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effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/autism-adolescents_research-protocol.pdf
March 29, 2011 - impact of ASD on the family and the impact of family-focused
interventions. … on the family. … members of adolescents and young adults with ASDs
• Interventions:
o Behavioral interventions … outcomes
including family distress and family satisfaction related to interventions. … either toward
adolescents and young adults with ASDs or toward their families?
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effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/prostate-cancer-risk-assessment-genes_executive.pdf
July 01, 2012 - incidence has been
observed in populations of African descent
in several countries.7 First-degree relatives … Assessment
Executive Summary
2
susceptibility genes and shared environmental factors
within these families … implications
Issues affecting use of SNP-based panels
that might negatively impact individuals,
families … Relative risk of
prostate cancer for men with affected relatives: Systematic
review and meta-analysis … Empiric risk of
prostate carcinoma for relatives of patients with prostate
carcinoma: A meta-analysis
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effectivehealthcare-admin.ahrq.gov/products/substance-use-disorders-adolescents/protocol
October 01, 2019 - characteristics
Demographics
Family and community dynamics (i.e. substance using family member … Therapies
Family behavioral therapy (FBT)
Family systems therapy (FST)
Brief strategic family … therapy (BSFT)
Functional family therapy (FFT)
Ecological family therapy
Multidimensional family … therapy (MDFT)
Ecologically based family therapy (EBFT)
Family systems network (FSN)
Educational … Family systems therapy: a family-focused therapy approach that attempts to restructure problematic family
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effectivehealthcare-admin.ahrq.gov/health-topics/bipolar-disorder
June 15, 2023 - It runs in families. Abnormal brain structure and function may also play a role.
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effectivehealthcare-admin.ahrq.gov/products/eccs-2012/white-paper
July 01, 2019 - Home
Evidence Reports
Addressing Tensions When Social/Family … SHARE:
Addressing Tensions When Social/Family … This third session addresses tensions when social/family support and evidence-based care collide. … Presentations
Making Decisions When You Disagree With the Doctor: The Social/Family Context
Laura … Louis, Missouri
View Slides in Text Format (PDF; 103 KB)
Addressing Tensions When Social/Family
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effectivehealthcare-admin.ahrq.gov/get-involved/nominated-topics/pin-the-area-of-autism-research-the-vast-majority-of-clinical-trials-conducted-to-date-have-addressed-only-the-questions-of-how-an-individual-treatment-compares-to-a-placebo-extremely-few-studies-have-been-conducted-that-mak
November 01, 2017 - Individuals with ASD and their families represent a highly vulnerable and underserved population. … A recent study on the health care experience of individuals with ASD and their families demonstrated … special health care needs, children with ASD are more likely to have unmet needs for health care and family … services, have difficulty receiving appropriate medical referrals and coordinated health care, and have families
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effectivehealthcare-admin.ahrq.gov/products/transitions-care-pediatric-adult/protocol
February 01, 2022 - often difficult and can lead to gaps in care, adverse health outcomes, and frustration for patients and families … medical care services, including primary care, for children with special healthcare needs and their families … transitions from pediatric to adult medical care for children with special healthcare needs and their families … training and other implementation strategies are available to prepare pediatric patients and their families … effectiveness, implementation strategies (including training available to providers, patients, and families
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effectivehealthcare-admin.ahrq.gov/products/autism/research-protocol
December 01, 2019 - Clinicians and families are left to choose among the interventions in part based on what is available … It is left to the families and caregivers of patients with ASD to find and assemble these pieces. … This situation presents many challenges not only to patients and families, but also to health policy … ages 2-12 with ASD, what are the short and long-term effects of available behavioral, educational, family … KQ2d: What characteristics, if any, of the family modify the effectiveness of the therapies reviewed
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effectivehealthcare-admin.ahrq.gov/health-topics/neuromuscular-disorders
June 11, 2018 - gravis
Spinal muscular atrophy
Many neuromuscular diseases are genetic, which means they run in families
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effectivehealthcare-admin.ahrq.gov/health-topics/assisted-living?page=1
June 15, 2012 - Older people or their families usually pay for it.
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effectivehealthcare-admin.ahrq.gov/products/pediatric-adolescent-cancer-survivorship/protocol
December 01, 2020 - What survivorship care resources are available for adult survivors of childhood cancer and their families … resources" includes: long-term follow-up guidelines educational materials directed at either patient/family … in-person or virtual trainings (i.e., workshops, conferences, CME courses) directed at either patient/family … Annals of family medicine. 2004 Jan-Feb;2(1):61-70. doi: 10.1370/afm.26. PMID: 15053285. … Family physician preferences and knowledge gaps regarding the care of adolescent and young adult survivors
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effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/TND-0376-140408.pdf
November 06, 2013 - Remission
Physical health outcomes
Quality of life
Clinical engagement
Individual and family … feelings about adequately addressing factors prompting
the admission
Individual and family felt … Serious Mental Illness (SMI) presents significant health and economic burdens on individuals, their
families
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effectivehealthcare-admin.ahrq.gov/sites/default/files/wysiwyg/pdf/mhs-IV-epc-grand-rounds-slides.pptx
January 01, 2023 - Discuss strategies for engaging family caregivers through structured communication to enhance the safety … Topics (2023)
16
Rapid Reviews Rapid Response
Opioid stewardship
Rapid response systems
Engaging family … education, or engagement Patient & family education, or engagement 6 RCTs
Multicomponent Multicomponent … Primary Family activation Progression to arrest during RRS activation Less likely with family activation … Caregiver: Family members and nonfamilial, informal/unpaid caregivers (e.g., friend, neighbor) who provide
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effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/ocd-protocol.pdf
August 15, 2023 - review noted that “the concept of PANDAS brings great challenges to clinicians, patients and
their families … Tailoring treatment to
specific subgroups (e.g., non-responders, high-conflict families).22
Purpose … Question 2 (Treatment of OCD)
Family functioning
• OCD Family Functioning Scale
• Family Environment … status, and
geography (e.g., urban vs. rural)
o Diagnosis of PANS/PANDAS
o OCD in first degree relatives … status, and
geography (e.g., urban vs. rural)
o Diagnosis of PANS/PANDAS
o OCD in first degree relatives
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effectivehealthcare-admin.ahrq.gov/sites/default/files/pdf/autism_research-protocol.pdf
December 09, 2009 - Clinicians and families are left to choose among the interventions in part based on
what is available … It is left to the families and
caregivers of patients with ASD to find and assemble these pieces. … This situation presents many
challenges not only to patients and families, but also to health policy … ages 2-12 with ASD, what are the short and long-term effects of available
behavioral, educational, family … KQ2d: What characteristics, if any, of the family modify the effectiveness of the therapies
reviewed
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effectivehealthcare-admin.ahrq.gov/sites/default/files/therapies-for-autism-spectrum-disorder-2-9-2010.pdf
January 01, 2010 - Clinicians and families are left to choose among the interventions in part based on
what is available … It is left to the families and
caregivers of patients with ASD to find and assemble these pieces. … This situation presents many
challenges not only to patients and families, but also to health policy … ages 2-12 with ASD, what are the short and long-term effects of available
behavioral, educational, family … KQ2d: What characteristics, if any, of the family modify the effectiveness of the therapies
reviewed
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effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/long-term-care-adults_executive.pdf
November 01, 2012 - HCBS also include educational and
supportive group services for consumers or their families. … members and paid assistance. … members.5,8 Paid LTC services are financed through both
public and private means. … Care
through HCBS also includes educational and supportive
group services for consumers or their families … (direct out-of-pocket and insurance spending
and costs of informal care provided by family
members
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effectivehealthcare-admin.ahrq.gov/products/eccs-2013/white-paper
July 01, 2019 - Saba Ph.D. , is a professor of Clinical Family and Community Medicine at the University of California … He is the Associate Director of the Family and Community Medicine Residency at San Francisco General … family therapists and supervisors, and conducting clinical research in bulimia and substance abuse. … In 1983, he joined the behavioral science faculty of the Department of Family and Community Medicine … communication, cultural competence, chronic illness in a family context, and team-based care.
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effectivehealthcare-admin.ahrq.gov/sites/default/files/related_files/dementia-nursing-home-characteristics_executive.pdf
October 01, 2012 - members; however,
increasing care needs in later stages of
the illness often lead to placement in … Because long-
term care settings are highly varied,
people with dementia and their families,
who … , such as by bringing the family peace of mind. … where to
place a family member who has dementia and who can no
longer be cared for at home. … Informal
caregivers are unpaid individuals who provide care to
relatives or friends.7
Interventions
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effectivehealthcare-admin.ahrq.gov/news/pain-management
December 01, 2023 - successfully address pain, resulting in profound physical, emotional, and societal costs to them and their families