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cdsic.ahrq.gov/cdsic/patientfocusedmeasures
September 01, 2023 - patient health journey and patient-reported health outcomes relevant to PC CDS, which includes a range of experiences … an eye toward patient-centeredness requires accounting for the effects of PC CDS on patients’ lived experiences
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cdsic.ahrq.gov/cdsic/year3-period-performance-report
September 30, 2024 - Committee and four Stakeholder Center Workgroups, which comprise of 32 members representing diverse experiences
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cdsic.ahrq.gov/cdsic/implementation-case-studies
August 01, 2024 - This report summarizes key challenges, takeaways, and solutions based on the experiences of nine AHRQ-funded
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cdsic.ahrq.gov/sites/default/files/2024-09/CDSiC%20Chart%20Book%202024_508.pdf
January 01, 2024 - unstructured or semi-structured
formats and open-ended questions to elicit stories about
end-users’ experiences … designed to solicit feedback on prototype usability
• User diaries that allow end-users to document their experiences … for categorizing the cards,
end-users vote on the model they felt most accurately
reflects patient experiences
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cdsic.ahrq.gov/cdsic/base-period-performance-report
October 01, 2023 - CDSiC’s 26-member Steering Committee, four Workgroups comprising 49 stakeholders who represent diverse experiences
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cdsic.ahrq.gov/cdsic/patient-preferences-standardization
August 01, 2024 - acceptability to patients of specified alternatives or choices among structures, processes, outcomes, or experiences
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cdsic.ahrq.gov/sites/default/files/2022-05/Final%20Operations%20Center%20Operational%20Framework.pdf
January 01, 2022 - The Steering Committee includes a multidisciplinary group of experts who will draw on their research
experiences … , practical experiences, lived experiences and deep connections within their respective
content areas
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cdsic.ahrq.gov/sites/default/files/2023-09/TPC_Codesign%20Report%20to%20AHRQ%20FINAL.pdf
January 01, 2023 - stakeholder
Group
Patient-facing
Single-stakeholder groups consist of people with shared
experiences … used to collect important information about target end-users’ needs,
preferences, priorities, or experiences … While empathy interviews can provide useful insights into end-users’ experiences and needs,
they provide … categorizing the cards, end-users voted on the model they felt
most accurately reflected patient experiences … Diary Studies: Understanding Long-Term User Behavior and Experiences. 2016.
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cdsic.ahrq.gov/sites/default/files/2024-02/OY1%20Operations%20Center%20Operational%20Framework.pdf
January 01, 2024 - The Steering Committee includes a multidisciplinary group of experts who will draw on their research
experiences … , practical experiences, lived experiences and deep connections within their respective
content areas
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cdsic.ahrq.gov/cdsic/patients
May 22, 2025 - their caretakers, and clinicians to make decisions together to improve patient health and healthcare experiences
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cdsic.ahrq.gov/sites/default/files/2025-03/Operations%20Center%20OY2%20Operational%20Framework_508.pdf
January 01, 2025 - The Steering Committee includes a multidisciplinary group of experts who will draw on their research
experiences … , practical experiences, lived experiences and deep connections within their respective
content areas
-
cdsic.ahrq.gov/sites/default/files/2023-10/TPC%20Pat%20Engage%20Handbook%20Final.pdf
January 01, 2023 - semistructured formats and
open-ended questions to elicit stories about end users’ past and personal experiences … developed a set of publicly
available resources to help researchers engage and document patients’ experiences … informative in terms of providing
opportunities to share patient stories that contextualize lived experiences … This
publication describes patients’ experiences with participating in group concept mapping, assessed … CDS researchers, developers, and implementers
must be sensitive to and aware of the range of lived experiences
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cdsic.ahrq.gov/sites/default/files/2024-07/OY1_FINAL%20TPC%20Patient%20Perspectives%20Generative%20AI.pdf
January 01, 2024 - Findings
In general, participants’ views on the use of AI in healthcare were dependent on previous experiences … Findings
Patient and caregiver participants had a range of experiences with AI. … patient’s
willingness to use AI tools for healthcare would depend on their comfort levels and past experiences … doubts about their ability to effectively deploy new AI-powered tools that will
enhance patients’ experiences … While we aimed to include individuals from diverse backgrounds and with various lived experiences,
our
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cdsic.ahrq.gov/sites/default/files/2023-10/Final%20OO%20Patient%20Outcomes%20of%20PC%20CDS%20to%20AHRQ%2010.6.23.pdf
January 01, 2023 - “Patient health journey” refers to the range of experiences a
patient has throughout the course of accessing … eye toward patient-centeredness requires accounting for the effects of PC CDS
on 1) patients’ lived experiences … This report conceptualizes the “patient health journey” as the range of
experiences a patient has throughout … – sleeping
• Social Health
o Protocol for Responding to and Assessing Patient Assets, Risks, and Experiences … requires accounting for the effects of PC CDS
on 1) patients’ perceptions of, engagement with, and experiences
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cdsic.ahrq.gov/cdsic/patient-prioritization-measurement-areas
July 24, 2024 - Patients prioritized 15 patient health journey measurement areas related to patients’ lived experiences
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cdsic.ahrq.gov/sites/default/files/2024-07/Final%20MO%20Patient%20Prioritization%20of%20Measurement%20Areas%207.18.24.pdf
January 01, 2024 - Measures of the patient health journey assess 15 areas related to patients’ lived experiences
across … truly impacting care processes.5 This prior work
defined the patient health journey as the range of experiences … care,
including shared decision making.
6
assess 15 areas related to patients’ lived experiences … preliminary work with a small sample of patients and patient advocates, who may not
speak to all the experiences
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cdsic.ahrq.gov/sites/default/files/2024-09/SRF_Patient%20Preference%20Standardization%20Priorities_508.pdf
January 01, 2024 - acceptability to patients of specified alternatives or
choices among structures, processes, outcomes, or experiences … acceptability to patients of specified alternatives or
choices among structures, processes, outcomes, or
experiences … demographics, care experience (specifically the patient’s goals, preferences, and priorities for overall
experiences … acceptability to patients of
specified alternatives or choices among structures, processes, outcomes, or experiences … which patient preference concepts should be prioritized for
standardization based on the views and experiences
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cdsic.ahrq.gov/sites/default/files/2025-03/Copy%20of%20Final_MO_Patient%20Preference%20Inventory_6.7.24_508.xlsx
January 01, 2025 - use of EHRs and HIE, including privacy and security preferences for HIE, as well as perceptions and experiences … Patient Preferences for Patient Participation (the 4Ps) 12 Asks patients to rank importance of various experiences … Assessing and reporting patient participation by means of patient preferences and experiences. 2020. … platform Pilot-tested Adults Hospital Non-specific No N/A No N/A Areas were developed using adverse experiences
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cdsic.ahrq.gov/sites/default/files/2024-09/CDSiC%20Infographic%202024_508_0.pdf
January 01, 2024 - Patient Preferences Are Essential to Bringing the Patient Into Focus
Patient Preferences Are
Essential to Bringing
the Patient Into Focus
Patient preferences are an essential component of the patient voice and their
subsequent use in patient-centered clinical decision support
(PC CDS) can advance pati…
-
cdsic.ahrq.gov/sites/default/files/2025-03/SRF%20Standards%20for%20Patient%20Preferences.pdf
January 01, 2025 - capture of patient
preferences and how standardization of these data impact health outcomes, care experiences … acceptability to patients of specified alternatives
or choices among structures, processes, outcomes, or experiences … There is some coverage for preferences related to care experiences, patient-provider trust, and
the … for the patient
to record their preference for a provider with specific characteristics, skills, or experiences … capture of patient preferences and how standardization of these data impact health
outcomes, care experiences