Patient
Representatives
• Have personal experience with the
disease … SRA.
5
Characteristics of Patient
Representatives
• Are engaged with other patients and … :
– Patient/caregiver experience
– Advocacy experience
– Ability to represent other patients/survivors … – Provides the patient/consumer representative
with a colleague in the experience
Significant
-
effectivehealthcare.ahrq.gov/sites/default/files/gibbons.pdf
January 01, 2010 - Slide
7: Why
Improving
Access and Quality
May
Not Be
Enough
• Minority patients stress … Slide
8: User Experience
and Health Care
Disparities
• Poor “user experience” in
health … • The health care user experience extends beyond the point of “care” to the broader patient
home and … nonclinical information (observations of daily living)
• Enhance access to health care services
o Patients … integration
• Future
o Doctors Like Me; Patients Like Mine
o “Doc”
sourcing
Slide
11: Will
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/clinical-care-protocol.pdf
January 01, 2024 - Programs for responding after patients experience harm in the course of their health care
were identified … experience harm in the course of
their clinical care has implications for the harmed patients and … experience harm as being fully integrated with the organization’s patient safety
efforts (as opposed … Associations Between Organizational
Communication and Patients' Experience of Prolonged Emotional Impact … Programs for responding after patients experience harm in the course of their health care were identified
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_slides-2011.pdf
January 01, 2011 - The AHRQ panel consisted of patients and consumers who have had the
experience of representing the … Patient and consumer representatives include patients,
patient advocates, community advocacy group … It is helpful if they have prior
experience that has brought them in contact with other patients, as … Not only does this allow for a greater representation of the patient experience and
perspective, it … have the
opportunity to evaluate their experience.
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/key-informant-interviews-research.pdf
December 19, 2017 - Why don’t we ask him what his experience was like?’ … This
experience was in sharp contrast to their experience in similar discussion groups sponsored by … participating in the group stakeholder discussion can be an intimidating experience
for patients/patient … Patients will talk about their own personal experience with the
disease/condition, whereas patient advocates … involvement and improve the
experience of patients in these systematic reviews.
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/cer-269-respectful-maternity-care-disposition-comments.pdf
January 02, 2024 - Psychometric validation of a patient-reported experience measure of obstetric racism©
(The PREM-OB Scale … This review focuses on patient experience
measures for care; however, patient experience is a function … By framing the definition of respectful maternity care in terms of patient
experience, without holding … levels, centered
around the
patient experience. … "Psychometric validation of a
patient-reported experience measure of obstetric racism© (The PREM-OB
-
effectivehealthcare.ahrq.gov/sites/default/files/thompson_eccs2012.pdf
January 01, 2012 - consistent
with his or her preference and values
Slide 3: Informed Decision Making (2 of 2)
• Patients … • The clinical encounter is now influenced by a patient who may be armed with
information. … Slide 19: Personal Experience and Health Decisions
• Individuals reflect on their experience in terms … harms as well as benefits.
• Prepare health
professionals
to
listen
to
and discuss patient … • What is the right balance of consumer-‐targeted health information and
physician/patient
discussion
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/dyspnea_research.pdf
April 01, 2010 - as respiratory distress for non-ventilated patients or patient-ventilator dysynchrony
for ventilated … for routine patient care. … However, not all patients who experience dyspnea are able to reliably self-report because of
impairments … assessing and characterizing the patient experience of dyspnea at clinical interactions. … experience of dyspnea and be repeated to aid management.
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/home-dialysis-ESKD-rapid-research.pdf
April 01, 2025 - for U.S. patients and
caregivers fail to provide the in-home patient and caregiver support routinely … experience is not new. … France
A French registry study attempted to shed light on patient needs and the selection of
patients … Initial anecdotal and pilot experience
(which is buttressed by international
experience) suggests that … on ultraviolet non-disconnect system:
nurse calls the patient beforehand, asks patient to
remove bag
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/palliative-care-tools_research-protocol.pdf
April 14, 2016 - at the individual patient level. … experience/satisfaction, comprehensive assessment).
1. … reviews, ranging from
patient- and caregiver-reported outcomes to quality indicators and patient experience … Measuring Experience With End-of-Life Care: A
Systematic Literature Review. … experience/satisfaction, comprehensive assessment)
VI.
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/patient-centered-medical-home_executive.pdf
July 01, 2012 - the variety of health care needs
of patients and to improve patient and staff
experiences, outcomes … the practice;
for example, studies restricted to
patients with diabetes or asthma. … Coordination of care (as perceived by patients)
c. Patient-provider interaction
2. … For staff experience, the evidence was less
robust but suggests benefit. … Organizing care for
patients with chronic illness. Milbank Q. 1996;74(4):511-44.
-
effectivehealthcare.ahrq.gov/sites/default/files/technical-brief-36-patient-engagement-comments.pdf
August 26, 2020 - mental healthcare
systems is by having the patient and family involved in
assessing the patient experience … We
agree that input from patients and
caregivers broadly, such as through
patient experience surveys … clear definition and distinction related to
patient satisfaction and patient experience: these are two … We edited “patient
satisfaction” to be broader, i.e., patient
experience. … as underlying
causes or critical factors for patient experience.
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/TND_0122_06-29-2009.pdf
January 01, 2009 - including maternal and
child health outcomes, efficacy of pain relief, satisfaction with the birth experience … of pain relief, maternal satisfaction with pain relief, maternal
satisfaction with labor and birth experience … What are the effects on the birth experience and maternal and child health
outcomes?
3. … It may also address issues
around patient monitoring, nursing protocol, collaborative care, and potential
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/TND_0260_07-16-2010.pdf
January 01, 2010 - Staff-Generated PICO
Population(s): Patients with or without hearing loss who experience the symptoms … comparative effectiveness of treatments
Outcome(s): Reduced severity of tinnitus symptoms, improved patient … )
Patients who experience the symptoms of chronic tinnitus often suffer from interference in
-
effectivehealthcare.ahrq.gov/sites/default/files/oct_13_webinar_transript_10-13-11.pdf
October 13, 2011 - The
panel consisted of patients and consumers who have had the
experience of representing the patient … So you’re looking for
patients’ caregiver experience. … It provides a
patient representative with a colleague in the experience. … This is client-centered for us. … Recruitment includes
providing the client or us providing the client with a
program consumer outreach
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/cancer-pancreas_research-protocol.pdf
August 09, 2013 - In addition, elucidating patients’
experience with and tolerance of various imaging modalities may help … How is test experience (e.g., operative experience, assessor experience, center’s annual
volume) related … How is test experience (e.g., operative experience, assessor experience, center's annual
volume) related … Any Key Questions on single versus multiple tests, test experience, patient factors (e.g.,
age), or … 85 percent of the patients were from one of the patient populations of interest.
-
effectivehealthcare.ahrq.gov/sites/default/files/product/pdf/hypertensive-disorders-pregnancy-protocol-amendment.pdf
April 20, 2022 - reported outcomes
o Patient reported experience measures (PREMs) for example
▪ Satisfaction with … Reported Experience Measure of Obstetric racism (PREM-OB
Scale)
o Patient reported outcome measures … reported outcomes
o Patient reported experience measures (PREMs), for example
▪ Satisfaction with … reported experience measure, PROM = patient
reported outcome measure, QoL = quality of life
IV. … Patient-reported outcome measures and patient-reported experience
measures.
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/deliberative-methods-demonstration-executive-131125.pdf
November 01, 2013 - First was the view that evidence of what works for most people may not
apply to each patient, as “everyone … so that patients can make informed decisions … from the outset, while others noted that group
deliberation changed their views supporting greater patient … Doctors—given their understanding of the evidence and the individual patient—should
have the authority … • Participants believed that patient access to information about evidence is limited, and a
more
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/registries-forums_research_0.pdf
May 01, 2014 - The DEcIDE
network assists health care providers, patients, and policymakers seeking unbiased information … Their experience is summarized below. … Similarly, would the Web-based CoP
be targeted only to those who have experience with patient registries … (e.g., patients,
members of the public)? … Platforms such as these use templates and modular structures
to “plug and play” functionality for their clients