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effectivehealthcare.ahrq.gov/sites/default/files/roblin.pdf
January 01, 2010 - Interactions can be between patients and peers
Slide 4: Web 2.0 Framework
• Technology-‐mediated social participation … • Social dimension(s) that define participation
o Common interests or goals
o “Connectedness”
… as
a motivator
for
participation
o Interactions intended to “add value” to participants
• … Infrastructure (technology) to enable and mobilize participation
o Technology defines
the dimensions
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effectivehealthcare.ahrq.gov/sites/default/files/facilitation-webcast-slides.pptx
June 13, 2013 - : Information giving so that participants understand processes
Consultation participation: obtain and … consider opinions, tell participants how their views will be heard
Functional participation: the participants … : Participation is seen as a ‘right.’ … stake in the issues, they provide multiple perspectives, they are in learning mode
Self-mobilization participation … Consultation
Functional P
Interactive P
Self-mobilization
Broaden participation
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effectivehealthcare.ahrq.gov/sites/default/files/pdf/registry-of-patient-registries-development_research_0.pdf
February 01, 2012 - Potential participation ‘incentives’ could range from purely voluntary to truly
mandatory. … Voluntary participation alone, however, may not be effective, as seen with DoCDAT. … of journal publication
would be helpful in incentivizing participation. … Clinicaltrials.gov did not see significant participation until U.S. … law and ICMJE policies mandated participation.
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_white-paper.pdf
September 01, 2013 - Collected data from each registry may be combined for analysis, although participation in a
research … Recruitment, encouragement, and gratitude for participation. … • Higher participation rates. … While high participation rates are not inherent in stand-alone
registries, and several PPRs that live … The Gift of Participation: A Guide
to Making Informed Decisions About
Volunteering for a Clinical
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/deliberative-methods_presentation-2013.pdf
January 01, 2013 - Online tools can help:
4
Enable participation by a large, geographically … States Patent and Trademark Office (or USPTO), which opens the patent examination process
to public participation … The Open Government Initiative used the online tool IdeaScale to promote public
participation in government … Similarly, the
petition tool (We The People) at Whitehouse.gov promotes public participation in Government
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effectivehealthcare.ahrq.gov/sites/default/files/delilberative-methods-design-abelson.pdf
May 29, 2025 - adequate opportunity for small-group deliberation (6-12 people) to take
place to support full and fair participation
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effectivehealthcare.ahrq.gov/sites/default/files/module_iv1.ppt
May 29, 2025 - *
Skills for Successful Engagement (cont’)
Ability to balance participation of stakeholders with … the involvement of others), preparation materials, and whether incentives may be needed to encourage participation … Finally, in order to allow the broadest participation possible, investigators should explore forums, … Leadership and Development Division of the American Society for Quality, The Association for Quality and Participation … Leadership and Development Division of the American Society for Quality, The Association for Quality and Participation
-
effectivehealthcare.ahrq.gov/sites/default/files/cf_deliberativemethodswebinar_desigingdeliberativeforum.pdf
May 29, 2025 - adequate opportunity for small-group
deliberation (6-12 people) to take place to support
full and fair participation
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/sleep-apnea-diagnosis-future_research.pdf
February 01, 2012 - Stakeholder participation in the online discussion board was low. … However, we encountered low participation rate of
stakeholders during most stages of the project. … Despite extending the discussion period, low participation rates persisted. … To increase
participation, we sent several email reminders to stakeholders. … We subsequently telephoned remaining
stakeholders, which increased total participation.
-
effectivehealthcare.ahrq.gov/sites/default/files/goldstrom.pdf
May 29, 2025 - helps not only with data quality, but it also helps with the recruitment
and retention of people’s participation … We profit by their participation and their voice and
learning directly from them, what they find to
-
effectivehealthcare.ahrq.gov/sites/default/files/module-iv-skills-for-successful-engagement.pdf
May 29, 2025 - Slide 8
Skills for Successful Engagement (cont’)
§ Ability to balance participation of stakeholders … the involvement of others), preparation materials, and whether incentives may be
needed to encourage participation … Finally, in order to allow the broadest participation possible, investigators should explore
forums, … Leadership and Development
Division of the American Society for Quality, The Association for Quality and Participation … Leadership and Development Division of the American Society for Quality, The
Association for Quality and Participation
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/cancer-decision-support-tools_research-protocol.pdf
November 12, 2013 - Information and patient participation in
screening for prostate cancer. … Health expectations : an international journal of public participation in health care and
health policy … (decision*[ti] or
choice*[ti]) and (making*[ti] or support*[ti] or behaviour*[ti])))) AND (patient participation … [mh] or
patient participation*[tiab] or consumer participation*[tiab] or patient involvement*[tiab] … [mh] or patient participation*[tiab] or consumer
participation*[tiab] or patient involvement*[tiab]
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_research-2012.pdf
January 01, 2012 - Consider maximizing patient and consumer participation by:
Including more than one patient … (For example,
participants may have full-time jobs or family responsibilities that limit participation … Will incentives be offered or necessary for adequate participation (e.g. child care, gift
cards, stipends … It may be necessary to provide
additional, or diverse, avenues for involvement to encourage participation … The goal of the facilitator is to stay on track and
balance participation (process) with meeting results
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effectivehealthcare.ahrq.gov/sites/default/files/braddock.pdf
January 01, 2011 - Ethically valid consent
is a process of shared decision making based upon
mutual respect and participation … :
o Greater knowledge
o More accurate risk perceptions
o Reduced decisional conflict
o Greater participation
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/traumatic-brain-injury-rehabilitation_executive.pdf
June 01, 2012 - Rehabilitation programs strive to maximize
functioning and participation according to each
individual … We emphasize selected patient-centered participation
outcomes of productivity and community integration … The evidence indicated
that participation in ICRP versus standard rehabilitation
achieved equivalent … The outcomes selected for this review reflect current views
on the importance of social participation … Participation as an outcome of traumatic brain injury
rehabilitation.
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effectivehealthcare.ahrq.gov/sites/default/files/pdf/registries-forums_research_0.pdf
May 01, 2014 - “Slide: Levels of participation.” http://wenger-
trayner.com/resources/slide-forms-of-participation. … Do not include information on participation history in the directory. … reorganized in 2007 and topic generation became more
member-driven that participation grew. … Anonymous participation
should not be permitted. … “Slide: Levels of participation.”
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effectivehealthcare.ahrq.gov/sites/default/files/module_ii1.ppt
June 01, 2011 - Recognize expertise
Address time commitment and scheduling issues
Recognize additional challenges to participation … Patients & consumers can be identified for participation using a variety of venues and approaches, including … Investigators may need to allow for and address issues related to the time providers’ participation may … Clinicians can be identified for participation using a variety of venues and approaches, including: … Policymakers can be identified for participation using a variety of venues and approaches, including:
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effectivehealthcare.ahrq.gov/sites/default/files/deliberative-methods-facilitation-transcript.pdf
May 29, 2025 - It builds on the involvement model participation from Sherry Ornstein. … So how do you recognize passive participation, as opposed to functional
participation, as opposed to … interactive participation? … At this point in participation what we’re seeking to do is to broaden
participation, so the last one … So here we are at interactive participation.
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/sleep-apnea-treatment-future_research.pdf
February 01, 2012 - Stakeholder participation in the online discussion board was low. … However, we encountered low
participation rate of stakeholders during most stages of the project. … Despite the extension of the discussion period, low participation rates persisted. … To increase
participation, we sent several email reminders to stakeholders. … We subsequently telephoned remaining
stakeholders, which increased total participation.
-
effectivehealthcare.ahrq.gov/sites/default/files/epc-disclosure-policy-form.pdf
March 01, 2023 - If individuals develop
any new relationships during the duration of their participation in the report … The Lead Investigator should provide justification to AHRQ for
participation for inclusion of individuals … If individuals develop any new relationships during the duration of their participation in the report … If individuals develop any new relationships during the duration of their participation in the report … The Lead Investigator should provide justification to AHRQ for participation for inclusion of individuals