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  1. Meeting Summary (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_slides-2011.pdf
    January 01, 2011 - However, if the representative is being asked to participate in formal efforts to prioritize AHRQ … responsible for checking in with them to ensure they have the information they need to effectively participate … can reduce the burden of taking time off from paid employment or other responsibilities in order to participate … Panelists emphasized that patient and consumer representatives who participate in research desire ongoing … for patient/consumer representatives to voice their thoughts and allow them time to comment and participate
  2. Hunt_Panel_3 (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/hunt_panel_3.pdf
    January 01, 2010 - attacks and  unsupportive comments by nonsmokers • You  can’t control the conversation, but you can participate
  3. effectivehealthcare.ahrq.gov/sites/default/files/related_files/app-e-opioid-chronic-pain-surveillance-report-3.xlsx
    January 01, 2021 - Were Enrollment Rates Similar in Cases and Controls Invited To Participate?
  4. effectivehealthcare.ahrq.gov/sites/default/files/related_files/hnhc-evidence-summary.pdf
    October 01, 2021 - services, chronic disease(s), nonmedical barriers to care, clinician judgment, and willingness to participate … medical and nonmedical needs, emotional support, and self-management education empower patients to participate
  5. Llewellyn-Thomas (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/llewellyn-thomas.pdf
    January 01, 2011 - elicitation for patients who: o Have not already formed a strong prior informed preference; o Wish to participate … • Not imposed if pt. does not wish to participate, or if sorting out unclear attitudes would be distressing … • Challenge 1 Assess pt.’s readiness to  participate.
  6. effectivehealthcare.ahrq.gov/sites/default/files/related_files/updating-framework-disposition-comments.pdf
    July 11, 2025 - Comments to Draft Report The Effective Health Care (EHC) Program encourages the public to participate
  7. Slide 1 (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/cf__deliberativemethodswebinar_deliberativemethodsexperiment.pdf
    June 01, 2012 - using evidence in healthcare decision- making; boundaries around the use of evidence Motivation to participate
  8. effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/white-paper-outcome-measure-harmonization-depression.pdf
    November 01, 2020 - To participate in this project, the PRIME Registry recruited 10 pilot sites from existing registry sites … extended the invitation to all sites participating in the PRIME Registry and obtained commitments to participate … from 10 registry sites (note, due to the COVID-19 public health emergency, some sites were unable to participate … To participate in this project, PsychPRO recruited 10 pilot sites from existing registry sites, added … eligible sites, invited them using an email invitation, and obtained commitments from 10 sites to participate
  9. effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_research-2012-1.pdf
    January 01, 2012 - These approaches provide the potential for many more individuals to participate in guiding the work … process where stakeholders can contribute, how organizations prepare stakeholders to meaningfully participate … peer-reviewed literature, grey literature, and Web sites imply that stakeholders are motivated to participate … An INVOLVE report describes motivations of consumers who participate in research from both the researcher … Once identified, stakeholders were asked to participate in preparatory focus groups and interviews
  10. TND-485-09-03-2013 (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/pdf/TND-485-09-03-2013.pdf
    January 01, 2013 - Decision Aid Standards (IPDAS) Collaboration: “Patient decision aids are tools designed to help people participate
  11. effectivehealthcare.ahrq.gov/sites/default/files/pdf/cesarean-birth-future_research.pdf
    August 09, 2012 - We invited 11 stakeholders to participate in the phase 2 Delphi process. … those 16 agreed to participate. … We invited 11 stakeholders to participate in the phase 2 Delphi process. … We invited 11 stakeholders to participate in the phase 2 Delphi process. … I sincerely hope you will be able to participate in this important work.
  12. effectivehealthcare.ahrq.gov/sites/default/files/related_files/cer-234-headaches-pregnancy-revised-comments.pdf
    November 12, 2020 - The Effective Health Care (EHC) Program encourages the public to participate in the development of its
  13. effectivehealthcare.ahrq.gov/sites/default/files/related_files/cer-253-maternal-child-outcomes-wic-executive-summary.pdf
    April 01, 2022 - • Key Question 1: Among women who are eligible to participate in WIC, how is WIC participation during … • Key Question 2: Among infants and children eligible to participate in WIC, how is WIC participation
  14. effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_white-paper.pdf
    September 01, 2013 - Patients are often encouraged by support and advocacy organizations to participate in research, particularly … Only about 6 percent of patients with a severe disease participate in clinical trials.1 Patients may … and outline the considerations for patient advocacy and support organizations wishing to create or participate … Patients and/or family members are more likely to participate in the registry when they are able to … How disease advocacy organizations participate in clinical research: A survey of genetic organizations
  15. effectivehealthcare.ahrq.gov/sites/default/files/epc-disclosure-policy-form.pdf
    March 01, 2023 - The TEP members may not participate directly in writing or editing any portion of the draft or final … credibility of the EPC program, AHRQ reserves the right to require that an individual with a COI not participate … The TEP members may not participate directly in writing or editing any portion of the draft or final … The TEP members may not participate directly in writing or editing any portion of the draft or final … credibility of the EPC program, AHRQ reserves the right to require that an individual with a COI not participate
  16. effectivehealthcare.ahrq.gov/sites/default/files/pdf/asthma-treatment-future_research.pdf
    September 01, 2012 - In total, we invited 22 individuals to participate as stakeholders for this project. … Of the twelve stakeholders invited to participate in one-on-one interviews to help identify evidence … gaps; six agreed to participate. … Three individuals declined our invitation to participate in one-on-one interviews. … Of the additional eight stakeholders we invited to participate in the prioritization exercise, three
  17. effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/white-paper-lung-cancer.pdf
    August 01, 2021 - identified, and registry sponsors, informaticists, and clinical subject matter experts are invited to participate … registries consider collecting information on symptoms, cognitive and physical functioning, ability to participate … to consider in collecting PROs are: Symptoms Functioning (cognitive, physical) Role (ability to participate
  18. effectivehealthcare.ahrq.gov/sites/default/files/related_files/joint-replacement-disposition-comments.pdf
    November 03, 2021 - Comments to Draft Report The Effective Health Care (EHC) Program encourages the public to participate
  19. effectivehealthcare.ahrq.gov/sites/default/files/pdf/epc-evidence-reviews-federal-agencies.pdf
    July 01, 2020 - The Federal agency sponsoring the review may participate in this selection process as well.
  20. effectivehealthcare.ahrq.gov/sites/default/files/module-iv-skills-for-successful-engagement.pdf
    May 29, 2025 - alert & interested in the discussion § (Picture of a scale) Able to ensure all participants equally participate … Traditionally, research institutions have not had difficulty finding technical or professional stakeholders to participate … Since many stakeholders will not be able to participate as part of their job or other official duties

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