-
effectivehealthcare-admin.ahrq.gov/sites/default/files/branson-text.pdf
October 13, 2011 - § Patients/survivors/thrivers
§ Patient advocacy group members
§ Community advocacy group members … § Patient/caregiver experience
§ Advocacy experience
§ Ability to represent other patients/survivors … the patient/consumer representative with a colleague in the experience
Slide 10
SRA International … § Founded in 1978, SRA is dedicated to solving complex problems of global significance
for clients … § PRSM supports clients, including the DOD Congressionally Directed Medical Research
Programs (CDMRP
-
effectivehealthcare-admin.ahrq.gov/sites/default/files/ahrq_community_forum_webinar_branson.pdf
October 13, 2011 - • Patients/survivors/thrivers
• Patient advocacy group members
• Community advocacy group members … SRA.
4
Characteristics of Patient
Representatives
• Have personal experience with the
disease … SRA.
5
Characteristics of Patient
Representatives
• Are engaged with other patients and … :
– Patient/caregiver experience
– Advocacy experience
– Ability to represent other patients/survivors … – Provides the patient/consumer representative
with a colleague in the experience
Significant
-
effectivehealthcare-admin.ahrq.gov/products/clinical-care/rapid-research
April 01, 2025 - experience harm during their care. … The studies focused on medical malpractice experience and financial outcomes, including time to resolution … or experience; patient safety; quality of care; communication and relationships between patients, families … and cost outcomes rather than patient-oriented outcomes. … Programs for Responding to Harms Experienced by Patients During Clinical Care. Rapid Review.
-
effectivehealthcare-admin.ahrq.gov/sites/default/files/gibbons.pdf
January 01, 2010 - Slide
7: Why
Improving
Access and Quality
May
Not Be
Enough
• Minority patients stress … Slide
8: User Experience
and Health Care
Disparities
• Poor “user experience” in
health … • The health care user experience extends beyond the point of “care” to the broader patient
home and … nonclinical information (observations of daily living)
• Enhance access to health care services
o Patients … integration
• Future
o Doctors Like Me; Patients Like Mine
o “Doc”
sourcing
Slide
11: Will
-
effectivehealthcare-admin.ahrq.gov/products/clinical-care/protocol
August 01, 2024 - Programs for responding after patients experience harm in the course of their health care were identified … experience harm in the course of their clinical care has implications for the harmed patients and their … experience harm in the course of their care. … experience harm as being fully integrated with the organization’s patient safety efforts (as opposed … Associations Between Organizational Communication and Patients' Experience of Prolonged Emotional Impact
-
effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/clinical-care-protocol.pdf
January 01, 2024 - Programs for responding after patients experience harm in the course of their health care
were identified … experience harm in the course of
their clinical care has implications for the harmed patients and … experience harm as being fully integrated with the organization’s patient safety
efforts (as opposed … Associations Between Organizational
Communication and Patients' Experience of Prolonged Emotional Impact … Programs for responding after patients experience harm in the course of their health care were identified
-
effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_slides-2011.pdf
January 01, 2011 - The AHRQ panel consisted of patients and consumers who have had the
experience of representing the … Patient and consumer representatives include patients,
patient advocates, community advocacy group … It is helpful if they have prior
experience that has brought them in contact with other patients, as … Not only does this allow for a greater representation of the patient experience and
perspective, it … have the
opportunity to evaluate their experience.
-
effectivehealthcare-admin.ahrq.gov/products/systematic-review-updates/research
November 01, 2017 - EHC
The Evidence-based Practice Centers
The Scientific Resource Center
Registry of Patient … Surveillance and Identification of Signals for Updating Systematic Reviews: Implementation and Early Experience … Surveillance and Identification of Signals for Updating Systematic Reviews: Implementation and Early Experience … Repository
White Paper
May 31, 2024
Making Healthcare Safer IV: Summary of Findings on Patient … White Paper
Jul 27, 2023
Making Healthcare Safer IV: Final Report on Prioritization of Patient
-
effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/key-informant-interviews-research.pdf
December 19, 2017 - Why don’t we ask him what his experience was like?’ … This
experience was in sharp contrast to their experience in similar discussion groups sponsored by … participating in the group stakeholder discussion can be an intimidating experience
for patients/patient … Patients will talk about their own personal experience with the
disease/condition, whereas patient advocates … involvement and improve the
experience of patients in these systematic reviews.
-
effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/patient-centered-medical-home_executive.pdf
July 01, 2012 - the variety of health care needs
of patients and to improve patient and staff
experiences, outcomes … the practice;
for example, studies restricted to
patients with diabetes or asthma. … Coordination of care (as perceived by patients)
c. Patient-provider interaction
2. … For staff experience, the evidence was less
robust but suggests benefit. … Organizing care for
patients with chronic illness. Milbank Q. 1996;74(4):511-44.
-
effectivehealthcare-admin.ahrq.gov/products/palliative-care-tools/research-protocol
January 01, 2021 - the individual patient level. … and caregiver experience, only 50% of trials had statistically significantly positive findings. … experience/satisfaction, comprehensive assessment). … reviews, ranging from patient- and caregiver-reported outcomes to quality indicators and patient experience … Measuring Experience With End-of-Life Care: A Systematic Literature Review.
-
effectivehealthcare-admin.ahrq.gov/products/aces-2010/white-paper-2010-1
July 01, 2019 - Scott is a graduate of Bowling Green State University and has over 20 years of experience designing, … Fleisher has over 25 years of experience in the fields of cancer control, health communications, program … As such, he focuses on all aspects of the Sermo user experience. … with the development and implementation of many Sermo product offerings, including Sermo Panels and client … He has a particular interest in insuring that the physician-client interactions that Sermo facilitates
-
effectivehealthcare-admin.ahrq.gov/products/palliative-care-tools/technical-brief-2017
January 01, 2021 - To (1) provide an overview of palliative care assessment tools designed to be completed by or with patients … Methods
First, we engaged Key Informants representing both patient/caregiver and provider/researcher … experience). … experience. … experience subdomain.
-
effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/cer-269-respectful-maternity-care-disposition-comments.pdf
January 02, 2024 - Psychometric validation of a patient-reported experience measure of obstetric racism©
(The PREM-OB Scale … This review focuses on patient experience
measures for care; however, patient experience is a function … By framing the definition of respectful maternity care in terms of patient
experience, without holding … levels, centered
around the
patient experience. … "Psychometric validation of a
patient-reported experience measure of obstetric racism© (The PREM-OB
-
effectivehealthcare-admin.ahrq.gov/products/dyspnea/research
January 01, 2019 - as respiratory distress for non-ventilated patients or patient-ventilator dysynchrony for ventilated … for routine patient care. … However, not all patients who experience dyspnea are able to reliably self-report because of impairments … assessing and characterizing the patient experience of dyspnea at clinical interactions. … experience of dyspnea and be repeated to aid management.
-
effectivehealthcare-admin.ahrq.gov/sites/default/files/thompson_eccs2012.pdf
January 01, 2012 - consistent
with his or her preference and values
Slide 3: Informed Decision Making (2 of 2)
• Patients … • The clinical encounter is now influenced by a patient who may be armed with
information. … Slide 19: Personal Experience and Health Decisions
• Individuals reflect on their experience in terms … harms as well as benefits.
• Prepare health
professionals
to
listen
to
and discuss patient … • What is the right balance of consumer-‐targeted health information and
physician/patient
discussion
-
effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/dyspnea_research.pdf
April 01, 2010 - as respiratory distress for non-ventilated patients or patient-ventilator dysynchrony
for ventilated … for routine patient care. … However, not all patients who experience dyspnea are able to reliably self-report because of
impairments … assessing and characterizing the patient experience of dyspnea at clinical interactions. … experience of dyspnea and be repeated to aid management.
-
effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/palliative-care-tools_research-protocol.pdf
April 14, 2016 - at the individual patient level. … experience/satisfaction, comprehensive assessment).
1. … reviews, ranging from
patient- and caregiver-reported outcomes to quality indicators and patient experience … Measuring Experience With End-of-Life Care: A
Systematic Literature Review. … experience/satisfaction, comprehensive assessment)
VI.
-
effectivehealthcare-admin.ahrq.gov/products/inguinal-hernia/research
December 01, 2019 - review the evidence to inform key decisions in the management of inguinal hernia in adults and pediatric patients … laparoscopic approach is used; which type of mesh to use; which mesh fixation method (if any) to use; how experience … trials (RCTs), 2 were registries, and 26 had other designs (included only for the laparoscopic surgical experience … Many studies reported that surgical experience lowers the risk of recurrence after laparoscopic repair … Conclusions
Patients, families, and providers can use this evidence review to improve decisionmaking
-
effectivehealthcare-admin.ahrq.gov/products/key-informant-interviews/research
January 01, 2019 - One place where patients, caregivers, and patient advocates are used extensively is as Key Informants … advocates who participated as Key Informants in prior systematic reviews regarded that experience and … review, (2) adequately prepare patients/patient advocates to participate in the review by explaining … , and (6) keep patients/patient advocates engaged after the group stakeholder discussion by providing … To maximize patients/patient advocates’ participation, the utility and value of their contributions,