-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/dementia-nursing-home-characteristics_executive.pdf
October 01, 2012 - members; however,
increasing care needs in later stages of
the illness often lead to placement in … Because long-
term care settings are highly varied,
people with dementia and their families,
who … , such as by bringing the family peace of mind. … where to
place a family member who has dementia and who can no
longer be cared for at home. … Informal
caregivers are unpaid individuals who provide care to
relatives or friends.7
Interventions
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/mental-health-app-protocol-updated.pdf
January 01, 2018 - ,
accessibility, purpose, security and privacy features, usability, and safety to help
consumers, family … members and peer supports, providers and health systems select
mental health mobile apps. … most apps, safety/privacy concerns and other
issues, the decisional dilemma is “how can consumers, family … members and peer
supports, providers and health systems select mental health and wellness mobile
applications … members and peer
supports, providers and health systems select behavioral health mobile
applications
-
effectivehealthcare.ahrq.gov/sites/default/files/roblin.pdf
January 01, 2010 - optimize chronic illness care and
outcomes
o Individuals include patient, community (friends, family … coordination can be within or between groups (e.g., among
patients, between
a patient and friends/family … messages to supporters prompted interactions that might not
otherwise have occurred
o “It got my whole family … 18: How To Organize the Community (2)
• Decisions:
o Self-‐selected peer
(close friend or
family … member) whose support and opinion
was valued by the diabetes patient
o Unmoderated interactions between
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/masks-prevention-covid-surveillance-report.pdf
July 17, 2020 - 2 case and 355 uninfected household contacts.1 Households in which masks were used by
at least one family … member (including the index case) prior to the development of symptoms by
the index case were associated … association between mask use after illness onset in the index case
and risk of SARS-CoV-2 infections in family … members.
-
effectivehealthcare.ahrq.gov/sites/default/files/branson-text.pdf
October 13, 2011 - Patients/survivors/thrivers
§ Patient advocacy group members
§ Community advocacy group members
§ Family … members and/or caregivers
§ Healthcare providers
Slide 4
Characteristics of Patient Representatives
-
effectivehealthcare.ahrq.gov/sites/default/files/ahrq_community_forum_webinar_branson.pdf
October 13, 2011 - survivors/thrivers
• Patient advocacy group members
• Community advocacy group members
• Family … members and/or caregivers
• Healthcare providers
Significant Work.
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/long-term-care-adults_executive.pdf
November 01, 2012 - HCBS also include educational and
supportive group services for consumers or their families. … members and paid assistance. … members.5,8 Paid LTC services are financed through both
public and private means. … Care
through HCBS also includes educational and supportive
group services for consumers or their families … (direct out-of-pocket and insurance spending
and costs of informal care provided by family
members
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/mhs-IV-surgical-report-cards.pdf
July 01, 2023 - pediatric surgical patients Patient representatives or public
representatives who are not patients
or family … members
Intervention Any intervention intended to
measure and report surgical
outcomes (surgeon-
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/mhs4-opioid-stewardship-protocol.pdf
July 01, 2023 - organizational policies,
• Advance clinical knowledge, expertise, and practice,
3
• Enhance patient and family … analgesia, and/or limits on opioid
prescribing/ordering
• Interventions focused on patient and family
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/mhs-IV-1-year-final-report-updated-title_0.pdf
May 01, 2024 - Engaging Family Caregivers With Structured
Communication for Safe Care Transitions
3a. … Patient and Family Engagement
12a. … o The TEP acknowledged that communication with patients and their families was
important. … Engaging Family Caregivers With Structured Communication for Safe Care Transitions
3a. … Patient and Family Engagement
12a. Findings From Previous MHS Reports
12b.
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/clinical-care-rapid-review-appendix-c.xlsx
January 01, 2018 - members, or patients’ attorneys. … members. … “for the patient or family members to tell their story and describe the impact of the event. … Family members and/or attorneys are welcome at all meetings. … Families are asked to sign a release of claims in order to accept substantial money offers.
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/deliberative-methods-how-to-webinar-text-only.pdf
December 06, 2011 - Fraser Health, Institute of
Medicine, National Health Council, National Partnership for Women and Families … Slide 19
Deliberative method for assessing surrogate consent
Issue: Can family members provide … 2) Neighborhood
3) Entire city
4) Self, family again
Speaker notes: Participants comprised community … First, participants were asked to
think about themselves and their families when ranking the interventions … In fourth
round, participants were again asked to think about themselves and their families to see
-
effectivehealthcare.ahrq.gov/sites/default/files/deliberative-methods-how-to-webinar-text-only.pdf
December 06, 2011 - Fraser Health, Institute of
Medicine, National Health Council, National Partnership for Women and Families … Slide 19
Deliberative method for assessing surrogate consent
Issue: Can family members provide … 2) Neighborhood
3) Entire city
4) Self, family again
Speaker notes: Participants comprised community … First, participants were asked to
think about themselves and their families when ranking the interventions … In fourth
round, participants were again asked to think about themselves and their families to see
-
effectivehealthcare.ahrq.gov/sites/default/files/celiac-disease_disposition-comments.pdf
January 28, 2016 - Should asymptomatic first-degree relatives be
screened, and if so, when and how often? … TEP 2
Methods The special groups at risk do not mention family
members. … Were family member studies of
less than 300 excluded from analysis? … members were included as a
population of interest under “Asymptomatic
individuals at risk of celiac … We included studies of family
members with less than 300 subjects.
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/cancer-end-of-life-measures-framework_research.pdf
April 01, 2010 - seriously or terminally ill cancer patients, who are unlikely to recover or stabilize, and their
families … Organization), completed by families after
hospice patients’ deaths (in a general hospice population … including patients with cancer and other
illnesses), 18.2% of family members noted problems with attending … and 9.8% of family
members reported unmet need for emotional support (25th and 75th percentiles among … support
Percentage of family members reporting
unmet need for emotional support
Outcome Feasibility
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/cancer-quality-indicator-framework_research.pdf
April 01, 2010 - seriously or terminally ill cancer patients, who are unlikely to recover or stabilize, and their
families … Organization), completed by families after
hospice patients’ deaths (in a general hospice population … including patients with cancer and other
illnesses), 18.2% of family members noted problems with attending … and 9.8% of family
members reported unmet need for emotional support (25th and 75th percentiles among … support
Percentage of family members reporting
unmet need for emotional support
Outcome Feasibility
-
effectivehealthcare.ahrq.gov/sites/default/files/lessons-transcript.pdf
May 29, 2025 - In
affect this program brought all of these resources to families and essentially eliminated most of … centering on disease diagnoses
and how to augment the outcomes and the experience for patients and families … We
absolutely have to as researchers seed information back to the families in terms of resources
and … I tend to think of people as community
members, as family members so it’s hard for me even to use this … members, that also is
a way to really begin to turn the tables on who’s telling who what to do.
-
effectivehealthcare.ahrq.gov/sites/default/files/norman.pdf
May 29, 2025 - Jack Westfall, who is a family medicine
doc who works out of C.U.' … s Department of Family Medicine in Denver. … We have a loyalty to the HPRN family.
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/ocd-protocol.pdf
August 15, 2023 - review noted that “the concept of PANDAS brings great challenges to clinicians, patients and
their families … Tailoring treatment to
specific subgroups (e.g., non-responders, high-conflict families).22
Purpose … Question 2 (Treatment of OCD)
Family functioning
• OCD Family Functioning Scale
• Family Environment … status, and
geography (e.g., urban vs. rural)
o Diagnosis of PANS/PANDAS
o OCD in first degree relatives … status, and
geography (e.g., urban vs. rural)
o Diagnosis of PANS/PANDAS
o OCD in first degree relatives
-
effectivehealthcare.ahrq.gov/sites/default/files/brooks_eccs2012.pdf
January 01, 2012 - Family Medicine
Source: Eisenberg Center Conference Series 2012: Supporting Informed and Shared Decision