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  1. effectivehealthcare.ahrq.gov/sites/default/files/branson-text.pdf
    October 13, 2011 - § Patients/survivors/thrivers § Patient advocacy group members § Community advocacy group members … § Patient/caregiver experience § Advocacy experience § Ability to represent other patients/survivors … the patient/consumer representative with a colleague in the experience Slide 10 SRA International … § Founded in 1978, SRA is dedicated to solving complex problems of global significance for clients … § PRSM supports clients, including the DOD Congressionally Directed Medical Research Programs (CDMRP
  2. effectivehealthcare.ahrq.gov/sites/default/files/ahrq_community_forum_webinar_branson.pdf
    October 13, 2011 - • Patients/survivors/thrivers • Patient advocacy group members • Community advocacy group members … SRA. 4 Characteristics of Patient Representatives • Have personal experience with the disease … SRA. 5 Characteristics of Patient Representatives • Are engaged with other patients and … : – Patient/caregiver experience – Advocacy experience – Ability to represent other patients/survivors … – Provides the patient/consumer representative with a colleague in the experience Significant
  3. Gibbons (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/gibbons.pdf
    January 01, 2010 - Slide  7: Why  Improving  Access and Quality  May  Not Be  Enough • Minority patients stress … Slide  8: User Experience  and Health Care  Disparities • Poor “user experience” in  health … • The health care user experience extends beyond the point of “care” to the broader patient home and … nonclinical information (observations of daily living) • Enhance access to health care services o Patients …  integration • Future o Doctors Like Me; Patients Like Mine o “Doc”  sourcing Slide  11: Will
  4. effectivehealthcare.ahrq.gov/sites/default/files/related_files/clinical-care-protocol.pdf
    January 01, 2024 - Programs for responding after patients experience harm in the course of their health care were identified … experience harm in the course of their clinical care has implications for the harmed patients and … experience harm as being fully integrated with the organization’s patient safety efforts (as opposed … Associations Between Organizational Communication and Patients' Experience of Prolonged Emotional Impact … Programs for responding after patients experience harm in the course of their health care were identified
  5. Meeting Summary (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_slides-2011.pdf
    January 01, 2011 - The AHRQ panel consisted of patients and consumers who have had the experience of representing the … Patient and consumer representatives include patients, patient advocates, community advocacy group … It is helpful if they have prior experience that has brought them in contact with other patients, as … Not only does this allow for a greater representation of the patient experience and perspective, it … have the opportunity to evaluate their experience.
  6. effectivehealthcare.ahrq.gov/sites/default/files/pdf/key-informant-interviews-research.pdf
    December 19, 2017 - Why don’t we ask him what his experience was like?’ … This experience was in sharp contrast to their experience in similar discussion groups sponsored by … participating in the group stakeholder discussion can be an intimidating experience for patients/patientPatients will talk about their own personal experience with the disease/condition, whereas patient advocates … involvement and improve the experience of patients in these systematic reviews.
  7. effectivehealthcare.ahrq.gov/sites/default/files/related_files/cer-269-respectful-maternity-care-disposition-comments.pdf
    January 02, 2024 - Psychometric validation of a patient-reported experience measure of obstetric racism© (The PREM-OB Scale … This review focuses on patient experience measures for care; however, patient experience is a function … By framing the definition of respectful maternity care in terms of patient experience, without holding … levels, centered around the patient experience. … "Psychometric validation of a patient-reported experience measure of obstetric racism© (The PREM-OB
  8. Thompson_ECCS2012 (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/thompson_eccs2012.pdf
    January 01, 2012 - consistent  with his or her preference and values Slide 3: Informed Decision Making (2 of 2) • Patients … • The clinical encounter is now influenced by a patient who may be armed with information. … Slide 19: Personal Experience and Health Decisions • Individuals reflect on their experience in terms … harms as well as benefits. • Prepare health  professionals  to  listen  to  and discuss patient … • What is the right balance of consumer-­‐targeted health information and physician/patient  discussion
  9. Dyspnea DEcIDE (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/pdf/dyspnea_research.pdf
    April 01, 2010 - as respiratory distress for non-ventilated patients or patient-ventilator dysynchrony for ventilated … for routine patient care. … However, not all patients who experience dyspnea are able to reliably self-report because of impairments … assessing and characterizing the patient experience of dyspnea at clinical interactions. … experience of dyspnea and be repeated to aid management.
  10. effectivehealthcare.ahrq.gov/sites/default/files/related_files/home-dialysis-ESKD-rapid-research.pdf
    April 01, 2025 - for U.S. patients and caregivers fail to provide the in-home patient and caregiver support routinely … experience is not new. … France A French registry study attempted to shed light on patient needs and the selection of patients … Initial anecdotal and pilot experience (which is buttressed by international experience) suggests that … on ultraviolet non-disconnect system: nurse calls the patient beforehand, asks patient to remove bag
  11. effectivehealthcare.ahrq.gov/sites/default/files/pdf/palliative-care-tools_research-protocol.pdf
    April 14, 2016 - at the individual patient level. … experience/satisfaction, comprehensive assessment). 1. … reviews, ranging from patient- and caregiver-reported outcomes to quality indicators and patient experience … Measuring Experience With End-of-Life Care: A Systematic Literature Review. … experience/satisfaction, comprehensive assessment) VI.
  12. effectivehealthcare.ahrq.gov/sites/default/files/related_files/patient-centered-medical-home_executive.pdf
    July 01, 2012 - the variety of health care needs of patients and to improve patient and staff experiences, outcomes … the practice; for example, studies restricted to patients with diabetes or asthma. … Coordination of care (as perceived by patients) c. Patient-provider interaction 2. … For staff experience, the evidence was less robust but suggests benefit. … Organizing care for patients with chronic illness. Milbank Q. 1996;74(4):511-44.
  13. effectivehealthcare.ahrq.gov/sites/default/files/technical-brief-36-patient-engagement-comments.pdf
    August 26, 2020 - mental healthcare systems is by having the patient and family involved in assessing the patient experience … We agree that input from patients and caregivers broadly, such as through patient experience surveys … clear definition and distinction related to patient satisfaction and patient experience: these are two … We edited “patient satisfaction” to be broader, i.e., patient experience. … as underlying causes or critical factors for patient experience.
  14. effectivehealthcare.ahrq.gov/sites/default/files/pdf/TND_0122_06-29-2009.pdf
    January 01, 2009 - including maternal and child health outcomes, efficacy of pain relief, satisfaction with the birth experience … of pain relief, maternal satisfaction with pain relief, maternal satisfaction with labor and birth experience … What are the effects on the birth experience and maternal and child health outcomes? 3. … It may also address issues around patient monitoring, nursing protocol, collaborative care, and potential
  15. effectivehealthcare.ahrq.gov/sites/default/files/pdf/TND_0260_07-16-2010.pdf
    January 01, 2010 - Staff-Generated PICO Population(s): Patients with or without hearing loss who experience the symptoms … comparative effectiveness of treatments Outcome(s): Reduced severity of tinnitus symptoms, improved patient … )  Patients who experience the symptoms of chronic tinnitus often suffer from interference in
  16. UBIQUS Document (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/oct_13_webinar_transript_10-13-11.pdf
    October 13, 2011 - The panel consisted of patients and consumers who have had the experience of representing the patient … So you’re looking for patients’ caregiver experience. … It provides a patient representative with a colleague in the experience. … This is client-centered for us. … Recruitment includes providing the client or us providing the client with a program consumer outreach
  17. effectivehealthcare.ahrq.gov/sites/default/files/pdf/cancer-pancreas_research-protocol.pdf
    August 09, 2013 - In addition, elucidating patientsexperience with and tolerance of various imaging modalities may help … How is test experience (e.g., operative experience, assessor experience, center’s annual volume) related … How is test experience (e.g., operative experience, assessor experience, center's annual volume) related … Any Key Questions on single versus multiple tests, test experience, patient factors (e.g., age), or … 85 percent of the patients were from one of the patient populations of interest.
  18. effectivehealthcare.ahrq.gov/sites/default/files/product/pdf/hypertensive-disorders-pregnancy-protocol-amendment.pdf
    April 20, 2022 - reported outcomes o Patient reported experience measures (PREMs) for example ▪ Satisfaction with … Reported Experience Measure of Obstetric racism (PREM-OB Scale) o Patient reported outcome measures … reported outcomes o Patient reported experience measures (PREMs), for example ▪ Satisfaction with … reported experience measure, PROM = patient reported outcome measure, QoL = quality of life IV. … Patient-reported outcome measures and patient-reported experience measures.
  19. effectivehealthcare.ahrq.gov/sites/default/files/related_files/deliberative-methods-demonstration-executive-131125.pdf
    November 01, 2013 - First was the view that evidence of what works for most people may not apply to each patient, as “everyone … so that patients can make informed decisions … from the outset, while others noted that group deliberation changed their views supporting greater patient … Doctors—given their understanding of the evidence and the individual patient—should have the authority … • Participants believed that patient access to information about evidence is limited, and a more
  20. effectivehealthcare.ahrq.gov/sites/default/files/pdf/registries-forums_research_0.pdf
    May 01, 2014 - The DEcIDE network assists health care providers, patients, and policymakers seeking unbiased information … Their experience is summarized below. … Similarly, would the Web-based CoP be targeted only to those who have experience with patient registries … (e.g., patients, members of the public)? … Platforms such as these use templates and modular structures to “plug and play” functionality for their clients

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