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www.ahrq.gov/sites/default/files/wysiwyg/CHIPRA_15-P002-EF-revised.pdf
March 01, 2015 - Measures: Family Experiences With Care Coordination Measure Set (FECC)
Measures: Family Experiences … Evidence Base for Focus of the Measures
Comprehensive, well-coordinated care improves patient and family experiences … established by demonstrating convergent validity with previously validated
measures of outpatient care experiences
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www.ahrq.gov/diagnostic-safety/resources/issue-briefs/dxsafety-patients-source-understanding-dx-error-vol2-4.html
June 01, 2023 - Understanding patient and family perspectives on diagnostic experiences also requires recognition that … the diagnostic experiences being recounted can often be complex and will sometimes never be fully resolved … But additional research may help further enhance our capacity to learn from patient experiences with … The first involves potentially fine-tuning elicitation techniques to learn from experiences of patients … These circumstances also challenge patients and families to interpret diagnostic experiences and make
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www.ahrq.gov/diagnostic-safety/resources/issue-briefs/dxsafety-patients-source-understanding-dx-error-vol1-3.html
June 01, 2023 - Research
Conclusions
References
The small body of research on patient-reported experiences … What Research Reveals About Patient/Family Reporting of Diagnostic Experiences
Past research shows … A handful of population-based surveys of Americans’ experiences with medical errors document cases that … Based on the source of uneven reporting, methods of eliciting diagnostic experiences can be adapted to … as patients are describing experiences they identified as a family member of the patient.
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www.ahrq.gov/diagnostic-safety/resources/issue-briefs/dxsafety-patients-source-understanding-dx-error-vol2-1.html
June 01, 2023 - Remediation of Diagnostic Errors
Executive Summary
Introduction
Eliciting Patients’ Diagnostic Experiences … reliably report on a range of adverse medical events, rigorous methods are needed to elicit patient experiences … To ensure that a large number of patient experiences related to diagnosis are collected, it is important … experiences into existing patient experience surveys fielded by health plans, hospitals, long-term care … Responsibility for eliciting patient experiences should be divided in a strategic manner between:
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www.ahrq.gov/news/blog/ahrqviews/healthcare-costs-childhood-experiences.html
August 01, 2024 - from AHRQ leaders
Healthcare Spending 26 Percent Higher Among Adults Who Had Adverse Childhood Experiences … It is a tragic reality that children who endure traumatic experiences—such as household members' substance … Adverse childhood experiences (ACEs) are strong predictors of low-income status, risky health behaviors … Patients with a history of ACEs can become distressed or even re-traumatized because of their healthcare experiences
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www.ahrq.gov/topics/care-coordination.html
January 01, 2014 - The Care Coordination Quality Measure for Primary Care (CCQM-PC) is a survey of adult patients' experiences … was developed to comprehensively assess patient perceptions of the quality of their care coordination experiences
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www.ahrq.gov/diagnostic-safety/resources/issue-briefs/dxsafety-terminology8.html
April 01, 2025 - understanding are incomplete without including the perspective of patients, but we cannot learn from their experiences … diagnostic processes and the emotional toll of uncertainty related to diagnostic delays. 45 Their lived experiences … Communication breakdowns may be characterized by patients as experiences where they felt dismissed, ignored … Some descriptions of patient experiences may be proxy for diagnostic excellence .
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www.ahrq.gov/patient-safety/settings/labor-delivery/perinatal-care/stories.html
July 01, 2023 - the Toolkit
Toolkit for Improving Perinatal Safety
"AHRQ Safety Program for Perinatal Care: Experiences … From the Frontline" describes the implementation experiences of five labor and delivery (L&D) units … AHRQ Safety Program for Perinatal Care: Experiences From the Frontline
Full color (PDF, 1.67 MB)
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www.ahrq.gov/cahps/surveys-guidance/american-indian/index.html
July 01, 2024 - 2005, is a standardized questionnaire that asks adult American Indians to report on and rate their experiences … The survey's purpose is to assess patients' experiences with tribal outpatient clinics or other clinics … To capture information about patients' experiences in domains not addressed by this survey, users may … AHRQ) and RAND Corporation developed a survey instrument that would allow the CNHS to assess patients' experiences
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www.ahrq.gov/pqmp/measures/index.html?page=1
June 13, 2025 - Collaborative for Innovation in Quality Measurement (NCINQ) NQF Endorsement Number: 2803
Family Experiences … Care Measures for Children with Complex Needs (COE4CCN) NQF Endorsement Number: 2847
Family Experiences … Care Measures for Children with Complex Needs (COE4CCN) NQF Endorsement Number: 2844
Family Experiences … Care Measures for Children with Complex Needs (COE4CCN) NQF Endorsement Number: 2845
Family Experiences … Care Measures for Children with Complex Needs (COE4CCN) NQF Endorsement Number: 2850
Family Experiences
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www.ahrq.gov/sites/default/files/wysiwyg/cahps/news-and-events/events/20140603_QI/3_rachel_grob.pdf
June 02, 2025 - Balanced: Reflect all experiences, both positive and
negative
Fulsome: Include the scope of experiences … Positive Experiences: 2 Questions
(Second with embedded expectations)
Negative Experiences: 2 Questions … (past 12 months)
Positive experiences: 1 Question with
narrative guide (what happened, how did it … with relate to”
Response to Experiences: 2 Questions−
www.cahps.ahrq.gov
Learning from Patient … Negative experiences: 1 Question with narrative guide
Assessing relationship with provider: “interact
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www.ahrq.gov/sites/default/files/wysiwyg/cahps/news-and-events/podcasts/effects-costs-enrollees-vonglahn-20120101-transcript.pdf
June 02, 2025 - The Effects of Out-of-Pocket Costs on Enrollees' Experiences With Health Plans: Implications for Consumer … release date 1/1/12 www.talkingquality.ahrq.gov
The Effects of Out-of-Pocket Costs on
Enrollees’ Experiences … We better understand now that it’s
masking differences in members’ experiences. … That it’s important to understand that people who are
having these experiences of paying claims and … But also, because it’s more
discreet, that you’re picking up a signal about people’s experiences when
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www.ahrq.gov/cahps/surveys-guidance/item-sets/elicitation/child-hospital-narratives/development.html
December 01, 2023 - story from the parents and guardians of hospitalized children about the important aspects of their experiences … identify important domains of care and consulting with experts in the measurement of pediatric care experiences … Study participants responded to a survey about their child’s hospitalization experiences either online … Evaluation of a protocol for eliciting narrative accounts of pediatric inpatient experiences of care. … Evaluation of a protocol for eliciting narrative accounts of pediatric inpatient experiences of care.
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www.ahrq.gov/cahps/item-sets/index.html
October 01, 2024 - For example, a user of the Clinician & Group Survey may want to ask patients to comment on their experiences … A user of the Health Plan Survey may want to ask enrollees about their experiences with interpreter services … For example, supplemental items ask about experiences with claims processing, health information technology … Obtaining more information about different types of experiences. … Gathering information about the experiences of a specific population.
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www.ahrq.gov/sites/default/files/wysiwyg/topics/dxsafety-patient-experience-vol2.pdf
July 01, 2023 - Who Should Report Their Diagnostic Experiences? … How Should Timeframes Be Handled for Eliciting Diagnostic Experiences? … Patients and families may unevenly report experiences for many reasons. … Describing Which Experiences Are Relevant
■ It is essential to elicit experiences related to both the … Americans’ Experiences
With Medical Errors and Views on Patient Safety.
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www.ahrq.gov/cahps/bibliography/index.html
November 01, 2024 - publications about the development and use of CAHPS surveys and other topics related to assessing patients’ experiences … Narrative comments about pediatric inpatient experiences yield substantial information beyond answers … Narrative comments about pediatric inpatient experiences yield substantial information beyond answers … Association of race/ethnicity and patient care experiences with healthcare utilization and healthcare … Association of race/ethnicity and patient care experiences with healthcare utilization and healthcare
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www.ahrq.gov/pqmp/implementation-qi/toolkit/child-hcahps/overview.html
July 01, 2021 - Providers and Systems (CAHPS ® ) Hospital Survey (better known as HCAHPS) asks people about their recent experiences … The survey asks questions that are designed to understand the needs and experiences of pediatric patients … users to guide administration and use of the CAHPS Child Hospital Survey to assess the inpatient care experiences
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www.ahrq.gov/sites/default/files/wysiwyg/policymakers/chipra/demoeval/what-we-learned/chipra-primary-care-physician-reporting.pdf
December 01, 2016 - Primary Care Physicians' Experiences With and Attitudes Toward Pediatric Quality Reporting
QUALITY … OF CARE
Primary Care Physicians’ Experiences With and
Attitudes Toward Pediatric Quality Reporting … ABSTRACT
A
C
OBJECTIVE: To assess primary care providers’ experiences
with and attitudes toward pediatric-focused … There were
no significant associations between demonstration exposure and
experiences or attitudes. … PHYSICIAN EXPERIENCES WITH QUALITY REPORTING
For the sample as a whole, approximately 80% of pri-
mary
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www.ahrq.gov/sites/default/files/wysiwyg/professionals/quality-patient-safety/hais/tools/perinatal-care/perinatal_care_toolkit_lowvision.pdf
May 01, 2017 - AHRQ Safety Program for Perinatal Care: Experiences from the Frontline
Home The Program This … Report Case Studies Toolkit Definitions
AHRQ SAFETY PROGRAM
FOR PERINATAL CARE:
EXPERIENCES FROM … This
report describes implementation experiences of several L&D units that successfully
implemented … The
national implementation team has captured these experiences through visits to these
organizations … Building on prior experiences.
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www.ahrq.gov/sites/default/files/wysiwyg/professionals/quality-patient-safety/hais/tools/perinatal-care/perinatal_care_toolkit_fullcolor.pdf
May 01, 2017 - AHRQ Safety Program for Perinatal Care: Experiences from the Frontline
Home The Program This … Report Case Studies Toolkit Definitions
AHRQ SAFETY PROGRAM
FOR PERINATAL CARE:
EXPERIENCES FROM … This
report describes implementation experiences of several L&D units that successfully
implemented … The
national implementation team has captured these experiences through visits to these
organizations … Building on prior experiences.