Results

Total Results: 2,135 records

Showing results for "participate".

41. Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries and Research Networks (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_white-paper.pdf
    September 01, 2013 - Patients are often encouraged by support and advocacy organizations to participate in research, particularly … Only about 6 percent of patients with a severe disease participate in clinical trials.1 Patients may … and outline the considerations for patient advocacy and support organizations wishing to create or participate … Patients and/or family members are more likely to participate in the registry when they are able to … How disease advocacy organizations participate in clinical research: A survey of genetic organizations

42. Disclosure Policy and Form (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/epc-disclosure-policy-form.pdf
    March 01, 2023 - The TEP members may not participate directly in writing or editing any portion of the draft or final … credibility of the EPC program, AHRQ reserves the right to require that an individual with a COI not participate … The TEP members may not participate directly in writing or editing any portion of the draft or final … The TEP members may not participate directly in writing or editing any portion of the draft or final … credibility of the EPC program, AHRQ reserves the right to require that an individual with a COI not participate

43. Future Research Needs To Reduce the Risk of Primary Breast Cancer in Women | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/breast-cancer-risk-reduction/research
    December 01, 2019 - received, and the report was revised to clarify that no incentives were offered to stakeholders to participate

44. Defining an Optimal Format for Presenting Research Needs | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/methods-future-presentation-format/research
    December 01, 2019 - It is important to justify the selection of the stakeholders who participate in identifying or prioritizing

45. Disposition of Comments_Comparative Effectiveness Review No. 248: Prehabilitation and Rehabilitation for Major Joint Replacement (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/joint-replacement-disposition-comments.pdf
    November 03, 2021 - Comments to Draft Report The Effective Health Care (EHC) Program encourages the public to participate

46. Standardized Library of Lung Cancer Outcome Measures (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/wysiwyg/white-paper-lung-cancer.pdf
    August 01, 2021 - identified, and registry sponsors, informaticists, and clinical subject matter experts are invited to participate … registries consider collecting information on symptoms, cognitive and physical functioning, ability to participate … to consider in collecting PROs are: Symptoms Functioning (cognitive, physical) Role (ability to participate

47. Future Research Needs for the Comparative Effectiveness of Breathing Exercises and/or Retraining Techniques in the Treatment of Asthma (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/asthma-treatment-future_research.pdf
    September 01, 2012 - In total, we invited 22 individuals to participate as stakeholders for this project. … Of the twelve stakeholders invited to participate in one-on-one interviews to help identify evidence … gaps; six agreed to participate. … Three individuals declined our invitation to participate in one-on-one interviews. … Of the additional eight stakeholders we invited to participate in the prioritization exercise, three

48. AHRQ’s Evidence-based Practice Center Program- Synthesizing evidence to improve health care practice and delivery (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/epc-evidence-reviews-federal-agencies.pdf
    July 01, 2020 - The Federal agency sponsoring the review may participate in this selection process as well.

49. Strategies To Prevent Weight Gain in Adults: Future Research Needs | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/weight-gain-future/research
    December 01, 2019 - needs based on gaps identified from a recent systematic review, and then engaged seven stakeholders to participate

50. Developmental Disabilities Issues Exploration Forum: Cerebral Palsy | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/cerebral-palsy-issues/white-paper
    November 01, 2017 - Meeting Materials Forty-one stakeholders were contacted to participate in two teleconferences and one

51. Research White Paper Patient- or Participant-Generated Registries Addendum Registries for Evaluating Patient Outcomes Third Edition (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/wysiwyg/patient-participant-generated-registries-guide-3rd-ed-addendum-white-paper.pdf
    February 01, 2018 - In reality, many individuals who participate in registries, such as those with chronic, lifelong illnesses … characteristics may include some or all of the following: • Founded, owned, and managed by those who participate … Rating Scale (ALSFRS-R),29 a person living with ALS was irritated to find that despite being able to participate … PGRs, patients were concerned about privacy, which was a strong predictor of their willingness to participate … How disease advocacy organizations participate in clinical research: a survey of genetic organizations

52. Pain Management Interventions for Hip Fracture | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/hip-fracture-pain/research
    December 01, 2019 - status, pain medication use, mental status, health-related quality of life, quality of sleep, ability to participate

53. Standardized Library of Depression Outcome Measures | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/library-depression/white-paper
    August 01, 2020 - identified, and registry sponsors, informaticists, and clinical subject matter experts are invited to participate

54. Horizon Scans | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/products/horizon-scan/overview
    December 01, 2019 - AHRQ does not directly participate in horizon scanning or the assessment of leads or topics, nor does

55. Epstein_Respondent_Glasgow 1 (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/interactive_media_epstein_respondent.pdf
    January 01, 2009 - input   on  the  education  and  support  they  need  to  make  decisions  and  participate

56. Comment on Key Questions and Draft Reports | Effective Health Care (EHC) Program
    effectivehealthcare-admin.ahrq.gov/get-involved/draft-comments
    February 01, 2021 - Research Available for Comment The Effective Health Care (EHC) Program encourages the public to participate

57. PREGNANCY, INCLUDING PRETERM BIRTH #12 (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/pregnancy-horizon-scan-high-impact-1412.pdf
    December 01, 2014 - AHRQ did not directly participate in horizon scanning, assessing the leads for topics, or providing … database ECRI Institute maintains of approximately 150 experts nationwide who were invited and agreed to participate

58. #06 Developmental Delays ADHD, and Autism (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/developmental-delays-horizon-scan-high-impact-1506.pdf
    December 01, 2015 - AHRQ did not directly participate in horizon scanning, assessing the leads for topics, or providing … database ECRI Institute maintains of approximately 170 experts nationwide who were invited and agreed to participate

59. Therapies for Children with Autism Spectrum Disorders (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/autism-update_consumer.pdf
    September 01, 2014 - Because of the amount of time involved, you may need to change your family’s schedule or routine to participate … � How much will it cost for us to participate in these programs?

60. #06 Developmental Delays ADHD, and Autism (pdf file)
    effectivehealthcare-admin.ahrq.gov/sites/default/files/developmental-delays-horizon-scan-high-impact-1512.pdf
    December 01, 2015 - AHRQ did not directly participate in horizon scanning, assessing the leads for topics, or providing … database ECRI Institute maintains of approximately 195 experts nationwide who were invited and agreed to participate