-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/cer-231-dementia-care-interventions-disposition-comments.pdf
July 31, 2020 - As noted
in the table, they were generally organized to correspond
to the NASEM Families Caring for … members. … The use of the term
“informal caregiver” devalues the work that family
caregivers do. … and friends that doesn’t match the complexity of
what family caregivers do today. … Table 1.1 notes CG/P may
include spouses, family, friends, and volunteers.
-
effectivehealthcare.ahrq.gov/sites/default/files/thompson_eccs2012.pdf
January 01, 2012 - • Royak-‐Schaler et al. (2004) found a preference for information about
family … Social Math
o The data seemed more personal.
o Female participants found the statements referencing family … relevant.
o Male participants who preferred social math indicated a preference
for data using family … Nonstatistical Evidence and Health Decisions
(1 of 2)
• Testimonials and statements related to personal, family
-
effectivehealthcare.ahrq.gov/sites/default/files/carman-presentation.pdf
May 29, 2025 - publication to Health Affairs in 2013 that really asked us to
think, “How do we think about patient and
family … the things we are talking about today is how important a clear conceptualization of
patient and
family … We
convened about 75 stakeholders -‐-‐ patients, family members, providers,
administrators, payers, … And the roadmap became a concrete way to talk about how we get
patient and
family voices into this … How can
we connect our patients and
families into the process?
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/deliberative-methods_presentation-2011.pdf
January 01, 2011 - Examples from the literature
Community Forum Community Forum Community Forum
19
Issue: Can family … members provide surrogate consent for
research participation for individuals with dementia? … 200% of FPL
Method: REACH, priority setting game
4 rounds of priority setting
1) Self, family … 2) Neighborhood
3) Entire city
4) Self, family again
Deliberative method for
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/cancer-end-of-life-indicators-symposium_research.pdf
April 01, 2010 - key
elements of the conversations as described above, distributing questionnaires to patients and
families … understanding of the conversations, and incorporating questions into the
conversation for patients and families … members. … direct input from patients and a families in process and outcome measures, both by specific
domain … members;
• Structural indicators of information technology,
including EMRs, can facilitate information
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/liver-cancer_research-protocol.pdf
July 24, 2013 - members, as measured by self-reported questionnaire instruments … members, as measured by self-reported questionnaire instruments … members as measured by self-reported questionnaire instruments … members, as
measured by self-reported questionnaire instruments … members, as
measured by self-reported questionnaire instruments
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/hypertension-pulmonary-arterial_disposition-comments.pdf
April 25, 2013 - there are risk factors such as scleroderma, portal hypertension,
catecholeminergic drug abuse or a family … screening test studies, including patients with HIV, sickle
cell anemia or trait, portal hypertension, family
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/autism-adolescents_research-protocol.pdf
March 29, 2011 - impact of ASD on the family and the impact of family-focused
interventions. … on the family. … members of adolescents and young adults with ASDs
• Interventions:
o Behavioral interventions … outcomes
including family distress and family satisfaction related to interventions. … either toward
adolescents and young adults with ASDs or toward their families?
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/trauma-interventions-maltreatment-child_research-protocol.pdf
January 12, 2012 - Using a framework provided by the Administration for Children and Families Child
Welfare Information … Secondary prevention targets families with risk factors associated with maltreatment to prevent
their … Tertiary prevention targets children and families in which maltreatment has
already occurred to promote … Modality (e.g., individual, dyadic, group, family-based, mixed)
b. … Fostering secure attachment in infants in maltreating
families through preventive interventions.
-
effectivehealthcare.ahrq.gov/sites/default/files/hawley-presentation.pdf
May 29, 2025 - The patient is nested within family and others. Family and others are within
a community. … The role of family and others in decision making may vary. … member, to help educate them about the cost of care, and as a
result patients will be making … Involvement of family and
friends needs to be considered;; I think in some cases, this may be a … The quote highlights the importance of acknowledging the
role of family when conveying risk
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/registries-forums_research_0.pdf
May 01, 2014 - Effective Health Care Program Research Report Number 44
of Rheumatology, American Academy of Family … the Network decided to expand their audience to include a broader
group of stakeholders, including families … National Foundation for Celiac Awareness
National Psoriasis Foundation
RASopathies Network USA
VHL Family … Wellpoint
B-1
Effective Health Care Program Research Report Number 44
Provider
American Academy of Family
-
effectivehealthcare.ahrq.gov/sites/default/files/woolf_eccs2012.pdf
January 01, 2012 - Professor of Family Medicine
Virginia Commonwealth University, Richmond, Virginia
Slide 2: U.S. … o What family and friends do or recommend?
o What
I [the patient]
have always done?
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/disruptive-behavior-disorders-protocol.pdf
January 31, 2023 - We added examples of specific settings (e.g., group homes, residential
treatment, family setting) to … Psychosocial interventions for child,
parents/family or both including:
- Social skills training … Functional outcomes:
- Family functioning/cohesion
- School performance/attendance
- Interpersonal … Journal of Child and Family Studies.
2002;11(2):165-78. doi: 10.1023/A:1015173508474.
11. … Families in Society. 2019;100(3):282-92. doi:
10.1177/1044389419842765.
14.
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/mental-illness-adults-prisons_executive.pdf
August 01, 2013 - to improve mental
health and other outcomes of offenders with SMI could
help individuals with SMI, family … members, treatment
providers, criminal justice administrators and staff, and
possibly State and Federal … months of an inmate’s release
date and continue once he or she is back in the community
(e.g., home/family … transition from incarceration (i.e., jail,
prison, forensic hospital) to the community (e.g., home/
family … Release to the community includes direct
release to home or family and release to a transitional
setting
-
effectivehealthcare.ahrq.gov/sites/default/files/mccormack-presentation.pdf
May 29, 2025 - understand
information, they really
can’t be involved in their own care, they can’t advocate for family … members, and they
are simply not able to make informed
decisions. … of influence and
behavior and
this is relationships and communications that we have with our family … with
engaging individuals.And,of course, all other kinds of supportwith
interpreters, involving family … These include making
patient and
family-‐centered decision supportwidely available; providing training
-
effectivehealthcare.ahrq.gov/sites/default/files/lessons-presentation.pdf
January 01, 2013 - gears, each of which represent a health system perspective:
Payor, Health System, Culture/society, family … and “support” point to “parent,” “relationship,” and “child,” are
encircled in an area labeled “family … Provider Steering Committee
§ Community Advisory Committee
§ Payor
§ Health System
§ Patients
§ Family
-
effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/pdf/mhs-IV-epc-grand-rounds-slides.pptx
January 01, 2023 - Discuss strategies for engaging family caregivers through structured communication to enhance the safety … Topics (2023)
16
Rapid Reviews Rapid Response
Opioid stewardship
Rapid response systems
Engaging family … education, or engagement Patient & family education, or engagement 6 RCTs
Multicomponent Multicomponent … Primary Family activation Progression to arrest during RRS activation Less likely with family activation … Caregiver: Family members and nonfamilial, informal/unpaid caregivers (e.g., friend, neighbor) who provide
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/methods-research-report-unhealthy-alcohol-use-final.pdf
September 01, 2018 - Department of Family Medicine, Georgetown University
Washington, DC
Shana Ratner, M.D. … General Internal Medicine at University of
Pennsylvania); Kenneth Lin, MD (Associate Professor of Family
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/methods-guidance-tests-bias_methods.pdf
July 01, 2012 - (Note that in the context of
family history, the reference standard can only be applied to family members … or relatives. … YES: All relatives that the proband identifies/reports upon represent the whole sample of
relatives. … Family History and Improving Health.
Evidence Report/Technology Assessment No.
186. … Systematic review: family history in risk
assessment for common diseases.
-
effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/pdf/epc-maternal-health-grand-rounds-slides.pptx
January 01, 2023 - care and collaboration in postpartum hypertension management, including the role of patients and their families … 13
14
Engaging Research Partners to Identify Important Topics
14
Clinician
Caregiver/
Family … Member of Patient
Patient/ Caregiver Advocacy Org
Hospital/ Health System
Purchaser
Payer