-
effectivehealthcare.ahrq.gov/sites/default/files/branson-text.pdf
October 13, 2011 - § Patients/survivors/thrivers
§ Patient advocacy group members
§ Community advocacy group members … § Patient/caregiver experience
§ Advocacy experience
§ Ability to represent other patients/survivors … the patient/consumer representative with a colleague in the experience
Slide 10
SRA International … § Founded in 1978, SRA is dedicated to solving complex problems of global significance
for clients … § PRSM supports clients, including the DOD Congressionally Directed Medical Research
Programs (CDMRP
-
effectivehealthcare.ahrq.gov/sites/default/files/ahrq_community_forum_webinar_branson.pdf
October 13, 2011 - • Patients/survivors/thrivers
• Patient advocacy group members
• Community advocacy group members … SRA.
4
Characteristics of Patient
Representatives
• Have personal experience with the
disease … SRA.
5
Characteristics of Patient
Representatives
• Are engaged with other patients and … :
– Patient/caregiver experience
– Advocacy experience
– Ability to represent other patients/survivors … – Provides the patient/consumer representative
with a colleague in the experience
Significant
-
effectivehealthcare.ahrq.gov/sites/default/files/gibbons.pdf
January 01, 2010 - Slide
7: Why
Improving
Access and Quality
May
Not Be
Enough
• Minority patients stress … Slide
8: User Experience
and Health Care
Disparities
• Poor “user experience” in
health … • The health care user experience extends beyond the point of “care” to the broader patient
home and … nonclinical information (observations of daily living)
• Enhance access to health care services
o Patients … integration
• Future
o Doctors Like Me; Patients Like Mine
o “Doc”
sourcing
Slide
11: Will
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/clinical-care-protocol.pdf
January 01, 2024 - Programs for responding after patients experience harm in the course of their health care
were identified … experience harm in the course of
their clinical care has implications for the harmed patients and … experience harm as being fully integrated with the organization’s patient safety
efforts (as opposed … Associations Between Organizational
Communication and Patients' Experience of Prolonged Emotional Impact … Programs for responding after patients experience harm in the course of their health care were identified
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_slides-2011.pdf
January 01, 2011 - The AHRQ panel consisted of patients and consumers who have had the
experience of representing the … Patient and consumer representatives include patients,
patient advocates, community advocacy group … It is helpful if they have prior
experience that has brought them in contact with other patients, as … Not only does this allow for a greater representation of the patient experience and
perspective, it … have the
opportunity to evaluate their experience.
-
effectivehealthcare.ahrq.gov/products/palliative-care-tools/technical-brief-2017
May 04, 2017 - To (1) provide an overview of palliative care assessment tools designed to be completed by or with patients … Methods
First, we engaged Key Informants representing both patient/caregiver and provider/researcher … experience). … experience. … experience subdomain.
-
effectivehealthcare.ahrq.gov/system/files/docs/topic-brief-optimal-quality-metrics-telemedicine.pdf
July 12, 2021 - geared towards understanding the effectiveness, harms and implementation of telehealth
services; and patient … Through use of the survey, evidence will be generated about patient’s experience with
telehealth that … experience with health care. … experience, and spending for the non-
institutionalized US population. … In particular they are interested
in the characteristics of the patient, provider and organization that
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/key-informant-interviews-research.pdf
December 19, 2017 - Why don’t we ask him what his experience was like?’ … This
experience was in sharp contrast to their experience in similar discussion groups sponsored by … participating in the group stakeholder discussion can be an intimidating experience
for patients/patient … Patients will talk about their own personal experience with the
disease/condition, whereas patient advocates … involvement and improve the
experience of patients in these systematic reviews.
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/patient-centered-medical-home_executive.pdf
July 01, 2012 - the variety of health care needs
of patients and to improve patient and staff
experiences, outcomes … the practice;
for example, studies restricted to
patients with diabetes or asthma. … Coordination of care (as perceived by patients)
c. Patient-provider interaction
2. … For staff experience, the evidence was less
robust but suggests benefit. … Organizing care for
patients with chronic illness. Milbank Q. 1996;74(4):511-44.
-
effectivehealthcare.ahrq.gov/products/palliative-care-tools/research-protocol
April 14, 2016 - the individual patient level. … and caregiver experience, only 50% of trials had statistically significantly positive findings. … experience/satisfaction, comprehensive assessment). … reviews, ranging from patient- and caregiver-reported outcomes to quality indicators and patient experience … Measuring Experience With End-of-Life Care: A Systematic Literature Review.
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/cer-269-respectful-maternity-care-disposition-comments.pdf
January 02, 2024 - Psychometric validation of a patient-reported experience measure of obstetric racism©
(The PREM-OB Scale … This review focuses on patient experience
measures for care; however, patient experience is a function … By framing the definition of respectful maternity care in terms of patient
experience, without holding … levels, centered
around the
patient experience. … "Psychometric validation of a
patient-reported experience measure of obstetric racism© (The PREM-OB
-
effectivehealthcare.ahrq.gov/products/registry-of-patient-registries/standardized-library
February 11, 2019 - Development of Harmonized Outcome Measures for Use in Patient Registries and Clinical Practice: Methods … Outcome Measures Framework (OMF), a conceptual model for classifying outcomes that are relevant to patients … A stakeholder group, primarily composed of patient and provider representatives and Federal partners, … It is likely that other clinical areas will experience varying challenges for pursuing harmonization … A framework for creating standardized outcome measures for patient registries.
-
effectivehealthcare.ahrq.gov/products/key-informant-interviews/research
September 14, 2017 - One place where patients, caregivers, and patient advocates are used extensively is as Key Informants … An EPC utilizes a panel of patients/patient advocates, researchers, and clinicians in the topic refinement … advocates who participated as Key Informants in prior systematic reviews regarded that experience and … review, (2) adequately prepare patients/patient advocates to participate in the review by explaining … , and (6) keep patients/patient advocates engaged after the group stakeholder discussion by providing
-
effectivehealthcare.ahrq.gov/products/dyspnea/research
June 16, 2010 - as respiratory distress for non-ventilated patients or patient-ventilator dysynchrony for ventilated … for routine patient care. … However, not all patients who experience dyspnea are able to reliably self-report because of impairments … assessing and characterizing the patient experience of dyspnea at clinical interactions. … experience of dyspnea and be repeated to aid management.
-
effectivehealthcare.ahrq.gov/sites/default/files/thompson_eccs2012.pdf
January 01, 2012 - consistent
with his or her preference and values
Slide 3: Informed Decision Making (2 of 2)
• Patients … • The clinical encounter is now influenced by a patient who may be armed with
information. … Slide 19: Personal Experience and Health Decisions
• Individuals reflect on their experience in terms … harms as well as benefits.
• Prepare health
professionals
to
listen
to
and discuss patient … • What is the right balance of consumer-‐targeted health information and
physician/patient
discussion
-
effectivehealthcare.ahrq.gov/products/inguinal-hernia/research
August 17, 2012 - review the evidence to inform key decisions in the management of inguinal hernia in adults and pediatric patients … Study information was extracted into tables regarding general information, patient enrollment criteria … Many studies reported that surgical experience lowers the risk of recurrence after laparoscopic repair … Conclusions
Patients, families, and providers can use this evidence review to improve decisionmaking … The typical patient was a middle-aged man of average weight with primary unilateral inguinal hernia.
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/dyspnea_research.pdf
April 01, 2010 - as respiratory distress for non-ventilated patients or patient-ventilator dysynchrony
for ventilated … for routine patient care. … However, not all patients who experience dyspnea are able to reliably self-report because of
impairments … assessing and characterizing the patient experience of dyspnea at clinical interactions. … experience of dyspnea and be repeated to aid management.
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/palliative-care-tools_research-protocol.pdf
April 14, 2016 - at the individual patient level. … experience/satisfaction, comprehensive assessment).
1. … reviews, ranging from
patient- and caregiver-reported outcomes to quality indicators and patient experience … Measuring Experience With End-of-Life Care: A
Systematic Literature Review. … experience/satisfaction, comprehensive assessment)
VI.
-
effectivehealthcare.ahrq.gov/get-involved/nominated-topics/key-questions-1-does-routine-preoperative-testing-compared-to-no-testing-or-alternative-testing-strategies-improve-outcomes-such-as-surgical-complications-other-morbidity-and-mortality-among-patients-undergoing-elective-surge
February 10, 2011 - tests change patient management decisions? … What patients or group(s) of patients does your question apply to? … experience.14,15 A large proportion of the cost savings would be among patients enrolled in federal … experience.14,15 A large proportion of the cost savings would be among patients enrolled in federal … experience.
-
effectivehealthcare.ahrq.gov/products/home-based-care/research
February 16, 2016 - HBPC had a positive impact on patient and caregiver experience, including satisfaction, quality of life … In studies that reported on the impact of patient characteristics, moderate evidence indicated that frail … or sicker patients are more likely than others to benefit from HBPC. … and caregiver experience. … Additional research is also needed about which patients benefit most from HBPC and how HBPC can best