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effectivehealthcare.ahrq.gov/products/depression-care-distributed-networks
May 08, 2009 - Distributed Ambulatory Research in Therapeutics Network (DARTNet): Informing Practice and Improving Depression Care
Timeline
January 01, 2005
Topic Initiated
May 08, 2009
Abstract
Archived
Distributed Ambulatory Research in Therapeutics Network (DARTNet): Inf…
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effectivehealthcare.ahrq.gov/products/depression-care-distributed-networks/abstract
May 08, 2009 - Distributed Ambulatory Research in Therapeutics Network (DARTNet): Informing Practice and Improving Depression Care
Abstract Archived May 8, 2009
Topic Abstract
Detailed clinical data can improve the quality of observational comparative effectiveness research (OCER) and enhance the quality of clinica…
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effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_white-paper.pdf
September 01, 2013 - in an effort to create an inventory
of existing networks. … Other networks have had similar beginnings25. … Comprehensive inventory of research
networks: Clinical data research networks,
patient-powered research … networks, and
patient registries. … Health care and social
networks: Creating an online patient
community.
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effectivehealthcare.ahrq.gov/products/stakeholders-engagement-others/white-paper
September 30, 2013 - Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries and Research Networks … advocates and organizations have created and operated “patient-powered” patient registries and research networks … These registries and networks are distinguished from researcher-generated registries in that the registry … Patient-powered registries (PPRs) and patient-powered research networks (PPRNs) offer new directions … characteristics of both researcher-generated and patient-generated patient registries and research networks
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effectivehealthcare.ahrq.gov/products/dsitributed-database-analyses/abstract
July 28, 2010 - 2007, the DEcIDE Network initiated an evaluation of two different prototypes of distributed research networks … goals of the initiatives are to assess the advantages and limitations of using distributed database networks … The potential uses of distributed networks include studies of clinical effectiveness, comparative effectiveness
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effectivehealthcare.ahrq.gov/sites/default/files/hunt_panel_1.pdf
January 01, 2010 - raise awareness
Start conversation about your content
SFW Video
contest
o Focus on partner networks … (Twitter)
• Reach different people
o Support networks
o Diabetes patients who do not adhere to treatment … o Marketing
o Partner networks
• How can we be relevant instead of being another piece of spam?
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effectivehealthcare.ahrq.gov/sites/default/files/epstein1.pdf
January 01, 2009 - Evolving / static
Slide 3: How do synchronous
and asynchronous
communication create social
networks … Slide 4: Social Networks
of Relatively Healthy People
An image of intersecting circles labeled, “The … Slide 5: Social networks
of people with serious
and chronic illnesses
An image of intersecting
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effectivehealthcare.ahrq.gov/sites/default/files/bernhardt.pdf
January 27, 2011 - New media, social networks, and Web 2.0 can help! … Slide
11: Increasing
Scientists’ Dissemination Efforts
• Scientists should engage practitioner networks … wisdom and experience
Slide
15: Building
Partnerships for Dissemination
• Focus on partner “networks … should facilitate
Slide
16: Building Partnerships for Dissemination 2.0
• Establish electronic networks
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effectivehealthcare.ahrq.gov/sites/default/files/epstein.pdf
January 01, 2011 - • Evidence as a ‘middle-‐range theory of practice’
Slide
6: Social networks
• Patients rarely … • Clinicians and
patients construct (often tacit) “communities of care”
Slide
7:
Social Networks … Slide
8:
Social networks of people
with serious and chronic illnesses
An image of intersecting … logic and
affect against known
values
• Distributed view
o Decisions are made within social networks
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effectivehealthcare.ahrq.gov/products/distributed-network-safety/research
July 28, 2009 - Centralized—as opposed to distributed—biomedical networks and distributed networks in other scientific … Existing Networks
Five networks met our inclusion criteria:
1. … Summary of Existing Networks
Much can be learned from the activities of the networks described above … Planned Networks
Several biomedical distributed research networks are currently in various stages of … with users on other networks.
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effectivehealthcare.ahrq.gov/sites/default/files/pdf/distributed-network-safety_research.pdf
July 01, 2009 - Health information exchange networks also were not reviewed
because those networks are designed to … Existing Networks
Five networks met our inclusion criteria:
1. … Summary of Existing Networks
Much can be learned from the activities of the networks described above … Planned Networks
Several biomedical distributed research networks are currently in various stages of … with users on other networks.
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effectivehealthcare.ahrq.gov/products/stakeholders-engagement-others
June 10, 2011 - Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries and Research Networks
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effectivehealthcare.ahrq.gov/sites/default/files/hesse.pdf
January 01, 2010 - (e.g., polar ice caps; equatorial Pacific)
o Satellites
Slide 6: NewWays
of Working
Through Networks … (1)
• Differential benefits of working online
Slide 7: NewWays
of Working
Through Networks
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effectivehealthcare.ahrq.gov/sites/default/files/cf_deliberativemethodswebinar_goalsetting.pdf
May 18, 2012 - disagreement and
open questions or
information needs
identified
• Participant connections
and networks
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effectivehealthcare.ahrq.gov/sites/default/files/pdf/patient-participant-generated-registries-guide-3rd-ed-addendum-white-paper.pdf
February 01, 2018 - as the first principle;
1
Patient- or Participant-Generated Registries
• Employ social networks … which also serves as the main recruiter of patients
to the PGR.87 Twenty Patient-Powered Research Networks … Online social
networks-based qualitative research to
identify participant-relevant concepts in
chronic … Health Care and Social
Networks: Creating an Online Patient
Community. … Patient-Powered Research Networks Aim to
Improve Patient Care and Health Research.
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effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/patient-participant-generated-registries-guide-3rd-ed-addendum-white-paper.pdf
February 01, 2018 - as the first principle;
1
Patient- or Participant-Generated Registries
• Employ social networks … which also serves as the main recruiter of patients
to the PGR.87 Twenty Patient-Powered Research Networks … Online social
networks-based qualitative research to
identify participant-relevant concepts in
chronic … Health Care and Social
Networks: Creating an Online Patient
Community. … Patient-Powered Research Networks Aim to
Improve Patient Care and Health Research.
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effectivehealthcare.ahrq.gov/sites/default/files/metzger.pdf
January 01, 2010 - Incorporate social media tools in own Web site
o Use popular and trusted platforms
• Take advantage of networks
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effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_slides-2011.pdf
January 01, 2011 - Through their participation in
research projects and their networks with other patient/consumer representatives … Existing networks of
patient/consumer representatives– e.g., the FDA Patient Advocacy Network, NBCCs … for involvement, for example through
newsletters, listserv updates, or Facebook® pages that these networks … recruiting minority and underserved populations were noted to do so by
developing relationships and networks … activities emerged from the day-long discussion including: the importance of
relationship building and networks
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effectivehealthcare.ahrq.gov/sites/default/files/module_iv1.ppt
October 31, 2011 - .
*
Challenge: Identifying Stakeholders
Professional colleagues and networks
AHRQ staff
Consumer … organizations
Policy networks and organizations
Literature searches
Web searches
Policy networks … These include:
Professional colleagues and networks
Professional societies and associations
AHRQ … staff
Patient and consumer organizations
Literature searches
Web searches
Policy networks and organizations
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effectivehealthcare.ahrq.gov/sites/default/files/module_iii2.ppt
October 31, 2011 - organizations and support groups
Professional organizations and societies
Certification boards
Professional networks … professional organizations and societies, or certification boards
Look for policymakers through professional networks … Clinicians
Professional organizations and societies
Certification boards
Policymakers
Professional networks