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  1. effectivehealthcare-admin.ahrq.gov/sites/default/files/branson-text.pdf
    October 13, 2011 - § Patients/survivors/thrivers § Patient advocacy group members § Community advocacy group members … § Patient/caregiver experience § Advocacy experience § Ability to represent other patients/survivors … the patient/consumer representative with a colleague in the experience Slide 10 SRA International … § Founded in 1978, SRA is dedicated to solving complex problems of global significance for clients … § PRSM supports clients, including the DOD Congressionally Directed Medical Research Programs (CDMRP
  2. effectivehealthcare-admin.ahrq.gov/sites/default/files/ahrq_community_forum_webinar_branson.pdf
    October 13, 2011 - • Patients/survivors/thrivers • Patient advocacy group members • Community advocacy group members … SRA. 4 Characteristics of Patient Representatives • Have personal experience with the disease … SRA. 5 Characteristics of Patient Representatives • Are engaged with other patients and … : – Patient/caregiver experience – Advocacy experience – Ability to represent other patients/survivors … – Provides the patient/consumer representative with a colleague in the experience Significant
  3. effectivehealthcare-admin.ahrq.gov/products/clinical-care/rapid-research
    April 01, 2025 - experience harm during their care. … The studies focused on medical malpractice experience and financial outcomes, including time to resolution … or experience; patient safety; quality of care; communication and relationships between patients, families … and cost outcomes rather than patient-oriented outcomes. … Programs for Responding to Harms Experienced by Patients During Clinical Care. Rapid Review.
  4. Gibbons (pdf file)

    effectivehealthcare-admin.ahrq.gov/sites/default/files/gibbons.pdf
    January 01, 2010 - Slide  7: Why  Improving  Access and Quality  May  Not Be  Enough • Minority patients stress … Slide  8: User Experience  and Health Care  Disparities • Poor “user experience” in  health … • The health care user experience extends beyond the point of “care” to the broader patient home and … nonclinical information (observations of daily living) • Enhance access to health care services o Patients …  integration • Future o Doctors Like Me; Patients Like Mine o “Doc”  sourcing Slide  11: Will
  5. effectivehealthcare-admin.ahrq.gov/products/clinical-care/protocol
    August 01, 2024 - Programs for responding after patients experience harm in the course of their health care were identified … experience harm in the course of their clinical care has implications for the harmed patients and their … experience harm in the course of their care. … experience harm as being fully integrated with the organization’s patient safety efforts (as opposed … Associations Between Organizational Communication and Patients' Experience of Prolonged Emotional Impact
  6. effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/clinical-care-protocol.pdf
    January 01, 2024 - Programs for responding after patients experience harm in the course of their health care were identified … experience harm in the course of their clinical care has implications for the harmed patients and … experience harm as being fully integrated with the organization’s patient safety efforts (as opposed … Associations Between Organizational Communication and Patients' Experience of Prolonged Emotional Impact … Programs for responding after patients experience harm in the course of their health care were identified
  7. Meeting Summary (pdf file)

    effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_slides-2011.pdf
    January 01, 2011 - The AHRQ panel consisted of patients and consumers who have had the experience of representing the … Patient and consumer representatives include patients, patient advocates, community advocacy group … It is helpful if they have prior experience that has brought them in contact with other patients, as … Not only does this allow for a greater representation of the patient experience and perspective, it … have the opportunity to evaluate their experience.
  8. effectivehealthcare-admin.ahrq.gov/products/systematic-review-updates/research
    November 01, 2017 - EHC The Evidence-based Practice Centers The Scientific Resource Center Registry of Patient … Surveillance and Identification of Signals for Updating Systematic Reviews: Implementation and Early Experience … Surveillance and Identification of Signals for Updating Systematic Reviews: Implementation and Early Experience … Repository White Paper May 31, 2024 Making Healthcare Safer IV: Summary of Findings on Patient … White Paper Jul 27, 2023 Making Healthcare Safer IV: Final Report on Prioritization of Patient
  9. effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/key-informant-interviews-research.pdf
    December 19, 2017 - Why don’t we ask him what his experience was like?’ … This experience was in sharp contrast to their experience in similar discussion groups sponsored by … participating in the group stakeholder discussion can be an intimidating experience for patients/patientPatients will talk about their own personal experience with the disease/condition, whereas patient advocates … involvement and improve the experience of patients in these systematic reviews.
  10. effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/patient-centered-medical-home_executive.pdf
    July 01, 2012 - the variety of health care needs of patients and to improve patient and staff experiences, outcomes … the practice; for example, studies restricted to patients with diabetes or asthma. … Coordination of care (as perceived by patients) c. Patient-provider interaction 2. … For staff experience, the evidence was less robust but suggests benefit. … Organizing care for patients with chronic illness. Milbank Q. 1996;74(4):511-44.
  11. effectivehealthcare-admin.ahrq.gov/products/palliative-care-tools/research-protocol
    January 01, 2021 - the individual patient level. … and caregiver experience, only 50% of trials had statistically significantly positive findings. … experience/satisfaction, comprehensive assessment). … reviews, ranging from patient- and caregiver-reported outcomes to quality indicators and patient experience … Measuring Experience With End-of-Life Care: A Systematic Literature Review.
  12. effectivehealthcare-admin.ahrq.gov/products/aces-2010/white-paper-2010-1
    July 01, 2019 - Scott is a graduate of Bowling Green State University and has over 20 years of experience designing, … Fleisher has over 25 years of experience in the fields of cancer control, health communications, program … As such, he focuses on all aspects of the Sermo user experience. … with the development and implementation of many Sermo product offerings, including Sermo Panels and client … He has a particular interest in insuring that the physician-client interactions that Sermo facilitates
  13. effectivehealthcare-admin.ahrq.gov/products/palliative-care-tools/technical-brief-2017
    January 01, 2021 - To (1) provide an overview of palliative care assessment tools designed to be completed by or with patients … Methods First, we engaged Key Informants representing both patient/caregiver and provider/researcher … experience). … experience. … experience subdomain.
  14. effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/cer-269-respectful-maternity-care-disposition-comments.pdf
    January 02, 2024 - Psychometric validation of a patient-reported experience measure of obstetric racism© (The PREM-OB Scale … This review focuses on patient experience measures for care; however, patient experience is a function … By framing the definition of respectful maternity care in terms of patient experience, without holding … levels, centered around the patient experience. … "Psychometric validation of a patient-reported experience measure of obstetric racism© (The PREM-OB
  15. effectivehealthcare-admin.ahrq.gov/products/dyspnea/research
    January 01, 2019 - as respiratory distress for non-ventilated patients or patient-ventilator dysynchrony for ventilated … for routine patient care. … However, not all patients who experience dyspnea are able to reliably self-report because of impairments … assessing and characterizing the patient experience of dyspnea at clinical interactions. … experience of dyspnea and be repeated to aid management.
  16. Thompson_ECCS2012 (pdf file)

    effectivehealthcare-admin.ahrq.gov/sites/default/files/thompson_eccs2012.pdf
    January 01, 2012 - consistent  with his or her preference and values Slide 3: Informed Decision Making (2 of 2) • Patients … • The clinical encounter is now influenced by a patient who may be armed with information. … Slide 19: Personal Experience and Health Decisions • Individuals reflect on their experience in terms … harms as well as benefits. • Prepare health  professionals  to  listen  to  and discuss patient … • What is the right balance of consumer-­‐targeted health information and physician/patient  discussion
  17. Dyspnea DEcIDE (pdf file)

    effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/dyspnea_research.pdf
    April 01, 2010 - as respiratory distress for non-ventilated patients or patient-ventilator dysynchrony for ventilated … for routine patient care. … However, not all patients who experience dyspnea are able to reliably self-report because of impairments … assessing and characterizing the patient experience of dyspnea at clinical interactions. … experience of dyspnea and be repeated to aid management.
  18. effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/palliative-care-tools_research-protocol.pdf
    April 14, 2016 - at the individual patient level. … experience/satisfaction, comprehensive assessment). 1. … reviews, ranging from patient- and caregiver-reported outcomes to quality indicators and patient experience … Measuring Experience With End-of-Life Care: A Systematic Literature Review. … experience/satisfaction, comprehensive assessment) VI.
  19. effectivehealthcare-admin.ahrq.gov/products/inguinal-hernia/research
    December 01, 2019 - review the evidence to inform key decisions in the management of inguinal hernia in adults and pediatric patients … laparoscopic approach is used; which type of mesh to use; which mesh fixation method (if any) to use; how experience … trials (RCTs), 2 were registries, and 26 had other designs (included only for the laparoscopic surgical experience … Many studies reported that surgical experience lowers the risk of recurrence after laparoscopic repair … Conclusions Patients, families, and providers can use this evidence review to improve decisionmaking
  20. effectivehealthcare-admin.ahrq.gov/products/key-informant-interviews/research
    January 01, 2019 - One place where patients, caregivers, and patient advocates are used extensively is as Key Informants … advocates who participated as Key Informants in prior systematic reviews regarded that experience and … review, (2) adequately prepare patients/patient advocates to participate in the review by explaining … , and (6) keep patients/patient advocates engaged after the group stakeholder discussion by providing … To maximize patients/patient advocates’ participation, the utility and value of their contributions,

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