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effectivehealthcare.ahrq.gov/sites/default/files/related_files/palliative-care-tools-disposition.pdf
May 04, 2017 - member to “say what is on his or her mind.” … tools: “An instrument (generally a scale, questionnaire or
survey) completed by or with patients or families … meaningful to clinicians, but they were not
convinced that the tools had an impact on patients or
families … member to “say what is on his or her mind.” … to include improving the
experience of all persons living with serious advanced illness
and their families
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/long-term-care-adults_disposition-comments.pdf
November 07, 2012 - members and other unpaid caregivers. … Introduction Comparing NHs and HCBS - p. 4 (top paragraph) - The out-of-pocket
and opportunity costs to families … We agree that both
the out-of-pocket and opportunity costs to families
are important and we have noted … To be most effective, HCBS should also include explicit
supports provided to family members and other … Reviewer #8 General The audience appears to be policy makers, individuals and their
families who are
-
effectivehealthcare.ahrq.gov/products/asthma-education/protocol
April 16, 2019 - emergency department visits and more than 3,500 deaths. 1 Asthma significantly reduces patients' and families … available to improve asthma control and reduce the frequency and burden of symptoms. 2
Patients and families … Some are tailored to specific populations such as Spanish-speaking patients or inner-city families. … Families can be instructed in the important role of environmental triggers, and learn how to reduce or … Ease of use
Acceptability
Patient/family/instructor satisfaction
What implementation outcomes
-
effectivehealthcare.ahrq.gov/get-involved/nominated-topics/pin-the-area-of-autism-research-the-vast-majority-of-clinical-trials-conducted-to-date-have-addressed-only-the-questions-of-how-an-individual-treatment-compares-to-a-placebo-extremely-few-studies-have-been-conducted-that-make
April 09, 2009 - Individuals with ASD and their families represent a highly vulnerable and underserved population. … A recent study on the health care experience of individuals with ASD and their families demonstrated … special health care needs, children with ASD are more likely to have unmet needs for health care and family … services, have difficulty receiving appropriate medical referrals and coordinated health care, and have families
-
effectivehealthcare.ahrq.gov/products/children-special-needs-transition/research-protocol
October 24, 2013 - In 2011, the American Academy of Pediatrics (AAP), the American Academy of Family Physicians (AAFP), … include a lack of time and resources to address transition issues, inadequate reimbursement, hesitancy of families … issues that will be helpful to providers, health care leaders, policymakers, and patients and their families … Voices (provides families with tools to make informed decisions)
Institute for Community Inclusion … References
Cooley WC, Sagerman PJ; American Academy of Physicians; American Academy of Family Physicians
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effectivehealthcare.ahrq.gov/products/disruptive-behavior-disorder/clinician
August 31, 2016 - Children with DBDs may be aggressive and defiant and may struggle to get along with peers, family members … included two or more of a child component, parent component, or other component (e.g., teacher component, family … that the child's sex, maternal characteristics such as problems with depression and anger, and other family-functioning
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/disruptive-behavior-disorder_clinician.pdf
August 01, 2016 - Children with DBDs may
be aggressive and defiant and may struggle to get along
with peers, family members … included two or more of a child component, parent component, or other component (e.g.,
teacher component, family … that the child’s sex, maternal
characteristics such as problems with depression and anger,
and other family-functioning
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/hit-patient-care_executive.pdf
June 01, 2012 - Shared decisionmaking between patients,
their families, and providers; patient-clinician
communication … What are barriers or facilitators that
clinicians, developers, patients, and their families or
caregivers … the
impact of health IT applications implemented to enable
PCC is needed to give consumers, their families … What are barriers and facilitators
that clinicians, developers, patients, and their
families or caregivers … , preferences, and
values of individual patients or on shared decisionmaking
with patients, their families
-
effectivehealthcare.ahrq.gov/sites/default/files/woolf_eccs2012.pdf
January 01, 2012 - Professor of Family Medicine
Virginia Commonwealth University, Richmond, Virginia
Slide 2: U.S. … o What family and friends do or recommend?
o What
I [the patient]
have always done?
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effectivehealthcare.ahrq.gov/sites/default/files/cer-231-dementia-care-interventions-comments.pdf
July 31, 2020 - As noted
in the table, they were generally organized to correspond
to the NASEM Families Caring for … members. … The use of the term
“informal caregiver” devalues the work that family
caregivers do. … and friends that doesn’t match the complexity of
what family caregivers do today. … Table 1.1 notes CG/P may
include spouses, family, friends, and volunteers.
-
effectivehealthcare.ahrq.gov/system/files/cer-231-dementia-care-interventions-comments.pdf
July 31, 2020 - As noted
in the table, they were generally organized to correspond
to the NASEM Families Caring for … members. … The use of the term
“informal caregiver” devalues the work that family
caregivers do. … and friends that doesn’t match the complexity of
what family caregivers do today. … Table 1.1 notes CG/P may
include spouses, family, friends, and volunteers.
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/cer-231-dementia-care-interventions-disposition-comments.pdf
July 31, 2020 - As noted
in the table, they were generally organized to correspond
to the NASEM Families Caring for … members. … The use of the term
“informal caregiver” devalues the work that family
caregivers do. … and friends that doesn’t match the complexity of
what family caregivers do today. … Table 1.1 notes CG/P may
include spouses, family, friends, and volunteers.
-
effectivehealthcare.ahrq.gov/decision-aids/prostate-cancer/21.html
June 08, 2018 - Medical decisions should always be made with your doctor, and you may want to talk with your family and
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/autism-adolescents_surveillance.pdf
July 01, 2014 - outcomes including family distress and family satisfaction
Time period Studies published from 1980 … members of such
individuals
Other criteria
• Original research studies that provide sufficient detail … Challenges, coping strategies, and unmet needs of
families with a child with autism spectrum disorder … Brief report: Stony Brook Guidelines on the ethics of the
care of people with autism and their families … Using the prevent-teach-reinforce model with families
of young children with ASD.
-
effectivehealthcare.ahrq.gov/sites/default/files/santa_eccs2012.pdf
February 01, 2013 - • The Working
Group developed
lists
of top-‐five activities in family medicine,
internal … National Physicians Alliance members in each of three
primary care specialties (internal medicine, family … Released Lists in April 2012
• American Academy of Allergy Asthma & Immunology
• American Academy of Family … • National Hospice
and
Palliative
Care
Organization
• National Partnership for Women & Families … Business
Group on Health
• National Center for Farmworker Health
• National Partnership for Women and Families
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/TND-612-09-03-2013.pdf
January 01, 2013 - to support CSHCN in transitions from
pediatric care to adult care and also to support the needs of family … members/caregivers, and provide training to physicians to promote
successful transition from pediatric
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/machine-learning-quality_research.pdf
September 01, 2012 - Families completed Family Satisfaction in the Intensive Care Unit (FS-
ICU) and Quality of Dying and … member. … The response rate for family members was 55% (275 of 496) and for nurses, 89%
(523/590). … CONCLUSIONS: We found no significant improvement in family-assessed quality of dying or in
family satisfaction … Improving family ratings may require interventions that have more direct contact with family
members
-
effectivehealthcare.ahrq.gov/products/engaging-caregivers-mhs4
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/palliative-care-tools_research-protocol.pdf
April 14, 2016 - symptoms, supports quality of
life, and is focused on patients with serious advanced illness and their families … An assessment tool is an instrument completed by or with patients or families, used to
collect data … palliative care interventions requires reliable and valid assessment tools that
matter to patients and families … care, tools may be used by providers to directly assess
symptoms or other issues with patients or families … A systematic review of instruments related to family
caregivers of palliative care patients.
-
effectivehealthcare.ahrq.gov/products/trauma-child-interventions/research-protocol
March 26, 2012 - Interventions Addressing Children Exposed to Trauma: Part 2 – Trauma Other Than Child Maltreatment and Family … Interventions for children exposed to family violence (i.e., intimate partner violence and other forms … mother’s parenting after the child witnessed or overheard marital violence and also with maltreating families … symptoms in children
Attachment, Self-Regulation and Competency (ARC) is designed to treat children and families … In patients and families with limited resources and with limited psychological mindedness, acceptance