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psnet.ahrq.gov/issue/coproduced-family-reporting-intervention-improve-safety-surveillance-and-reduce-disparities
September 06, 2023 - Parents of children with medical complexity (CMC) are experts in their child's needs and can provide … In this pre-post study, English- and Spanish-speaking parents of CMC were asked to report safety concerns … Overall reporting rates did not change with the mobile app, but reporting did increase among parents … Only 15% of parent-reported safety concerns were also reported by staff. … March 2, 2022
Are parents who feel the need to watch over their children's care better
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psnet.ahrq.gov/issue/should-medical-errors-be-disclosed-pediatric-patients-pediatricians-attitudes-toward-error
June 15, 2011 - Nearly all respondents reported the importance of disclosure to parents, but only about half supported … Respondents endorsed collaboration with parents in choosing to disclose errors to children and believed … parents should be present during error disclosure. … Corresponding studies of pediatric patients and parents are needed in order to establish guidelines for … December 18, 2017
Parent preferences for medical error disclosure: a qualitative study
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psnet.ahrq.gov/issue/safe-work-hour-standards-parents-children-medical-complexity
April 24, 2018 - Commentary
Safe work-hour standards for parents of children with medical complexity … Safe Work-Hour Standards for Parents of Children With Medical Complexity. … Parents or caregivers of children with serious medical conditions who reside at home must balance caregiving … Safe Work-Hour Standards for Parents of Children With Medical Complexity.
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digital.ahrq.gov/ahrq-funded-projects/improving-pediatric-cancer-survivorship-care-through-survivorlink/annual-summary/2010
January 01, 2010 - As a result, the patient-parent portal was designed with special attention to security and privacy. … In September 2010, patient and parent recruitment was initiated at the largest clinic via mailings and … A total of 26 users have registered (19 parents and 7 patients) toward the recruitment goal of 500. … In 2011, patient and parent recruitment will begin at the other clinics. Dr. … cancer survivors were incorporated into the development of the parent-patient portal of SurvivorLink.
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www.ahrq.gov/pqmp/implementation-qi/toolkit/child-hcahps/overview.html
July 01, 2021 - The Child Hospital Survey (or Child HCAHPS) asks parents or caregivers to report on both their child’ … Child HCAHPS focuses on aspects of pediatric inpatient care that are important to patients and their parents … , and for which patients and their parents are generally the best source of information. … The survey asks parents and guardians about communication with clinicians such as doctors and nurses, … Results from the Child HCAHPS survey may provide insights for patients, parents, hospitals, health plans
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effectivehealthcare.ahrq.gov/sites/default/files/pdf/methods-report-facilitating-implementation-pilot.pdf
October 01, 2019 - Parent education programs were highlighted by the health system stakeholder multiple times. … Available Data
The EPC report demonstrated that parent training and education programs improved ADHD … From six trials of effectiveness of parent and education program, we chose 3 trials that had
low risk … One parent
stated that the information provided in this parent training program is “desperately needed … The psychologist
also recommended books and other resources on parent training.
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www.ahrq.gov/sites/default/files/wysiwyg/pqmp/measures/availability/chipra-238-fullreport.pdf
October 01, 2019 - (Note, here and elsewhere in this documentation, the word “parent” is
inclusive of all caregivers that … Survey, parent/caregiver report. … The
value of a parent-reported measure is that it offers a comprehensive view of both the need for … The measure was rated as
follows: parent-reported-availability of specialty appointments received a … are asked to consider – 6 months for Medicaid parents compared with 12 months for
commercial parents
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www.ahrq.gov/sites/default/files/wysiwyg/pqmp/measures/outcomes/chipra-146-section-5.pdf
January 01, 2014 - Parents were more likely to name
insurance provider and pharmacy
location. … Parents completed the RTQ-
parent. … Participants included
46 LTR (mean age 16.6 years) and 31
parents. … Recipients and parents reported
moderate concern about transition. … LTR perceive having more independence
than their parents are report.
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psnet.ahrq.gov/issue/family-safety-reporting-medically-complex-children-parent-staff-and-leader-perspectives
July 20, 2022 - Study
Family safety reporting in medically complex children: parent, staff, and leader … Family safety reporting in medically complex children: parent, staff, and leader perspectives. … In this study, parents and caregivers of medically complex children reported uncertainty about whether … buy-in on the value of parent engagement. … June 19, 2019
Are parents who feel the need to watch over their children's care better
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psnet.ahrq.gov/node/45551/psn-pdf
November 30, 2016 - Parents' perspectives on "keeping their children safe" in
the hospital. … Parents' Perspectives on "Keeping Their Children Safe" in
the Hospital. … Investigators uncovered components of hospital culture and
practice that affect parent engagement and … recommend staff training to enhance clinician–parent
partnerships. … /primer/patient-engagement-and-safety
https://psnet.ahrq.gov/issue/parent-perceptions-childrens-hospital-safety-climate
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psnet.ahrq.gov/issue/parent-engagement-perinatal-mortality-reviews-online-survey-clinicians-six-high-income
April 13, 2022 - Study
Parent engagement in perinatal mortality reviews: an online survey of clinicians … Parent engagement in perinatal mortality reviews: an online survey of clinicians from six high‐income … Patients , parents and caregivers play an important role in improving patient safety. … Although parents have expressed interest in engaging in perinatal mortality review processes , this … Parent engagement in perinatal mortality reviews: an online survey of clinicians from six high‐income
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psnet.ahrq.gov/node/61110/psn-pdf
November 11, 2020 - Association between parent comfort with English and
adverse events among hospitalized children. … Association between parent comfort with English and adverse events
among hospitalized children. … Based on a
cohort of 1,666 Arabic-, Chinese-, English-, and Spanish-speaking parents of general pediatric … and
subspeciality patients 17 years and younger, this study examined the association between parents … Compared with children of
parents who expressed comfort or proficiency with English, children of parents
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psnet.ahrq.gov/node/46992/psn-pdf
March 20, 2019 - Views of children, parents, and health-care providers on
pediatric disclosure of medical errors. … Views of children, parents, and health-care providers on pediatric disclosure of medical
errors. … https://psnet.ahrq.gov/issue/views-children-parents-and-health-care-providers-pediatric-disclosure-medical … -
errors
This focus group study examined pediatric patients’, parents’, and health care providers’ … While children and their parents emphasized the importance of error
disclosure, health care providers
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psnet.ahrq.gov/node/74135/psn-pdf
December 01, 2021 - Communication regarding adverse neonatal birth events:
experiences of parents and clinicians. … Communication regarding adverse neonatal birth events: experiences
of parents and clinicians. … https://psnet.ahrq.gov/issue/communication-regarding-adverse-neonatal-birth-events-experiences-parents … This qualitative study identified unique challenges experienced by parents and providers
when communicating … The authors outline strategies recommended by parents and providers to address these challenges.
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psnet.ahrq.gov/node/866733/psn-pdf
September 18, 2024 - issue/coproduced-family-reporting-intervention-improve-safety-surveillance-and-
reduce-disparities
Parents … In this pre-post study, English- and Spanish-speaking parents of CMC were
asked to report safety concerns … Overall reporting rates did not
change with the mobile app, but reporting did increase among parents … Only 15% of parent-reported safety concerns were also reported by staff. … family-safety-reporting-hospitalized-children-medical-complexity
https://psnet.ahrq.gov/issue/family-safety-reporting-medically-complex-children-parent-staff-and-leader-perspectives
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www.ahrq.gov/sites/default/files/wysiwyg/pqmp/measures/availability/chipra-237-fullreport.pdf
October 01, 2019 - The measure uses data on parent
perceptions of specialist availability for Medicaid-enrolled children … (Note, here and elsewhere in
this report, the word “parent” is inclusive of all caregivers that CAHPS … This measure assesses the degree of reporting for this parent-reported rating of the availability of … The measure was rated
as follows: parent-reported availability of specialty appointments received a … had been helped with the survey and, if so, how the parent was helped
(version 5.0: questions 40-41
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digital.ahrq.gov/sites/default/files/docs/citation/r21hs023626-asan-final-report-2017.pdf
January 01, 2017 - look at by
themselves
LCIM helps parents to know what is needed at the moment
Parent felt engaged … parent to ask more educated questions and make more educated decisions
Highly educated parents involve … This provides reassurance to the parent
Parents asks for clarification when she needs to; doing so … LCIM helps parent to manage, but not understand child’s problem. … Parent finds it overwhelming to have a lot of information on the LCIM without no explanation
Parent
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digital.ahrq.gov/ahrq-funded-projects/using-health-information-technology-improve-delivery-hpv-vaccine
January 01, 2023 - The overall objectives of this study were to 1) assess parent preferences for communicating with their … The specific aims of the project were as follows:
Measure preferences for parents of adolescents … Urban parents preferred communicating with the provider via telephone, whereas suburban parents preferred … In addition, being a younger parent was associated with preferring text message vaccine reminders. … adolescents’ health care, and that a parent age and socio-economic divide exists.
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www.ahrq.gov/research/findings/nhqrdr/chartbooks/healthyliving/mchpcc-ps.html
June 01, 2018 - Parents refers to parents or guardians. … Trends:
From 2002 to 2013, the percentage of children whose parents reported poor communication with … Between 2002 and 2013, the percentage of children whose parents reported poor communication decreased … In 2013, 2.1% of parents of privately insured children reported poor communication compared with 5.6% … of parents of publicly insured children.
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digital.ahrq.gov/sites/default/files/docs/citation/r21hs027465-desai-final-report-2023.pdf
January 01, 2023 - Results: We enrolled 29 child-parent dyads and 473 providers. … Providers were identified to be eligible if the parent identified them to be on their child’s care … We used descriptive statistics to analyze the
categorical distribution of both parent and provider … surveys and 15 parents
responded (response rate = 52%). … Validation of a Parent-Reported Experience
Measure of Integrated Care.