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effectivehealthcare-admin.ahrq.gov/products/registry-of-patient-registries-development/research
March 01, 2022 - Potential participation 'incentives' could range from purely voluntary to truly mandatory. … Voluntary participation alone, however, may not be effective, as seen with DoCDAT. … of journal publication would be helpful in incentivizing participation. … Clinicaltrials.gov did not see significant participation until U.S. law and ICMJE policies mandated participation … Inclusion/exclusion criteria for patient participation.
Location of the trial.
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effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_research-2012-1.pdf
January 01, 2012 - With increasing recognition of the value
of public participation and of the importance of transparency … In 2009, AHRQ initiated its Community Forum project to expand and
systematize the participation of … in
research, and providing appropriate education for active and engaged participation. … Gaining the trust of stakeholders prior to their
participation can assist in their recruitment. … International Association for Public Participation. (2007). Spectrum of public participation.
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effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/traumatic-brain-injury-rehabilitation-future_research.pdf
January 01, 2013 - The primary outcome
of interest was participation in community life as indicated by productivity or … Outcomes Participation; quality of life Participation; quality of life Participation; quality of life … Outcomes Participation; quality of life Participation; quality of life Participation; quality of life … This could explain the limited availability and interest in
participation. … The intervention targets an array of
impairments that are obstacles to life role participation.
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effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/deliberative-methods_presentation-2011.pdf
January 01, 2011 - applications of deliberative methods
Two examples from the literature
─ Surrogate consent for research participation … Community Forum Community Forum
19
Issue: Can family members provide surrogate consent for
research participation … Aging
Goal of deliberation:
─ Assess how participants view surrogate consent for research
participation
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effectivehealthcare-admin.ahrq.gov/sites/default/files/s29.pdf
October 01, 2007 - Impact on public relations Plan participation might be viewed negatively by the public; impact could … Participation could also affect pharmacy rates and price negotiations, including
rebates or contracts … Burden Would participation involve additional paperwork, administrative effort and or physician effort … Provide full information; transparency about the study and the plan’s
participation. … Many would support
participation in a CRT, if the study were appropriately framed,
designed, sponsored
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effectivehealthcare-admin.ahrq.gov/products/traumatic-brain-injury-rehabilitation/research
January 01, 2020 - RCTs) and prospective cohort studies to describe intervention characteristics and evaluate evidence on participation … Our primary outcomes included measures of participation in employment, school, or training and select
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effectivehealthcare-admin.ahrq.gov/sites/default/files/roblin.pdf
January 01, 2010 - Interactions can be between patients and peers
Slide 4: Web 2.0 Framework
• Technology-‐mediated social participation … • Social dimension(s) that define participation
o Common interests or goals
o “Connectedness”
… as
a motivator
for
participation
o Interactions intended to “add value” to participants
• … Infrastructure (technology) to enable and mobilize participation
o Technology defines
the dimensions
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effectivehealthcare-admin.ahrq.gov/sites/default/files/facilitation-webcast-slides.pptx
June 13, 2013 - : Information giving so that participants understand processes
Consultation participation: obtain and … consider opinions, tell participants how their views will be heard
Functional participation: the participants … : Participation is seen as a ‘right.’ … stake in the issues, they provide multiple perspectives, they are in learning mode
Self-mobilization participation … Consultation
Functional P
Interactive P
Self-mobilization
Broaden participation
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effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/registry-of-patient-registries-development_research_0.pdf
February 01, 2012 - Potential participation ‘incentives’ could range from purely voluntary to truly
mandatory. … Voluntary participation alone, however, may not be effective, as seen with DoCDAT. … of journal publication
would be helpful in incentivizing participation. … Clinicaltrials.gov did not see significant participation until U.S. … law and ICMJE policies mandated participation.
-
effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/deliberative-methods_presentation-2013.pdf
January 01, 2013 - Online tools can help:
4
Enable participation by a large, geographically … States Patent and Trademark Office (or USPTO), which opens the patent examination process
to public participation … The Open Government Initiative used the online tool IdeaScale to promote public
participation in government … Similarly, the
petition tool (We The People) at Whitehouse.gov promotes public participation in Government
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effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_white-paper.pdf
September 01, 2013 - Collected data from each registry may be combined for analysis, although participation in a
research … Recruitment, encouragement, and gratitude for participation. … • Higher participation rates. … While high participation rates are not inherent in stand-alone
registries, and several PPRs that live … The Gift of Participation: A Guide
to Making Informed Decisions About
Volunteering for a Clinical
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effectivehealthcare-admin.ahrq.gov/sites/default/files/communicating_risk_vulnerable_populations_kreps.ppt
September 05, 2006 - Diverse Audiences
Evidence-based health communication
Culturally sensitive communication
Community participation
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effectivehealthcare-admin.ahrq.gov/products/cancer-decision-support-tools/research-protocol
December 01, 2019 - measured quality of health care consumer-provider communication
Perceived and objectively measured participation … Information and patient participation in screening for prostate cancer. … Health expectations : an international journal of public participation in health care and health policy … [mh] or patient participation*[tiab] or consumer participation*[tiab] or patient involvement*[tiab] or … [mh] or patient participation*[tiab] or consumer participation*[tiab] or patient involvement*[tiab] or
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effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/sleep-apnea-diagnosis-future_research.pdf
February 01, 2012 - Stakeholder participation in the online discussion board was low. … However, we encountered low participation rate of
stakeholders during most stages of the project. … Despite extending the discussion period, low participation rates persisted. … To increase
participation, we sent several email reminders to stakeholders. … We subsequently telephoned remaining
stakeholders, which increased total participation.
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effectivehealthcare-admin.ahrq.gov/sites/default/files/delilberative-methods-design-abelson.pdf
January 11, 2017 - adequate opportunity for small-group deliberation (6-12 people) to take
place to support full and fair participation
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effectivehealthcare-admin.ahrq.gov/sites/default/files/braddock.pdf
January 01, 2011 - Ethically valid consent
is a process of shared decision making based upon
mutual respect and participation … :
o Greater knowledge
o More accurate risk perceptions
o Reduced decisional conflict
o Greater participation
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effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_research-2012.pdf
January 01, 2012 - Consider maximizing patient and consumer participation by:
Including more than one patient … (For example,
participants may have full-time jobs or family responsibilities that limit participation … Will incentives be offered or necessary for adequate participation (e.g. child care, gift
cards, stipends … It may be necessary to provide
additional, or diverse, avenues for involvement to encourage participation … The goal of the facilitator is to stay on track and
balance participation (process) with meeting results
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effectivehealthcare-admin.ahrq.gov/products/deliberative-methods/research-2013-1
January 01, 2019 - , active participation, opportunity for adequate discussion, respect for the opinions of others, and … Prior to their participation, all participants received the Preparing for the Community Forum booklet … High ratings of the factor perceived value of the event showed that participants valued their participation … Of note, participants’ ratings for the factor equal participation in the discussion were relatively low … Despite the fact that participants did not judge participation to be equal, it did not appear to affect
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effectivehealthcare-admin.ahrq.gov/sites/default/files/cf_deliberativemethodswebinar_desigingdeliberativeforum.pdf
May 18, 2012 - adequate opportunity for small-group
deliberation (6-12 people) to take place to support
full and fair participation
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effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/cancer-decision-support-tools_research-protocol.pdf
November 12, 2013 - Information and patient participation in
screening for prostate cancer. … Health expectations : an international journal of public participation in health care and
health policy … (decision*[ti] or
choice*[ti]) and (making*[ti] or support*[ti] or behaviour*[ti])))) AND (patient participation … [mh] or
patient participation*[tiab] or consumer participation*[tiab] or patient involvement*[tiab] … [mh] or patient participation*[tiab] or consumer
participation*[tiab] or patient involvement*[tiab]