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  1. effectivehealthcare.ahrq.gov/sites/default/files/related_files/palliative-care-tools-disposition.pdf
    May 04, 2017 - member to “say what is on his or her mind.” … tools: “An instrument (generally a scale, questionnaire or survey) completed by or with patients or families … meaningful to clinicians, but they were not convinced that the tools had an impact on patients or familiesmember to “say what is on his or her mind.” … to include improving the experience of all persons living with serious advanced illness and their families
  2. effectivehealthcare.ahrq.gov/sites/default/files/related_files/long-term-care-adults_disposition-comments.pdf
    November 07, 2012 - members and other unpaid caregivers. … Introduction Comparing NHs and HCBS - p. 4 (top paragraph) - The out-of-pocket and opportunity costs to families … We agree that both the out-of-pocket and opportunity costs to families are important and we have noted … To be most effective, HCBS should also include explicit supports provided to family members and other … Reviewer #8 General The audience appears to be policy makers, individuals and their families who are
  3. effectivehealthcare.ahrq.gov/products/asthma-education/protocol
    April 16, 2019 - emergency department visits and more than 3,500 deaths. 1 Asthma significantly reduces patients' and families … available to improve asthma control and reduce the frequency and burden of symptoms. 2 Patients and families … Some are tailored to specific populations such as Spanish-speaking patients or inner-city families. … Families can be instructed in the important role of environmental triggers, and learn how to reduce or … Ease of use Acceptability Patient/family/instructor satisfaction What implementation outcomes
  4. effectivehealthcare.ahrq.gov/get-involved/nominated-topics/pin-the-area-of-autism-research-the-vast-majority-of-clinical-trials-conducted-to-date-have-addressed-only-the-questions-of-how-an-individual-treatment-compares-to-a-placebo-extremely-few-studies-have-been-conducted-that-make
    April 09, 2009 - Individuals with ASD and their families represent a highly vulnerable and underserved population. … A recent study on the health care experience of individuals with ASD and their families demonstrated … special health care needs, children with ASD are more likely to have unmet needs for health care and family … services, have difficulty receiving appropriate medical referrals and coordinated health care, and have families
  5. effectivehealthcare.ahrq.gov/products/children-special-needs-transition/research-protocol
    October 24, 2013 - In 2011, the American Academy of Pediatrics (AAP), the American Academy of Family Physicians (AAFP), … include a lack of time and resources to address transition issues, inadequate reimbursement, hesitancy of families … issues that will be helpful to providers, health care leaders, policymakers, and patients and their families … Voices (provides families with tools to make informed decisions) Institute for Community Inclusion … References Cooley WC, Sagerman PJ; American Academy of Physicians; American Academy of Family Physicians
  6. effectivehealthcare.ahrq.gov/products/disruptive-behavior-disorder/clinician
    August 31, 2016 - Children with DBDs may be aggressive and defiant and may struggle to get along with peers, family members … included two or more of a child component, parent component, or other component (e.g., teacher component, family … that the child's sex, maternal characteristics such as problems with depression and anger, and other family-functioning
  7. effectivehealthcare.ahrq.gov/sites/default/files/pdf/disruptive-behavior-disorder_clinician.pdf
    August 01, 2016 - Children with DBDs may be aggressive and defiant and may struggle to get along with peers, family members … included two or more of a child component, parent component, or other component (e.g., teacher component, family … that the child’s sex, maternal characteristics such as problems with depression and anger, and other family-functioning
  8. effectivehealthcare.ahrq.gov/sites/default/files/related_files/hit-patient-care_executive.pdf
    June 01, 2012 - Shared decisionmaking between patients, their families, and providers; patient-clinician communication … What are barriers or facilitators that clinicians, developers, patients, and their families or caregivers … the impact of health IT applications implemented to enable PCC is needed to give consumers, their families … What are barriers and facilitators that clinicians, developers, patients, and their families or caregivers … , preferences, and values of individual patients or on shared decisionmaking with patients, their families
  9. Woolf_ECCS2012 (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/woolf_eccs2012.pdf
    January 01, 2012 - Professor of Family Medicine Virginia Commonwealth University, Richmond, Virginia Slide 2: U.S. … o What family and friends do or recommend? o What  I [the patient]  have always done?
  10. effectivehealthcare.ahrq.gov/sites/default/files/cer-231-dementia-care-interventions-comments.pdf
    July 31, 2020 - As noted in the table, they were generally organized to correspond to the NASEM Families Caring for … members. … The use of the term “informal caregiver” devalues the work that family caregivers do. … and friends that doesn’t match the complexity of what family caregivers do today. … Table 1.1 notes CG/P may include spouses, family, friends, and volunteers.
  11. effectivehealthcare.ahrq.gov/system/files/cer-231-dementia-care-interventions-comments.pdf
    July 31, 2020 - As noted in the table, they were generally organized to correspond to the NASEM Families Caring for … members. … The use of the term “informal caregiver” devalues the work that family caregivers do. … and friends that doesn’t match the complexity of what family caregivers do today. … Table 1.1 notes CG/P may include spouses, family, friends, and volunteers.
  12. effectivehealthcare.ahrq.gov/sites/default/files/related_files/cer-231-dementia-care-interventions-disposition-comments.pdf
    July 31, 2020 - As noted in the table, they were generally organized to correspond to the NASEM Families Caring for … members. … The use of the term “informal caregiver” devalues the work that family caregivers do. … and friends that doesn’t match the complexity of what family caregivers do today. … Table 1.1 notes CG/P may include spouses, family, friends, and volunteers.
  13. effectivehealthcare.ahrq.gov/decision-aids/prostate-cancer/21.html
    June 08, 2018 - Medical decisions should always be made with your doctor, and you may want to talk with your family and
  14. effectivehealthcare.ahrq.gov/sites/default/files/related_files/autism-adolescents_surveillance.pdf
    July 01, 2014 - outcomes including family distress and family satisfaction Time period Studies published from 1980 … members of such individuals Other criteria • Original research studies that provide sufficient detail … Challenges, coping strategies, and unmet needs of families with a child with autism spectrum disorder … Brief report: Stony Brook Guidelines on the ethics of the care of people with autism and their families … Using the prevent-teach-reinforce model with families of young children with ASD.
  15. Santa_ECCS2012 (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/santa_eccs2012.pdf
    February 01, 2013 - • The Working  Group developed  lists  of top-­‐five activities in family medicine, internal … National Physicians Alliance members in each of three primary care specialties (internal medicine, family … Released Lists in April 2012 • American Academy of Allergy Asthma & Immunology • American Academy of Family … • National Hospice  and  Palliative  Care  Organization • National Partnership for Women & Families … Business  Group on Health • National Center for Farmworker Health • National Partnership for Women and Families
  16. TND-612-09-03-2013 (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/pdf/TND-612-09-03-2013.pdf
    January 01, 2013 - to support CSHCN in transitions from pediatric care to adult care and also to support the needs of familymembers/caregivers, and provide training to physicians to promote successful transition from pediatric
  17. effectivehealthcare.ahrq.gov/sites/default/files/pdf/machine-learning-quality_research.pdf
    September 01, 2012 - Families completed Family Satisfaction in the Intensive Care Unit (FS- ICU) and Quality of Dying and … member. … The response rate for family members was 55% (275 of 496) and for nurses, 89% (523/590). … CONCLUSIONS: We found no significant improvement in family-assessed quality of dying or in family satisfaction … Improving family ratings may require interventions that have more direct contact with family members
  18. effectivehealthcare.ahrq.gov/products/engaging-caregivers-mhs4
  19. effectivehealthcare.ahrq.gov/sites/default/files/pdf/palliative-care-tools_research-protocol.pdf
    April 14, 2016 - symptoms, supports quality of life, and is focused on patients with serious advanced illness and their families … An assessment tool is an instrument completed by or with patients or families, used to collect data … palliative care interventions requires reliable and valid assessment tools that matter to patients and families … care, tools may be used by providers to directly assess symptoms or other issues with patients or families … A systematic review of instruments related to family caregivers of palliative care patients.
  20. effectivehealthcare.ahrq.gov/products/trauma-child-interventions/research-protocol
    March 26, 2012 - Interventions Addressing Children Exposed to Trauma: Part 2 – Trauma Other Than Child Maltreatment and Family … Interventions for children exposed to family violence (i.e., intimate partner violence and other forms … mother’s parenting after the child witnessed or overheard marital violence and also with maltreating families … symptoms in children Attachment, Self-Regulation and Competency (ARC) is designed to treat children and families … In patients and families with limited resources and with limited psychological mindedness, acceptance

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