-
effectivehealthcare.ahrq.gov/products/depression-care-distributed-networks/abstract
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_white-paper.pdf
September 01, 2013 - in an effort to create an inventory
of existing networks. … Other networks have had similar beginnings25. … Comprehensive inventory of research
networks: Clinical data research networks,
patient-powered research … networks, and
patient registries. … Health care and social
networks: Creating an online patient
community.
-
effectivehealthcare.ahrq.gov/sites/default/files/hunt_panel_1.pdf
January 01, 2010 - raise awareness
Start conversation about your content
SFW Video
contest
o Focus on partner networks … (Twitter)
• Reach different people
o Support networks
o Diabetes patients who do not adhere to treatment … o Marketing
o Partner networks
• How can we be relevant instead of being another piece of spam?
-
effectivehealthcare.ahrq.gov/sites/default/files/epstein1.pdf
January 01, 2009 - Evolving / static
Slide 3: How do synchronous
and asynchronous
communication create social
networks … Slide 4: Social Networks
of Relatively Healthy People
An image of intersecting circles labeled, “The … Slide 5: Social networks
of people with serious
and chronic illnesses
An image of intersecting
-
effectivehealthcare.ahrq.gov/sites/default/files/bernhardt.pdf
January 27, 2011 - New media, social networks, and Web 2.0 can help! … Slide
11: Increasing
Scientists’ Dissemination Efforts
• Scientists should engage practitioner networks … wisdom and experience
Slide
15: Building
Partnerships for Dissemination
• Focus on partner “networks … should facilitate
Slide
16: Building Partnerships for Dissemination 2.0
• Establish electronic networks
-
effectivehealthcare.ahrq.gov/sites/default/files/epstein.pdf
January 01, 2011 - • Evidence as a ‘middle-‐range theory of practice’
Slide
6: Social networks
• Patients rarely … • Clinicians and
patients construct (often tacit) “communities of care”
Slide
7:
Social Networks … Slide
8:
Social networks of people
with serious and chronic illnesses
An image of intersecting … logic and
affect against known
values
• Distributed view
o Decisions are made within social networks
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/distributed-network-safety_research.pdf
July 01, 2009 - Health information exchange networks also were not reviewed
because those networks are designed to … Existing Networks
Five networks met our inclusion criteria:
1. … Summary of Existing Networks
Much can be learned from the activities of the networks described above … Planned Networks
Several biomedical distributed research networks are currently in various stages of … with users on other networks.
-
effectivehealthcare.ahrq.gov/sites/default/files/cf_deliberativemethodswebinar_goalsetting.pdf
May 29, 2025 - disagreement and
open questions or
information needs
identified
• Participant connections
and networks
-
effectivehealthcare.ahrq.gov/sites/default/files/module_iv1.ppt
May 29, 2025 - .
*
Challenge: Identifying Stakeholders
Professional colleagues and networks
AHRQ staff
Consumer … organizations
Policy networks and organizations
Literature searches
Web searches
Policy networks … These include:
Professional colleagues and networks
Professional societies and associations
AHRQ … staff
Patient and consumer organizations
Literature searches
Web searches
Policy networks and organizations
-
effectivehealthcare.ahrq.gov/sites/default/files/module_iii2.ppt
May 29, 2025 - organizations and support groups
Professional organizations and societies
Certification boards
Professional networks … professional organizations and societies, or certification boards
Look for policymakers through professional networks … Clinicians
Professional organizations and societies
Certification boards
Policymakers
Professional networks
-
effectivehealthcare.ahrq.gov/sites/default/files/hesse.pdf
January 01, 2010 - (e.g., polar ice caps; equatorial Pacific)
o Satellites
Slide 6: NewWays
of Working
Through Networks … (1)
• Differential benefits of working online
Slide 7: NewWays
of Working
Through Networks
-
effectivehealthcare.ahrq.gov/sites/default/files/module-iv-skills-for-successful-engagement.pdf
May 29, 2025 - Slide 16
Challenge: Identifying Stakeholders
§ Professional colleagues and networks
§ AHRQ staff … § Consumer organizations
§ Policy networks and organizations
§ Literature searches
§ Web searches … § Policy networks
Image: a photograph of a man and a woman, both professionally dressed, shaking hands … These include:
§ Professional colleagues and networks
§ Professional societies and associations
§ … AHRQ staff
§ Patient and consumer organizations
§ Literature searches
§ Web searches
§ Policy networks
-
effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/patient-participant-generated-registries-guide-3rd-ed-addendum-white-paper.pdf
February 01, 2018 - as the first principle;
1
Patient- or Participant-Generated Registries
• Employ social networks … which also serves as the main recruiter of patients
to the PGR.87 Twenty Patient-Powered Research Networks … Online social
networks-based qualitative research to
identify participant-relevant concepts in
chronic … Health Care and Social
Networks: Creating an Online Patient
Community. … Patient-Powered Research Networks Aim to
Improve Patient Care and Health Research.
-
effectivehealthcare.ahrq.gov/sites/default/files/norman.pdf
May 29, 2025 - HIGH PLAINS RESEARCH NETWORK
INNOVATIONS CONFERENCE -- HIGH PLAINS RESEARCH NETWORK
SPEAKERS: NED NORMAN,
MEMBER,
HIGH PLAINS RESEARCH NETWORK,
COMMUNITY ADVISORY COUNCIL
SERGIO SANCHEZ,
MEMBER,
HIGH PLAINS RESEARCH NETWORK,
COMMUNITY ADVISORY COUNCIL
…
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_slides-2011.pdf
January 01, 2011 - Through their participation in
research projects and their networks with other patient/consumer representatives … Existing networks of
patient/consumer representatives– e.g., the FDA Patient Advocacy Network, NBCCs … for involvement, for example through
newsletters, listserv updates, or Facebook® pages that these networks … recruiting minority and underserved populations were noted to do so by
developing relationships and networks … activities emerged from the day-long discussion including: the importance of
relationship building and networks
-
effectivehealthcare.ahrq.gov/sites/default/files/module-iii-points-of-engagement-in-the-ehc-program.pdf
May 29, 2025 - support groups
§ Professional organizations and societies
§ Certification boards
§ Professional networks … organizations and societies, or certification
boards
§ Look for policymakers through professional networks … § Professional organizations and societies
§ Certification boards
§ Policymakers
§ Professional networks
-
effectivehealthcare.ahrq.gov/sites/default/files/delilberative-methods-design-gupta.pdf
May 29, 2025 - of disagreement and open questions or
information needs identified
Participant connections and networks
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/distributed-network-blueprint_research.pdf
June 01, 2010 - As compared to the development of multiple independent and single-purpose networks, a
single multi-purpose … especially large data holders, will find it feasible or desirable to
participate in multiple health data networks … , raising the likelihood that independent, single-
purpose networks will be difficult to sustain. … pragmatic randomized trials, the program will require large-scale clinical
and administrative data networks
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/distributed-network-ambulatory-therapeutics_research.pdf
July 01, 2009 - Federated networks link separate databases in
such a way that a single query can run on the separate … Practice-based research networks provide a mechanism for examining everyday
challenges of clinical … Distributed networks allow a central site to
simultaneously query data stored locally for each member … , or virtual private networks, which allow access
rights behind a firewall. … AHRQ Support for
Primary Care Practice-Based Research
Networks (PBRNs).
-
effectivehealthcare.ahrq.gov/sites/default/files/metzger.pdf
January 01, 2010 - Incorporate social media tools in own Web site
o Use popular and trusted platforms
• Take advantage of networks