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effectivehealthcare.ahrq.gov/sites/default/files/ahrq_community_forum_webinar_branson.pdf
October 13, 2011 - <#> Significant Work. Extraordinary People. SRA.
Outreach to Patient and
Consumer Representatives
October 13, 2011
Carolyn Branson, Manager
Consumer Reviewer Administration
2
Topics
• Who are they?
• What characteristics do they share?
• How can you identify the “right” perso…
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effectivehealthcare.ahrq.gov/sites/default/files/delilberative-methods-design-carman.pdf
June 01, 2012 - Slide 30
Deliberative Methods Experiment
Agency for Healthcare Research and Quality
Community Forum
Slide 31
Background & objectives of experiment
Background
o Started in August 2010
o Literature review, Technical Expert Panel, formative research to inform
approach
Objectives
o Expand the …
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/clinical-care-protocol.pdf
January 01, 2024 - effectively after future events;5, 6 organizations’
culture of safety,7 as well as their medicolegal experiences
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/trauma-informed-care-protocol.pdf
April 19, 2023 - Background and Objectives for the Systematic Review
Exposure to adverse and potentially traumatic experiences … systems, including healthcare systems, recognize the potential consequences of trauma
exposure and/or experiences … Definition of Terms
ACEs Adverse childhood experiences
ADHD Attention deficit/hyperactivity disorder
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effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_white-paper.pdf
September 01, 2013 - formation of a support and information-sharing network of patients or families who
shared a set of experiences … to join the network, report and store (and display)
information, search for patients with similar experiences … translate data
into information that can be shared with the network, such as aggregate summaries of
experiences … included individuals recommended by key informants
who represented a broad range of perspectives and experiences
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effectivehealthcare.ahrq.gov/sites/default/files/technical-brief-34-health-worker-certification-comments.pdf
March 27, 2020 - especially for undocumented CHWs and/or
promotores de salud, or background checks for CHWs with shared
experiences … consider the
ramifications of legal documentation
status, as well as background checks
for CHWs with experiences
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/documentation-burden-protocol.pdf
July 26, 2023 - metrics related to documentation burden have been intended for
application primarily to physician work experiences … job role that
likely already faces substantial documentation burdens of its own.2 Understanding the
experiences
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effectivehealthcare.ahrq.gov/sites/default/files/medical-test-reviews-choosing-outcomes.ppt
June 01, 2012 - Also consider who actually experiences the outcome in addition to the patient:
Family members (e.g., … the Population of Interest When Choosing Outcomes
The individual being tested is not the only one who experiences … Investigators are encouraged to consider the outcome origins, range of outcomes, and who experiences … Practice Question 4 (2 of 2)
Practice Question 4 (2 of 2)
When determining who experiences the outcome … The individual being tested is not the only person who experiences testing outcomes.
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/medical-test-reviews-choosing-outcomes.ppt
June 01, 2012 - Also consider who actually experiences the outcome in addition to the patient:
Family members (e.g., … the Population of Interest When Choosing Outcomes
The individual being tested is not the only one who experiences … Investigators are encouraged to consider the outcome origins, range of outcomes, and who experiences … Practice Question 4 (2 of 2)
Practice Question 4 (2 of 2)
When determining who experiences the outcome … The individual being tested is not the only person who experiences testing outcomes.
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effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/healthcare-algorithms-agenda-for-March-23.pdf
October 08, 2025 - (NORC)
Framing questions:
What works, what’s missing (including research gaps), additional
experiences
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effectivehealthcare.ahrq.gov/sites/default/files/pdf/labor-nitrous-oxide_research-protocol.pdf
August 24, 2011 - regarding
the effectiveness of nitrous oxide for the management of pain relief based on personal
experiences … Listening to Mothers II: Report of the
Second National US Survey of Women’s Childbearing Experiences
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/ced-appendix-3.xlsx
June 24, 2022 - Drug development processes could be improved by applying lessons learned and best practices from those experiences … can be an important source of evidence generation because they focus on patient priorities and lived experiences … can be an important source of evidence generation because they focus on patient priorities and lived experiences
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/deliberative-methods-demonstration-executive-131125.pdf
November 01, 2013 - receive information that is intentionally neutral and respectful of the full
range of underlying values, experiences … evidence with experience—the doctor’s accumulated
experience and clinical judgment, personal lived experiences
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/labor-nitrous-oxide_executive.pdf
August 01, 2012 - The complexity of labor
pain: Experiences of 278 women. … Maternal expectations
and experiences of labour pain - options of 1091 Finnish parturients.
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/cer-208-bipolar-adults-disposition-comments.pdf
August 07, 2018 - We are sorry to
hear of your unfortunate
experiences. … We are sorry to
hear of your unfortunate
experiences. … We are sorry to
hear of your unfortunate
experiences. … We are sorry to
hear of your unfortunate
experiences. … We are sorry to
hear of your unfortunate
experiences.
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effectivehealthcare.ahrq.gov/sites/default/files/transcript_deliberativemethodswebinar.pdf
April 19, 2012 - getting representation on the
basis of the extent to which groups or folks with certain
15
experiences … setting -- if you’re
talking about health and healthcare priority setting,
people with illness experiences … versus urban or
suburban, for instance, they will bring different things to
the table, different experiences … say that it’s important to be
aware that people might be reluctant to participate because
of past experiences … And we’re
also going to ask those who participate in the post-
intervention survey to assess their experiences
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/women-hiv_disposition-comments.pdf
November 21, 2016 - Public Reviewer #2
(Laura Cheever)
Methods Important to also note that the experiences of a single … social worker may not be representative of
experiences of other staff members in the same
facility … or experiences of staff members at other
facilities. … As conducted, this section most closely
represents the experiences of an HIV-infected woman
who is … (Laura Cheever)
Findings This description outlines the clinic protocols and not
necessarily the experiences
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effectivehealthcare.ahrq.gov/sites/default/files/pdf/palliative-care-tools_research-protocol.pdf
April 14, 2016 - ▪ Experiences with questionnaires or other assessment tools, and whether or how they
improved their
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effectivehealthcare.ahrq.gov/sites/default/files/oct_13_webinar_transript_10-13-11.pdf
October 13, 2011 - So during the panel discussion, we each shared our thoughts
and insights on this topic given our experiences … This allows them to learn
from others’ experiences and also find out about other
programs and opportunities
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effectivehealthcare.ahrq.gov/sites/default/files/pdf/autism-medical-update_research-protocol.pdf
February 16, 2016 - Interventions targeting sensory challenges are typically described as
designed to provide controlled sensory experiences … adult-directed approaches, conducted in either clinic-
based or naturalistic settings, that use sensory experiences … or adult-directed approaches, conducted in clinic-
based or naturalistic settings, that use sensory experiences … Interventions targeting sensory challenges: clinic-based or adult-directed
approaches that use sensory experiences