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digital.ahrq.gov/ahrq-funded-projects/nicu-2-home-using-health-it-support-parents-nicu-graduates-transitioning-home/citation/supporting
January 01, 2023 - Supporting parents of premature infants transitioning from the NICU to home: a pilot randomized control … Supporting parents of premature infants transitioning from the NICU to home: a pilot randomized control … Project Name
NICU-2-HOME: Using Health IT to Support Parents of NICU Graduates Transitioning to Home
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digital.ahrq.gov/ahrq-funded-projects/conversational-information-technology-it-better-safer-pediatric-primary-care/annual-summary/2011
January 01, 2011 - Parent-entered data are shared with the child's primary care provider (PCP) via the EHR, where data are … Parent- and provider-reported feasibility and acceptability were assessed via questionnaires developed … Parent activation was assessed using a modified version of the 13-question Patient Activation Measure … The instrument was modified to reflect activation from the point of view of a parent. … Most PHP parents (89 percent) would recommend use of PHP to other parents.
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digital.ahrq.gov/health-it-tools-and-resources/evaluation-resources/health-it-survey-compendium/survey-about-parents
January 01, 2023 - Survey About Parents’ Vaccination Decision for their Child
This is a questionnaire designed … Survey Document
Survey About Parents’ Vaccination Decision for their Child
(Persons using … USA, CA, Oakland
Related Project
An Evaluation of an Interactive Social Media Web site for Parents
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digital.ahrq.gov/principal-investigator/garfield-craig-f
January 01, 2023 - Supporting parents of premature infants transitioning from the NICU to home: a pilot randomized control … Supporting parents of premature infants transitioning from the NICU to home: a pilot randomized control … Project Name
NICU-2-HOME: Using Health IT to Support Parents of NICU Graduates Transitioning to Home … NICU-2-HOME: Using Health IT to Support Parents of NICU Graduates Transitioning … NICU-2-HOME: Using Health IT to Support Parents of NICU Graduates Transitioning to Home - Final Report
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digital.ahrq.gov/ahrq-funded-projects/nicu-2-home-using-health-it-support-parents-nicu-graduates-transitioning-home/final-report
January 01, 2023 - NICU-2-HOME: Using Health IT to Support Parents of NICU Graduates Transitioning to Home - Final Report … NICU-2-HOME: Using Health IT to Support Parents of NICU Graduates Transitioning to Home - Final Report … Project Name
NICU-2-HOME: Using Health IT to Support Parents of NICU Graduates Transitioning to Home
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digital.ahrq.gov/sites/default/files/docs/publication/r21hs019071-lai-final-report-2014.pdf
January 01, 2014 - not only clinical care and patient/parent-
provider interactions but also patient/parent self-management … Sample
characteristics are shown in Table 1 (patient) and Table 2 (parent). … Fair 8.9
Quality of life rated by parents Good 37.5
Quality of life rated by parents Very good 37.5 … 1.47) 0.238
Parent FMBQ – Lack of concern 36 -0.22 (2.93) 0.652 39 -0.85 (2.78) 0.065
Parent FMBQ … Comparing patient, parent, and staff descriptions of
fatigue in pediatric oncology patients.
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digital.ahrq.gov/sites/default/files/docs/citation/r18hs024690-epstein-final-report-2021.pdf
January 01, 2021 - Moreover, we will ask parents to complete
questions on the Services Assessment for Children and Adolescents-Parent … The parent-report version also has items assessing sibling
relations, parent–child relations, and impact … parent motivation for treatment. … In our monthly focus groups with parents and teachers, we asked parent and
teacher stakeholders to do … All 9 parent-child dyads
successfully set up this reward hierarchy.
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digital.ahrq.gov/sites/default/files/docs/publication/r18hs017248-adams-final-report-2011.pdf
January 01, 2011 - The system seeks to engage parents at home, validate the essential role of a
parent in the health care … For example,
when a parent screens positive for depression, PHP reminds the parent that pediatricians … Developmental Screening (0-8 yrs) Counseling All: Inform parent of results, If positive: counsel parent … Post-visit assessments focused on:
1) parent recall of visit content, 2) parent willingness to commit … Parent-User Satisfaction
The majority of parents gave very favorable reviews of both the PHP and Safety-only
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digital.ahrq.gov/ahrq-funded-projects/improving-pediatric-cancer-survivorship-care-through-survivorlink/annual-summary/2010
January 01, 2010 - As a result, the patient-parent portal was designed with special attention to security and privacy. … In September 2010, patient and parent recruitment was initiated at the largest clinic via mailings and … A total of 26 users have registered (19 parents and 7 patients) toward the recruitment goal of 500. … In 2011, patient and parent recruitment will begin at the other clinics. Dr. … cancer survivors were incorporated into the development of the parent-patient portal of SurvivorLink.
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digital.ahrq.gov/sites/default/files/docs/citation/r21hs023626-asan-final-report-2017.pdf
January 01, 2017 - look at by
themselves
LCIM helps parents to know what is needed at the moment
Parent felt engaged … parent to ask more educated questions and make more educated decisions
Highly educated parents involve … This provides reassurance to the parent
Parents asks for clarification when she needs to; doing so … LCIM helps parent to manage, but not understand child’s problem. … Parent finds it overwhelming to have a lot of information on the LCIM without no explanation
Parent
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digital.ahrq.gov/ahrq-funded-projects/using-health-information-technology-improve-delivery-hpv-vaccine
January 01, 2023 - The overall objectives of this study were to 1) assess parent preferences for communicating with their … The specific aims of the project were as follows:
Measure preferences for parents of adolescents … Urban parents preferred communicating with the provider via telephone, whereas suburban parents preferred … In addition, being a younger parent was associated with preferring text message vaccine reminders. … adolescents’ health care, and that a parent age and socio-economic divide exists.
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digital.ahrq.gov/sites/default/files/docs/citation/r21hs027465-desai-final-report-2023.pdf
January 01, 2023 - Results: We enrolled 29 child-parent dyads and 473 providers. … Providers were identified to be eligible if the parent identified them to be on their child’s care … We used descriptive statistics to analyze the
categorical distribution of both parent and provider … surveys and 15 parents
responded (response rate = 52%). … Validation of a Parent-Reported Experience
Measure of Integrated Care.
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digital.ahrq.gov/ahrq-funded-projects/conversational-information-technology-it-better-safer-pediatric-primary-care
January 01, 2023 - Parents who had scheduled an annual well-child exam were contacted via a mailed brochure and invited … A week after the appointment, parents were asked to complete a followup assessment over the phone. … PHP successfully identified and counseled parents. … PHP parents also reported that they felt better prepared for visits with their children’s providers, … and the majority indicated they would recommend PHP to other parents.
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digital.ahrq.gov/sites/default/files/docs/citation/r21hs021799-cohen-final-report-2018.pdf
January 01, 2018 - child, but included tips for how the parent could help the
child. … The parent also played the same game so that the parent and child could share their scores
and experience … Parents completed a parallel version of RadWorld that informed the parent about the
medical procedures … Following RT, the child, parent, and radiation therapist completed measures of child and
parent RT anxiety … were completed by the child, parent, and RT technician.
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digital.ahrq.gov/ahrq-funded-projects/symptom-monitoring-and-reporting-system-pediatric-chronic-illness
January 01, 2023 - Patients ages 7 to 21 and their parents were enrolled in the study. … of children with cancer, and the clinicians’ and parents’ satisfaction with the system. … Fifty-seven patients and their parents completed the study. … An exit survey was completed by patients and their parents at their last visit. … Parents reported their children having significantly worse fatigue than patients’ own reports.
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digital.ahrq.gov/ahrq-funded-projects/evaluation-interactive-social-media-web-site-parents-who-are-concerned-about/annual-summary/2010
January 01, 2010 - An Evaluation of an Interactive Social Media Web site for Parents who are Concerned about Immunizing … Children - 2010
Project Name
An Evaluation of an Interactive Social Media Web site for Parents … An increasing number of parents in developed countries now believe the risks of vaccines outweigh their … Research has shown that parents who decline or delay immunizations greatly increase their children’s … Research also shows that the health information that vaccine-hesitant parents obtain from the Internet
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digital.ahrq.gov/sites/default/files/docs/citation/r01hs025714%20-marcin-final-report-2023.pdf
January 01, 2023 - Parents of 253 unique patients
completed 312 surveys. … Outcomes included: 1) parent experience of care; 2) parent and provider perception
of quality of care … If parents
agreed to participate in the study, they were asked to complete a “parent survey” on paper … Parent Experience Scores: Normalized mean parent experience scores were 0.97 for in-person
visits, 0.98 … in parent education, and physician confidence in physical exam
Coefficient 95% CI p-value
Parent
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digital.ahrq.gov/sites/default/files/docs/implementation/Porter.ppt
June 16, 2021 - exposures to precipitants of asthma symptoms
Train all patients to monitor their asthma
Linking parents … populate a knowledge engine and drive guideline-endorsed care
Porter et al JAMIA 2004;11:458-467
Parents … Physician
Nurse
Idealized asthma care
Parents told us what they know. … Steve
Current age 13 years
Dov 9/24/2003
Idealized asthma care
Parents … A Role for a Patient-driven Information Solution
Parents can independently enter data using a multi-media
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digital.ahrq.gov/ahrq-funded-projects/improving-pediatric-cancer-survivorship-care-through-survivorlink/annual-summary/2011
January 01, 2011 - Of these, 132 were providers, 131 were parents, and 53 were patients. … Findings from focus groups with providers and parents of pediatric cancer survivors were incorporated … into the development of the parent-patient portal of SurvivorLink. … The patient-parent portal was designed with special attention to security and privacy. … As an added security measure, patients and parents are able to monitor who looks at their information
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digital.ahrq.gov/ahrq-funded-projects/symptom-monitoring-and-reporting-system-pediatric-chronic-illness/annual-summary/2011
January 01, 2011 - This alert notifies a clinician to contact the parent of the patient to consult on managing fatigue or … developing and pilot-testing the system, a prospective cohort study of 100 patient (ages 7 to 17) and parent … conducted to evaluate: 1) the feasibility of implementing the SyMon-SAYS system in clinics; 2) patient/parent … of children with cancer and the clinicians' and parents' satisfaction with the system. … Five patient-parent dyads were recruited to test the functionality of the system, the data collection