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41. Comparative Effectiveness of Surgical Options for Inguinal Hernia | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/inguinal-hernia/research-protocol
    December 01, 2019 - data on the relation between surgical experience and outcomes. … a measure of general experience such as surgeon age. … Patient characteristics. … Was the process of assigning patients to groups made independently from physician and patient preference … Patient satisfaction.

42. Evidence-based Practice Center Systematic Review Protocol (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/inguinal-hernia_research-protocol.pdf
    August 15, 2011 - For each type of laparoscopic mesh repair, what is the association between surgical experience and … must provide data on the relation between surgical experience and outcomes. … a measure of general experience such as surgeon age. 6. … Patient criteria 8. … Was the process of assigning patients to groups made independently from physician and patient preference

43. Strategies for Patient, Family and Caregiver Engagement | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/family-engagement/protocol
    May 01, 2020 - to improve care delivery, efficiency, outcomes, and patient experience, and reduce health care costs … Medicare reimbursements with scores on a patient experience survey. 28 A 2016 survey of over 1450 hospitals … outcomes (e.g., patient activation, patient experience/satisfaction, patient-provider communication, … Prior to the call key informants receive this information to guide the call: Think about: From your experience … Hospitalized patients' participation and its impact on quality of care and patient safety.

44. Radiotherapy Treatments for Head and Neck Cancer (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/head-neck-cancer-update_clinician.pdf
    August 01, 2015 - RT is offered to nearly 75 per- cent of patients with head and neck cancer with curative or palliative … This summary is provided to inform discussions of treatment options with patients and/or caregivers … tumor characteristics on the relative effectiveness of RT modalities ��� ��� ��� Effects of user experience … , and the physician/RT team (e.g., experience), or by radiation treatment planning (e.g., target volume … outcomes with validated instruments What To Discuss With Your Patients and/or Their Caregivers �

45. Research to Improve the Delivery of Clinical Preventive Services to People with Disabilities (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/wysiwyg/stakeholder-report_0824.pdf
    August 01, 2024 - The panel was composed of 13 individuals bringing a combination of professional experience, research … background, and personal experience living with one or more disabilities. … Need for tools to help capture the patient perspective • What tools do clinicians and researchers … or experience with such interventions, and that funders can be reluctant to fund complex, innovative … on professional judgment and patient preferences.

46. Home-Based Primary Care Interventions | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/home-based-care/research
    December 01, 2019 - EHC The Evidence-based Practice Centers The Scientific Resource Center Registry of Patient … HBPC had a positive impact on patient and caregiver experience, including satisfaction, quality of life … or sicker patients are more likely than others to benefit from HBPC. … and caregiver experience. … Additional research is also needed about which patients benefit most from HBPC and how HBPC can best

47. Registries for Evaluating Patient Outcomes: A User’s Guide, First Edition | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/registries-guide/research
    March 01, 2022 - CMS, we arrived at a set of contributors and reviewers based on subject/content expertise, practical experience … The research protocol describes inclusion and exclusion criteria that are used to select the patients … There are generally few inclusion and exclusion criteria in an effort to study a broad range of patients … Patients are typically observed as they present for care and the data collected generally reflect whatever … and patients.

48. Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries and Research Networks (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_white-paper.pdf
    September 01, 2013 - Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries … Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries … distinguished from randomized controlled trials or scientific experiments that cannot measure real-life experience … who share a condition or experience. … combine data from multiple conditions, so that researchers can study treatment effects or other shared experience

49. Slide 1 (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/cf__deliberativemethodswebinar_deliberativemethodsexperiment.pdf
    June 01, 2012 - Addresses fundamental tensions in healthcare ─ Appropriate roles and responsibilities of providers, patients … quality of care, generation of medical evidence Attitudes ─ On appropriate roles of providers, patients

50. Effective Health Care (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/TND_0411_02-10-2011.pdf
    January 01, 2011 - preoperative testing or alternative testing Outcome(s): Surgical complications, morbidity, mortality, patient … experience, improved patient safety, cost savings Key Questions from Nominator: 1. … (e.g., potassium in patients on diuretics, pregnancy test in women of child-bearing age) 4. … Do routine preoperative tests change patient management decisions? … preoperative testing has been part of the screening process for appropriate preoperative care and patient

51. Supporting Patient and Consumer Involvement in Patient-Centered Outcomes Research (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/lavallee-text.pdf
    October 13, 2011 - , NBCC Project LEAD § Partnering with Patients to Disseminate Research Products § Lawrence Sadwin, … representatives; and § Understand strategies for partnering with patients and consumers in the translation … § Develop capacity building resources for patients, consumers and researchers § Identify and learn … from other organizations who successfully involve the patients and consumers Slide 7 Supporting … Representatives § Amy Bonoff, NBCC Project LEAD § Partnering with Patients to Disseminate Research

52. Community Forum Deliberative Methods Demonstration: Evaluating Effectiveness and Eliciting Public Views on Use of Evidence--Executive Summary (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/deliberative-methods-demonstration-executive-131125.pdf
    November 01, 2013 - First was the view that evidence of what works for most people may not apply to each patient, as “everyone … so that patients can make informed decisions … from the outset, while others noted that group deliberation changed their views supporting greater patient … Doctors—given their understanding of the evidence and the individual patient—should have the authority … • Participants believed that patient access to information about evidence is limited, and a more

53. Closing the Quality Gap Series: The Patient-Centered Medical Home | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/patient-centered-medical-home/research
    December 01, 2019 - EHC The Evidence-based Practice Centers The Scientific Resource Center Registry of Patient … PCMH interventions had a small positive impact on patient experiences (including patient-perceived care … The PCMH holds promise for improving the experiences of patients and staff, and potentially for improving … Project Timeline Closing the Quality Gap Series: The Patient-Centered Medical Home Dec 6, 2011 … https://effectivehealthcare.ahrq.gov/products/patient-centered-medical-home/research  

54. Patient and Provider Level Strategies to Address Racial/Ethnic Disparities in Health and Healthcare (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/tech-brief-patient-provider-strategies-protocol-final.pdf
    May 18, 2022 - set of conditions and by focusing on strategies/interventions that are 1) targeted more broadly at patients … Guiding Questions What is the current evidence for strategies targeted at patients and provider/health … The patient advocates will bring experience in the prevention and/or treatments of chronic diseases, … racial and ethnic disparities experience in health and healthcare, knowledgeable of possible patient-level … The patient advocates will bring experience in the prevention and/or treatments of chronic diseases,

55. Disposition of Comments Report for Comparative Effectiveness Review #68 (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/nppv-respiratory-failure_disposition-comments.pdf
    July 01, 2012 - The importance of provider training and experience cannot be overemphasized and probably represents … My overall experience is that NPPV usefulness is significantly limited by the clinicians experience … Seems almost as important to me as the difficult patient sub group types. … a bit more success with NPPV, although this is just from personal experience. … Regions are used as proxy for experience with NPPV.

56. Ced-Appendix-3 (xls file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/ced-appendix-3.xlsx
    June 24, 2022 - experience data and on whether individual patients seek care for the condition. … NEST_data • Patient-centeredness: Patients are engaged in the RWD/RWE process and provide consent when … How is this variability related to different levels of resources, experience, or expertise? … NAM2019 What level(s) of resources/experience/expertise are now present in the care settings in which … NAM2019 What level(s) of resources/experience/expertise are now present in the care settings in which

57. Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries and Research Networks | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/stakeholders-engagement-others/white-paper
    November 01, 2017 - distinguished from randomized controlled trials or scientific experiments that cannot measure real-life experience … To focus research more directly on patient and family member needs, patient and family advocates and … organizations have created and operated “patient-powered” patient registries and research networks since … Patient-powered registries (PPRs) and patient-powered research networks (PPRNs) offer new directions … patient registries and research networks.

58. Options for Developing a Web-based Forum on Patient Registries | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/registries-forums/research
    March 01, 2022 - ) “to conduct research to provide information about the best available evidence to help patients and … Their experience is summarized below. … Similarly, would the Web-based CoP be targeted only to those who have experience with patient registries … (e.g., patients, members of the public)? … Platforms such as these use templates and modular structures to “plug and play” functionality for their clients

59. Chapter 12: Systematic Review of Prognostic Tests | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/methods-guidance-tests-prognostic/methods
    December 01, 2019 - In some contexts, it may be informative to categorize subjects as those who did or did not experience … The percentage of patients who experience the outcome usually increases with time thereby changing the … who did or did not experience the outcome of interest within a specific time period? … In the group who did not experience the outcome event, the net improvement is the proportion of patients … The NRI is the simple sum of net improvement in classifcation of patients that did or did not experience

60. Methods Guide for Medical Test Reviews Chapter 12 (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/methods-guidance-tests-prognostic_methods.pdf
    July 01, 2012 - In some contexts, it may be informative to categorize subjects as those who did or did not experience … test on patient outcomes, and cost effectiveness. … The percentage of patients who experience the outcome usually increases with time thereby changing the … who did or did not experience the outcome of interest within a specific time period? … The NRI is the simple sum of net improvement in classifcation of patients that did or did not experience