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effectivehealthcare.ahrq.gov/sites/default/files/related_files/mhs-IV-patient-family-engagement.pdf
July 01, 2023 - By promoting active engagement of patient and family members with their care and
authentic collaboration … members in reporting and reducing patient safety events and associated harms. … members
Patient representatives or public
representatives who are not patients
or family members … member
engagement in reporting and
reducing patient safety events
and associated harms. … that is specifically designed to promote engagement of patients and/or family members in reporting and
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effectivehealthcare.ahrq.gov/health-topics/family-history
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effectivehealthcare.ahrq.gov/sites/default/files/interactive_media_epstein_respondent.pdf
January 01, 2009 - that
establishes
a
partnership
among
practitioners,
patients
and
their
families … • Individual
autonomy
vs
autonomy-‐in-‐
relation
(family,
physician)?
… be
translatable
to
other
illnesses
• Chronic
illnesses
cluster
in
families …
o Skills
learned
by
one
family
member
might
be
adopted
by
other
… family
members
• How
can
disease-‐focused
programs
improve
self-‐management
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effectivehealthcare.ahrq.gov/sites/default/files/masks-surveillance-2-appendix-table-a-2.xlsx
March 01, 2020 - member
Mask use all the time by all family members (including index case) vs. no family members before … index case illness onset: 0.20 (0.07 to 0.60)
• Some family members vs. no family members: 0.72 (0.30 … to 1.73)
Mask use all the time by at least one family member (including index case) vs. no family members … member
Mask use all the time by at least one family member or index case vs. no family members prior … member
Primary case or family members wore mask (N95, surgical, or cloth) all the time vs. never after
-
effectivehealthcare.ahrq.gov/sites/default/files/Masks-appendix-table-b-2-surveillance-report.xlsx
March 01, 2020 - member
Mask use all the time by all family members (including index case) vs. no family members before … index case illness onset: 0.20 (0.07 to 0.60)
• Some family members vs. no family members: 0.72 (0.30 … to 1.73)
Mask use all the time by at least one family member (including index case) vs. no family members … member
Mask use all the time by at least one family member or index case vs. no family members prior … member
Primary case or family members wore mask (N95, surgical, or cloth) all the time vs. never after
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/clinical-care-protocol.pdf
January 01, 2024 - including those that are clearly
caused by systems failures, the patient and, as appropriate, the family … are willing and able, to gather evidence for
the root cause analysis; 7) inform the patient and/or family … intended to provide a transparent explanation of what caused the harm and support the
patient and family … member, or provider
requests a CRP be used
o Any event reported by patient/family claiming significant … members;
Studies limited to compensation
strategies
Comparator Usual care, pre- and post-implementation
-
effectivehealthcare.ahrq.gov/products/stakeholders-engagement-others/white-paper
September 30, 2013 - In response, many patients and families have sought to contribute to the research process, hoping either … Patients, family members, and consumer advocates also serve as advisors, informants, and partners with … members. … To focus research more directly on patient and family member needs, patient and family advocates and … They also provide patients and family members another way to become engaged in research beyond the role
-
effectivehealthcare.ahrq.gov/sites/default/files/carman-presentation.pdf
November 11, 2015 - publication to Health Affairs in 2013 that really asked us to
think, “How do we think about patient and
family … the things we are talking about today is how important a clear conceptualization of
patient and
family … We
convened about 75 stakeholders -‐-‐ patients, family members, providers,
administrators, payers, … And the roadmap became a concrete way to talk about how we get
patient and
family voices into this … How can
we connect our patients and
families into the process?
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/engaging-caregivers-appendix-b.xlsx
January 08, 2024 - Family meeting B. … about patients’ illness, medications, prognosis, disposition, and to allow opportunity for patients/ families … Families were able to page the inpatient team directly with questions or concerns immediately after discharge … Daily entries could be written by staff, patients, family members, or friends. … members to staff nurses and ICU diary team Overflow of ICU; decline in diary entries by nurses over
-
effectivehealthcare.ahrq.gov/products/dementia-nursing-home-characteristics/research-protocol
November 02, 2011 - members to meet the needs of all parties. 12,13 Family members were at a loss as to their proper role … relations. 18 Consequently, some family members vented their frustrations and were verbally aggressive … member or other person. … A cooperative communication intervention for nursing home staff and family members of residents. … Family satisfaction with nursing home care for relatives with dementia.
-
effectivehealthcare.ahrq.gov/products/family-engagement/protocol
November 27, 2019 - Increasingly, health care systems are implementing strategies to engage patients, families, and caregivers … engagement strategies that have been used to help patients, families, and caregivers manage chronic … , families, their representatives, and health professionals working in active partnership at various … What is the specific role for families and caregivers? … Partnering with Patients and Families To Design a Patient- and Family-Centered Health Care System: A
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/patient-family-engagement-protocol.pdf
December 31, 2019 - engagement strategies that have been used to help patients, families, and
caregivers manage chronic … , families, their representatives, and health professionals
working in active partnership at various … What is the specific role for families
and caregivers? … Partnering with
Patients and Families To Design a Patient- and Family-Centered Health Care System: A … Working With Patient and Families as Advisors: Implementation Handbook. 2008.
-
effectivehealthcare.ahrq.gov/get-involved/nominated-topics/chronic-kidney-disease
December 02, 2020 - part, to the need for high levels of engagement in patient care and support from care partners and/or family … members. … large dialysis organizations on evidence-based practices for engagement with CKD patients and their families … , facilitating the design of interventions with CKD patients and families in mind.
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/dementia-nursing-home-characteristics_research-protocol.pdf
November 03, 2011 - members to meet the needs of all
parties.
12,13
Family members were at a loss as to their proper … member or other person. … The quality of nursing home care: do the
opinions of family members change after implementation of … A cooperative communication
intervention for nursing home staff and family members of residents. … Family satisfaction with nursing home care for
relatives with dementia.
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/autism-interventions-future_research.pdf
September 01, 2012 - member and advocate. … members, spouse and children, and other relatives. … member and advocate. … members, spouse and children, and other relatives. … members, spouse and children, and other relatives.
-
effectivehealthcare.ahrq.gov/sites/default/files/technical-brief-36-patient-engagement-comments.pdf
August 26, 2020 - We are not interested in engaging patients
and families "for chronic conditions". … One of the ways to identify effective strategies for engaging
patients and families in addiction and … not necessarily how patients
and families want to be engaged. … I have encountered individuals,
including family members, who work in the medical field who are
forced … family member
who may be capable is my Medicare-enrolled mother with her
own health issues that affect
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/stem-cell-children-future_research.pdf
February 01, 2012 - (O)—Measures of family functioning, overall health of family members of the
transplant patient
Settings … health of family members of the
transplant patient. … Data on measures
of family functioning,
health of family members
and overall family well-
being. … Data on measures of family
functioning, health of family
members and overall family
well-being. … of family members, and overall
family well-being.
21
Table 5.
-
effectivehealthcare.ahrq.gov/products/quality-gap-palliative-hospice/research-protocol
June 27, 2011 - members and other caregivers; excellent communication about topics such as prognosis; person-centered … Organization, 9 family members of general hospice patients who had cancer and other illnesses completed … a questionnaire after their relatives died. … The survey results showed that 18.2 percent of family members noted problems with inattention to their … Outcomes related to families and caregivers of these patients (e.g., depressive symptoms of family members
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/quality-gap-palliative-hospice_research-protocol.pdf
June 27, 2011 - Organization,
9
family members of general hospice patients who had
cancer and other illnesses completed … a questionnaire after their relatives died. … The survey results
showed that 18.2 percent of family members noted problems with inattention to their … Outcomes related to
families and caregivers of these patients (e.g., depressive symptoms of family … members of ICU
patients) will also be included.
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/TND-0645-151012.pdf
August 05, 2015 - modifiers of treatment
and treatment pathways can help to optimize choices for patients and their families … Comparator(s): All treatment options
Outcome(s): Improvements in patient symptoms; improvements in family … medication side effects; decreased unintended consequences/harms associated with
therapies; decreased family … are modifiers of treatment and treatment pathways that can help to optimize
choices for patients and families … If left untreated, anxiety disorders
can cause significant impairment in children's and families' daily