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21. Evidence-based Practice Center Systematic Review Protocol (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/quality-gap-palliative-hospice_research-protocol.pdf
    June 27, 2011 - Organization, 9 family members of general hospice patients who had cancer and other illnesses completed … a questionnaire after their relatives died. … The survey results showed that 18.2 percent of family members noted problems with inattention to their … Outcomes related to families and caregivers of these patients (e.g., depressive symptoms of family … members of ICU patients) will also be included.

22. Methods Guide for Medical Test Reviews (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/methods-guidance-tests-bias_methods.pdf
    July 01, 2012 - (Note that in the context of family history, the reference standard can only be applied to family members … or relatives. … YES: All relatives that the proband identifies/reports upon represent the whole sample of relatives. … Family History and Improving Health. Evidence Report/Technology Assessment No. 186. … Systematic review: family history in risk assessment for common diseases.

23. Future Research Needs for Hematopoietic Stem-Cell Transplantation in the Pediatric Population (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/stem-cell-children-future_research.pdf
    February 01, 2012 - (O)—Measures of family functioning, overall health of family members of the transplant patient Settings … health of family members of the transplant patient. … Data on measures of family functioning, health of family members and overall family well- being. … Data on measures of family functioning, health of family members and overall family well-being. … of family members, and overall family well-being. 21 Table 5.

24. PowerPoint Presentation (ppt file)
    effectivehealthcare.ahrq.gov/sites/default/files/related_files/medical-test-reviews-risk-bias.ppt
    June 01, 2012 - Index test: Patient self-reports of family history Reference standard: Verification of relatives’ status … Family History and Improving Health. … Note that in the context of family history, the reference standard can only be applied to family members … or relatives. … YES: All relatives that the proband identifies/ reports upon represent the whole sample of relatives.

25. PowerPoint Presentation (ppt file)
    effectivehealthcare.ahrq.gov/sites/default/files/medical-test-reviews-risk-bias.ppt
    June 01, 2012 - Index test: Patient self-reports of family history Reference standard: Verification of relatives’ status … Family History and Improving Health. … Note that in the context of family history, the reference standard can only be applied to family members … or relatives. … YES: All relatives that the proband identifies/ reports upon represent the whole sample of relatives.

26. Carman-notes-151021 copy-Teresa (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/carman-presentation.pdf
    May 29, 2025 - publication to Health Affairs in 2013 that really asked us to think, “How do we think about patient and   family … the things we are talking about today is how important a clear conceptualization of patient and  family … We convened about 75 stakeholders -­‐-­‐ patients, family members, providers, administrators, payers, … And the roadmap became a concrete way to talk about how we get patient and  family voices into this … How can  we connect our patients and  families into the process?

27. Making Healthcare Safer IV: Programs for Responding to Harms Experienced by Patients during Clinical Care (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/related_files/clinical-care-protocol.pdf
    January 01, 2024 - including those that are clearly caused by systems failures, the patient and, as appropriate, the family … are willing and able, to gather evidence for the root cause analysis; 7) inform the patient and/or family … intended to provide a transparent explanation of what caused the harm and support the patient and family … member, or provider requests a CRP be used o Any event reported by patient/family claiming significant … members; Studies limited to compensation strategies Comparator Usual care, pre- and post-implementation

28. Topic 0451 Celiac Disease NSD FINAL (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/TND-533_05-24-2013.pdf
    January 01, 2013 - family member of patient with CD; 2. type 1 diabetes mellitus; 3. … asymptomatic, at-risk populations (affected family members, patients with type 1 diabetes); iii.

29. Disposition of Comments_Psychosocial and Pharmacologic Interventions for Disruptive Behavior in Children and Adolescents: A Systematic Review (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/related_files/disruptive-behavior-disposition-comments.pdf
    April 10, 2025 - Most of teh at risk, HPA- AXIS adaptation occurs by 12 months.TEACH THE FAMILY In DOOR VOICE, family … Effects of PMTO in foster families with children with behavior problems: a randomized controlled trial … MAke Individual goals long term and short term practices that connect to PFC Train family members to … members by guiding the forces behind theri current behavior Traits fom Sates of mind rooted rom 0 … the severity of disruptive behaviors in children and adolescents and the negative impact it has on families

30. Having a Breast Biopsy: A Review of the Research for Women and Their Families (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/breast-biopsy-update_espanol.pdf
    February 01, 2017 - Having a Breast Biopsy: A Review of the Research for Women and Their Families e Si tiene que hacerse … publicación en inglés titulada Having a Breast Biopsy: A Review of the Research for Women and Their Families

31. OUTLINE (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/cancer-end-of-life-measures-framework_research.pdf
    April 01, 2010 - seriously or terminally ill cancer patients, who are unlikely to recover or stabilize, and their families … Organization), completed by families after hospice patients’ deaths (in a general hospice population … including patients with cancer and other illnesses), 18.2% of family members noted problems with attending … and 9.8% of family members reported unmet need for emotional support (25th and 75th percentiles among … support Percentage of family members reporting unmet need for emotional support Outcome Feasibility

32. OUTLINE (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/cancer-quality-indicator-framework_research.pdf
    April 01, 2010 - seriously or terminally ill cancer patients, who are unlikely to recover or stabilize, and their families … Organization), completed by families after hospice patients’ deaths (in a general hospice population … including patients with cancer and other illnesses), 18.2% of family members noted problems with attending … and 9.8% of family members reported unmet need for emotional support (25th and 75th percentiles among … support Percentage of family members reporting unmet need for emotional support Outcome Feasibility

33. Methods Guide for Medical Test Reviews Chapter 3 (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/methods-guidance-tests-outcomes_methods.pdf
    July 01, 2012 - test to the impact of the testing process on family members. … Family members may be affected as well by testing; for instance, 3-9 they may be called upon to … These behavioral effects are likely to affect the family members as well. … Test results with prognostic information would be expected to affect family members as well. … Most prominent is the effect on family members.

34. Having a breast biopsy. A review of the research for women and thier families (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/breast-biopsy-update_consumer.pdf
    May 01, 2016 - A review of the research for women and thier families Having a Breast Biopsy A Review of the Research … for Women and Their Families e Is This Information Right For Me? … It may help to talk with your family and friends.

35. Clinical-Care-Rapid-Review-Appendix-C (xls file)
    effectivehealthcare.ahrq.gov/sites/default/files/related_files/clinical-care-rapid-review-appendix-c.xlsx
    January 01, 2018 - members, or patients’ attorneys. … members. … “for the patient or family members to tell their story and describe the impact of the event. … Family members and/or attorneys are welcome at all meetings. … Families are asked to sign a release of claims in order to accept substantial money offers.

36. Table 1 (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/cancer-end-of-life-indicators-symposium_research.pdf
    April 01, 2010 - key elements of the conversations as described above, distributing questionnaires to patients and families … understanding of the conversations, and incorporating questions into the conversation for patients and families … members. … direct input from patients and a families in process and outcome measures, both by specific domain … members; • Structural indicators of information technology, including EMRs, can facilitate information

37. AHRQ Slide Template 2019-Widescreen
    effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/pdf/mhs-IV-epc-grand-rounds-slides.pptx
    January 01, 2023 - Discuss strategies for engaging family caregivers through structured communication to enhance the safety … Topics (2023) 16 Rapid Reviews Rapid Response Opioid stewardship Rapid response systems Engaging family … education, or engagement Patient & family education, or engagement 6 RCTs Multicomponent Multicomponent … Primary Family activation Progression to arrest during RRS activation Less likely with family activation … Caregiver: Family members and nonfamilial, informal/unpaid caregivers (e.g., friend, neighbor) who provide

38. Research Protocol for Interventions for Substance Use Disorders in Adolescents: A Systematic Review (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/suda-final-protocol.pdf
    October 02, 2018 - characteristics  Demographics  Family and community dynamics (i.e. substance using family member … Therapies o Family behavioral therapy (FBT) o Family systems therapy (FST)  Brief strategic family … therapy (BSFT) o Functional family therapy (FFT) o Ecological family therapy o Multidimensional family … therapy, family support network, and ecological based family therapy. … Family behavioral therapy: a family-focused therapy approach that applies principles of operant and

39. Evidence-based Practice Center Systematic Review Protocol (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/pdf/autism-adolescents_research-protocol.pdf
    March 29, 2011 - impact of ASD on the family and the impact of family-focused interventions. … on the family. … members of adolescents and young adults with ASDs • Interventions: o Behavioral interventions … outcomes including family distress and family satisfaction related to interventions. … either toward adolescents and young adults with ASDs or toward their families?

40. Diagnosis and Management of Obsessive Compulsive Disorders in Children (pdf file)
    effectivehealthcare.ahrq.gov/sites/default/files/related_files/ocd-protocol.pdf
    August 15, 2023 - review noted that “the concept of PANDAS brings great challenges to clinicians, patients and their families … Tailoring treatment to specific subgroups (e.g., non-responders, high-conflict families).22 Purpose … Question 2 (Treatment of OCD) Family functioning • OCD Family Functioning Scale • Family Environment … status, and geography (e.g., urban vs. rural) o Diagnosis of PANS/PANDAS o OCD in first degree relatives … status, and geography (e.g., urban vs. rural) o Diagnosis of PANS/PANDAS o OCD in first degree relatives