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cdsic.ahrq.gov/cdsic/patients
May 22, 2025 - evidence-based tools that align with the needs, preferences, and values of patients, caregivers, and families
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cdsic.ahrq.gov/sites/default/files/2025-03/Copy%20of%20Final_MO_Patient%20Preference%20Inventory_6.7.24_508.xlsx
January 01, 2025 - member) Pan-European survey Not specified Assesses preferences for electronic health data storage, access … member)
• Research access (e.g., consent processes to share data for research)
• Level of access Patient … family input), “you made the decisions after considering your family’s opinion” (some family input), … “you and your family made the decisions together” (equally shared decisions with family), “your family … The role of patients' families in treatment decision-making among adult cancer patients in the Sultanate
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cdsic.ahrq.gov/
July 02, 2025 - evidence-based tools that align with the needs, preferences, and values of patients, caregivers, and families
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cdsic.ahrq.gov/sites/default/files/2024-05/Patient%20Centered%20CDS%20Infographic_508_1.pdf
January 01, 2024 - Through the Right
Channel(s)
Education &
Support
At the
Right
Time(s)
The Right
Information
Family
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cdsic.ahrq.gov/sites/default/files/2025-03/SRF%20Standards%20for%20Patient%20Preferences.pdf
January 01, 2025 - )
"family decision making"
"caregiver decision making"
"notification, partner"
"decision making … , shared"
"family involvement"
"preference clinician"
Use of decision aids/tools "decision aid … member) "proxy access"
"designee access"
"data sharing"
Research access (e.g., consent processes … Resident prefers family or significant other
involvement in care discussions [MDSv3]. … Active advance directive with verification by family (finding). Accessed June
27, 2023.
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cdsic.ahrq.gov/sites/default/files/2023-10/Final%20OO%20Patient%20Outcomes%20of%20PC%20CDS%20to%20AHRQ%2010.6.23.pdf
January 01, 2023 - This helps to ensure selected measures both reflect the
priorities of patients and families and support … The app could connect to the EHR to leverage information about a family or personal
history of breast … members). … Patient and family engagement: a framework for understanding the elements and
developing interventions … Person and Family Engagement Toolkit: A Guide for Measure Developers.
Published April 2023.
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cdsic.ahrq.gov/sites/default/files/2024-08/TPC%20Patient%20Preferences%20Workflow%20Lifeflow_8.15.2.pdf
January 01, 2024 - Care Preferences: Patients’ preferences related to more
routine healthcare, such as vaccinations, family … Enable designated family members and caregivers to provide preference information on behalf
of patients … One informant recommended that designated
family members and caregivers should be allowed to provide … members,
because there’s just not that capacity for some patients to do that. … Or if you’re really sick …
just making it easier to be able to allow family members, or whomever you
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cdsic.ahrq.gov/sites/default/files/2025-07/CDSiC%20Topic%20Highlight_PC%20CDS%20and%20SDM_508_0.pdf
January 01, 2025 - Patients and caregivers (family members and other caregivers) can learn
how digital health tools can
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cdsic.ahrq.gov/sites/default/files/2024-07/Final%20MO%20Patient%20Prioritization%20of%20Measurement%20Areas%207.18.24.pdf
January 01, 2024 - should be
“recognition of the outside influence[s] that prevent the patient from adhering… things like family … This was echoed in the conversation during the
discussion panel regarding how caregivers and other family … members can impact trust in a
clinician and the knowledge an individual gained from their clinician … related to a host of factors including awareness
of patient preferences, quality of communication, and family … Decision-making in palliative care: patient and
family caregiver concordance and discordance—systematic
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cdsic.ahrq.gov/sites/default/files/2025-03/Final_MO_Patient%20Preference%20Report_6.7.24.pdf
January 01, 2025 - )
• Inclusion of others in decisions
(e.g., caregiver/family
involvement)
• Use of decision aids … • Clinician access (e.g.,
coordination, health information
exchange)
• Designee access (e.g., family … member)
• Research access (e.g., consent
processes to share data for
research)
• Level of access … resuscitation
• Intubation and ventilation
End-of-life
care
• End-stage treatment
• Alignment with family … Patient- and family-centered care interventions for improving the
quality of health care: a review of
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cdsic.ahrq.gov/sites/default/files/2023-09/FINAL%20OO%20PC%20CDS%20SDM%20Report.pdf
January 01, 2023 - In addition,
PC CDS that incorporates patient-specific data (e.g., genetic information, family history … The platform incorporates family history, race, ethnicity, and breast
density to generate a risk profile … support techniques[MESH])
AND (shared[tw] OR patient[Mesh] OR patient*[tw] OR patient*centered OR
family … [tw] OR physician patient relations[Mesh] OR surrogate[tw] OR
professional family relations[Mesh] OR … professional family relations[Mesh])
Google
Published within past 10 years,
English
electronic
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cdsic.ahrq.gov/sites/default/files/2024-09/PAIGE%20Assessment%20Report_Public%20Version.pdf
January 01, 2024 - incorporate email functionality to enable users to email the
AI-generated summary to themselves and/or to a family … member or caregiver to provide a
record of their communication. … functionality that would enable
users to email the PAIGE-generated summary to themselves and/or to a family … member or
caregiver. … They noted that this would enable family members or caregivers to review the
summary for accuracy, which
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cdsic.ahrq.gov/sites/default/files/2024-09/AHRQ%20Final%20TPC%20SDOH%20Action%20Plan.pdf
January 01, 2024 - Health-related social needs included in these guidelines focus on factors
related to housing, family … also identifies risk factors related to the domains of SDOH, as well
as financial strain, employment, family … Or is this
something that's going to help me and my family and my community?’... … Kaiser Family Foundation. May 10, 2018. … Patient and family participation in clinical
guidelines development: the Cystic Fibrosis Foundation
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cdsic.ahrq.gov/sites/default/files/2023-08/Final%20TPC%20P3_Source%20Credibility%20to%20AHRQ%208.2.23_508c%20Version.pdf
January 01, 2023 - enhance PC CDS source credibility for clinician and
patient end users (e.g., patients themselves, their families … these end users may seek
additional information (e.g., from media or non-clinician sources such as family … CDS source credibility for
both clinicians and patient audiences (e.g., patients themselves, their families … and vet evidence.33 For example, a patient may
ignore clinicians’ suggestions to start a statin if family … members reported (in contrast to the
evidence) seeing no clinical benefit from the medication and
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cdsic.ahrq.gov/sites/default/files/2024-09/SRF_Patient%20Preference%20Standardization%20Priorities_508.pdf
January 01, 2024 - )
• Inclusion of others in decisions
(e.g., caregiver/family involvement)
• Use of decision aids … data
• Clinician access (e.g., coordination, health
information exchange)
• Designee access (e.g., family … member)
• Research access (e.g., consent processes
to share data for research)
• Level of access … resuscitation
• Intubation and ventilation
End-of-life
care
• End-stage treatment
• Alignment with family
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cdsic.ahrq.gov/sites/default/files/2025-06/TPC%20Topic%20Highlight%20Patient%20Preferences.pdf
January 01, 2025 - During the visit, the patient and their doctor
discuss the patient’s preferences and risk factors like family
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cdsic.ahrq.gov/sites/default/files/2023-09/TPC_Codesign%20Report%20to%20AHRQ%20FINAL.pdf
January 01, 2023 - steering committees, communities of practice, study
management groups, working groups, patient and/or family … A decision aid to support family carers of people living with dementia
towards the end-of-life: Coproduction … Patient and family engagement: A framework for understanding the
elements and developing interventions … Family Medicine and Community
Health. 2021;9(Suppl 1). doi:10.1136/fmch-2021-001181
86 Robert G, … Patient and family engagement: a framework for understanding the
elements and developing interventions
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cdsic.ahrq.gov/sites/default/files/2023-10/TPC%20Pat%20Engage%20Handbook%20Final.pdf
January 01, 2023 - Consultative groups include working groups, steering committees,
patient and/or family advisory groups … How should
we manage information needs, family anxiety, depression, and breathlessness for those
affected … A decision aid to support family carers of people living
with dementia towards the end-of-life: Coproduction
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cdsic.ahrq.gov/sites/default/files/2023-08/SMD%20Workflow%20Measurement%20Approaches%20Report_to%20AHRQ%208.9.23_508.pdf
January 01, 2023 - These
terms are used interchangeably, with definitions ranging from “the percent of patients and family … members who reported knowing their personal condition-specific risk factors”59 to “active involvement … Assessing the effectiveness of engaging patients and
their families in the three-step fall prevention
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cdsic.ahrq.gov/sites/default/files/2023-09/SMD%20PC%20CDS%20Performance%20Measurement%20Inventory_FINAL_9.19.23.xlsx
January 01, 2023 - Family engagement (number of utterances or decision making events that families engaged) 1.