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1. Measuring Patient Experience of Patient-Centered Clinical Decision Support | CDSiC
   cdsic.ahrq.gov/cdsic/measuring-patient-experience
   September 09, 2025 - Experience of Patient-Centered Clinical Decision Support September 9, 2025 This report … experience with PC CDS and provides a bank of 41 patient-informed survey questions that can support … About the Report     The report highlights several patient experience domains relevant to PC CDS, which … Twelve questions probe cross-cutting outcomes of PC CDS as it relates to patient experience.  … Measuring Patient Experience of Patient-Centered Clinical Decision Support.

2. Measuring Patient Experience of Patient-Centered Clinical Decision Support (pdf file)
   cdsic.ahrq.gov/sites/default/files/2025-09/Final%20508_Measuring%20Patient%20Experience%20of%20PC%20CDS_0.pdf
   January 01, 2025 - Information on patient experience was abstracted and synthesized using patient experience domains defined … Patient Experience Domains Below, we describe findings organized by patient experience domain in order … They noted that patient experience with PC CDS self-management support tools may vary given patients … Echoing feedback on the SDM patient experience domain, multiple key informants noted that patients may … Findings: Patient Experience Domains 3.1. Patient Experience Domains 3.1.1.

3. Outcomes and Objectives Workgroup: Patient-Focused Outcome Measures for Patient-Centered CDS (pdf file)
   cdsic.ahrq.gov/sites/default/files/2023-10/Final%20OO%20Patient%20Outcomes%20of%20PC%20CDS%20to%20AHRQ%2010.6.23.pdf
   January 01, 2023 - patients’ lived experience of, and satisfaction with, receiving decision support-assisted care. … outcomes (i.e., patient experience and other patient-reported outcomes). … Experience Survey captures patient satisfaction with emotional support: asking patients to rate the … Measures of Patient Experience. … Routine measurement of patient experience.

4. Patient Preferences Are Essential to Bringing the Patient Into Focus (pdf file)
   cdsic.ahrq.gov/sites/default/files/2024-09/CDSiC%20Infographic%202024_508_0.pdf
   January 01, 2024 - Providing care that respects what patients want makes it easier for them to actively participate and … Recognizing patients’ needs and desires and adjusting healthcare decision making to address these preferences … can greatly enhance patient care, experience, and outcomes. … Access and care experience This domain encompasses preferences around the range of interactions a patient … experience.

5. Outcomes and Objectives Workgroup: Patient-Focused Outcome Measures for Patient-Centered Clinical Decision Support | CDSiC
   cdsic.ahrq.gov/cdsic/patientfocusedmeasures
   September 01, 2023 - to patient engagement, experience, and patient-reported outcomes. … healthcare, including interactions and engagement with providers and systems, as well as the patient’s experience … Decision Making Engagement Care Experience The subdomains for patient-reported health outcomes … requires accounting for the effects of PC CDS on patients’ lived experiences of their health journeys … and health outcomes important to patients.

6. Patient Prioritization of Measurement Areas for Patient-Centered Clinical Decision Support (pdf file)
   cdsic.ahrq.gov/sites/default/files/2024-07/Final%20MO%20Patient%20Prioritization%20of%20Measurement%20Areas%207.18.24.pdf
   January 01, 2024 - to Information Patient Care 3 Knowledge Patient Engagement 4 Shared Decision Making Experience … in making health care decisions, improve engagement, and ultimately improve the patient care experience … https://www.ahrq.gov/cahps/about-cahps/patient-experience/index.html 7 2. … experience, knowledge within patient engagement, and decision quality and shared decision making experience … to Information Patient Care 3 Knowledge Patient Engagement 4 Shared Decision Making Experience

7. Infographic: Patient Preferences Are Essential to Bringing the Patient Into Focus | CDSiC
   cdsic.ahrq.gov/cdsic/patient-preferences-infographic
   September 20, 2024 - CDSiC main menu About About CDSiC Centers CDSiC & Me Patients … September 20, 2024 Providing care that respects what patients want makes it easier … Recognizing patients’ needs and desires, and adjusting healthcare decision making to address these preferences … , can enhance patient care, experience, and outcomes. … CDS: •    Personal characteristics •    Healthcare services •    Communication •    Access and care experience

8. Incorporating Patient Preferences in Patient-Centered Clinical Decision Support (pdf file)
   cdsic.ahrq.gov/sites/default/files/2025-06/TPC%20Topic%20Highlight%20Patient%20Preferences.pdf
   January 01, 2025 - Patient preferences can support a patient’s care experience and healthcare decision making. … By including patient-centered factors, PC CDS helps patients, caregivers, and care team members make … These views are also known as patient preferences, which provide the basis for how patients wish to: … Sharing Administrative Preferences Before a Clinical Visit for a Personalized Care Experience … : Sharing Administrative Preferences Before a Clinical Visit for a Personalized Care Experience Care

9. MO Patient Preference Inventory (xls file)
   cdsic.ahrq.gov/sites/default/files/2025-03/Copy%20of%20Final_MO_Patient%20Preference%20Inventory_6.7.24_508.xlsx
   January 01, 2025 - Patient Experience of Engagement Survey (PEES) 8 The first six items represent outcomes of the six factors … Patient Preferences for Engagement Tool 13-Item Short Form (PPET13) 13 Assesses patient and nurse experience … Journal of Patient Experience, 9, 23743735221113160. https://doi.org/10.1177/23743735221113160 Engagement​ … linkid=870924 Comment: A patient experience survey (asks about what your provider did/didn't do) … linkid=870924 Comment: A patient experience survey (asks about what your provider did/didn't do)

10. Standards and Regulatory Frameworks Workgroup: Advancing Standardized Representations for Patient Preferences to Support Patient-Centered Clinical Decision Support (pdf file)
    cdsic.ahrq.gov/sites/default/files/2025-03/SRF%20Standards%20for%20Patient%20Preferences.pdf
    January 01, 2025 - portal) Access and Care Experience Patient preferences around the range of interactions a patient … There is a SNOMED CT procedure code for “Involving client in decision making,”57 which captures decision … “Goals, preferences, and priorities for care experience”38 • A LOINC code for patient-reported “Goals … Patient preferences for care and experience change over time, as noted by KIIs; therefore, information … Involving client in decision making process (procedure). Accessed June 27, 2023.

11. Trust & Patient-Centeredness Workgroup: An Introductory Handbook for Patient Engagement Throughout the Patient-Centered Clinical Decision Support Lifecycle (pdf file)
    cdsic.ahrq.gov/sites/default/files/2023-10/TPC%20Pat%20Engage%20Handbook%20Final.pdf
    January 01, 2023 - can apply to receive feedback from a diverse group of patient representatives.57 Patient Experience … Resources For Group Concept Mapping Resources Patient Experience and Challenges in Group Concept … Patient Experience Mapping Toolbox. … resources/patient-experience-map https://www.leedsccg.nhs.uk/content/uploads/2015/07/patient-champion-code-of-conduct-V2 … Patient experience and challenges in group concept mapping for clinical research.

12. Patient-Centered CDS for Postpartum Hypertension Monitoring (pdf file)
    cdsic.ahrq.gov/sites/default/files/2023-02/Real%20World%20PC%20CDS_Patient-Centered%20CDS%20for%20Postpartum%20Hypertension%20Monitoring_508_Jan26.pdf
    January 01, 2023 - Patient-Centered CDS for Postpartum Hypertension Monitoring Patient-Centered CDS for Postpartum … information directly from patients and provide guidance back to them. … week monitoring interval, Brittany’s blood pressures remained in the normal range, and she did not experience … Brittany came away from the experience with a new appreciation for the importance of continued blood … David Lobach captures a hypothetical patient scenario based on a proof-of-concept patient- centered

13. Trust and Patient-centeredness: Workgroup Charter (pdf file)
    cdsic.ahrq.gov/sites/default/files/2024-02/Final%20TPC%20Workgroup%20Charter%20to%20AHRQ%2012.5.23.pdf
    January 01, 2024 - Trust and Patient-centeredness: Workgroup Charter Trust and Patient-Centeredness: Final Workgroup … health, patient care experience, and provider experience. … will leverage the knowledge and experience of CDS experts and amplify the voice of patients to ensure … The Workgroup will include up to 15 members who identify as patients, patient advocates, researchers … • Advances evidence-based decision making anchored in patient-centered and patient-specific information

14. FINAL WORKGROUP CHARTER: TRUST AND PATIENT-CENTEREDNES (pdf file)
    cdsic.ahrq.gov/sites/default/files/2023-01/Final%20Workgroup%20Charter_Trust%20and%20Patient-Centeredness_Personnel%20Update_Jan26.pdf
    January 01, 2023 - clinical decision support (PC CDS) to improve health outcomes of all patients by creating a proving … health, patient care experience, and provider experience. … will leverage the knowledge and experience of CDS experts and amplify the voice of patients to ensure … the patient-clinician relationship. … The Workgroup will include up to 15 members who identify as patients, patient advocates, researchers

15. Measurement and Outcomes Workgroup: Considerations for Minimizing Respondent Burden in Collecting Data for Patient-Centered Clinical Decision Support (pdf file)
    cdsic.ahrq.gov/sites/default/files/2025-09/For%20508%20Approval_MO%20Level%203%20Respondent%20Burden%20Report%208.21.25.pdf
    January 01, 2025 - Patients may experience burden if the benefits from providing data or the value of the time and effort … Patients may experience response burden when data shared during clinical encounters are not used to … Patients may experience burden if they find providing data for PC CDS to be distracting, time-consuming … Patients may experience cognitive or emotional burden if they are concerned about how their data will … reported that technical barriers led them to stop using the app.24,30 Patients can also experience

16. Trust and Patient-Centeredness Workgroup: Patient and Caregiver Perspectives on Generative Artificial Intelligence in Patient-Centered Clinical Decision Support (pdf file)
    cdsic.ahrq.gov/sites/default/files/2024-07/OY1_FINAL%20TPC%20Patient%20Perspectives%20Generative%20AI.pdf
    January 01, 2024 - Experience Jodyn Platt, PhD, MPH University of Michigan Joshua Richardson, PhD, MS, MLIS, FAMIA … , especially for individuals with less experience using technology or limited digital health literacy … For example, one participant shared an experience of receiving inaccurate answers to a simple medical … For example, one participant described an experience with discovering that the evidence used to inform … Participants agreed that the utilization of tools to enhance the patient experience and mutually benefit

17. How To: Collaborate with Patients on Patient-Centered Clinical Decision Support (pdf file)
    cdsic.ahrq.gov/sites/default/files/2025-09/Collaborate%20with%20Patients%20How%20To%20Guide_Final%208.27.25.pdf
    January 01, 2025 - How To: Collaborate with Patients on Patient-Centered Clinical Decision Support PAGE | 1 AHRQ … HOW TO: COLLABORATE WITH PATIENTS ON PATIENT-CENTERED CLINICAL DECISION SUPPORT Featuring Products … lifeflows—the sequence of events and activities that patients experience throughout their healthcare … Patients, caregivers, and patient advocates can use the framework to advocate for meaningful engagement … HOW TO: COLLABORATE WITH PATIENTS ON PATIENT-CENTERED CLINICAL DECISION SUPPORT Contents OVERVIEW

18. Incorporating Patient Preferences in Patient-Centered Clinical Decision Support  | CDSiC
    cdsic.ahrq.gov/cdsic/patient-preferences-topic-highlight
    June 25, 2025 - CDSiC main menu About About CDSiC Centers CDSiC & Me Patients … can support a patient’s care experience and healthcare decision making. … It shows how, by including patient-centered factors, PC CDS can help patients, caregivers, and care team … Workflows    How To Use This Topic Highlight  Patients and caregivers can use this resource to learn … with collecting patient preferences to ensure shared decision making between patients and clinicians

19. Measurement and Outcomes Workgroup: Patient Prioritization of Measurement Areas for Patient-Centered Clinical Decision Support | CDSiC
    cdsic.ahrq.gov/cdsic/patient-prioritization-measurement-areas
    July 24, 2024 - aims to identify what measurement areas within the patient health journey are important to patients … journey are essential to patients when assessing PC CDS, and why.  … which measurement areas are most important to patients.  … Patients prioritized 15 patient health journey measurement areas related to patients’ lived experiences … across three domains: patient decision making, patient engagement, and patient care experience. 

20. Trust and Patient-Centeredness Workgroup | CDSiC
    cdsic.ahrq.gov/cdsic/cdsic-stakeholder-community-outreach-center/trust-patient-centeredness
    January 02, 2025 - among patients, providers, and other members of the care team to enable patient-centered decision making … For PC CDS to effectively support patients, caregivers, and care teams in making decisions, it must be … and clinicians and supports shared decision making between patients and their care teams. … Conducting focus groups involving patients and caregivers to understand their perceptions of the use … Decision Support  Patient preferences can support a patient’s care experience and healthcare decision