-
effectivehealthcare.ahrq.gov/sites/default/files/gibbons.pdf
January 01, 2010 - • Non-‐Hispanic Whites:
My Space: 22%
Facebook: 7%
Slide
6: User Experience … An Overlooked Disparities Determinant
• The most common
mistake is that companies think “good experience … “The biggest misconception is
that companies
have a choice to invest in their
user’s
experience … Slide
8: User Experience
and Health Care
Disparities
• Poor “user experience” in
health … • The health care user experience extends beyond the point of “care” to the broader patient
home and
-
effectivehealthcare.ahrq.gov/sites/default/files/branson-text.pdf
October 13, 2011 - options and/or the science of the disease
§ Are able to be objective and move beyond their own personal experience … for Selecting Patient Representatives
§ Determine specific information needed:
§ Patient/caregiver experience … § Advocacy experience
§ Ability to represent other patients/survivors
§ Knowledge and skills related … to disease area
§ Alternate disease experience
§ Work experience
§ Education
§ Interview representatives … patient/consumer representative in any activity:
§ Provides a broader perspective of the individual experience
-
effectivehealthcare.ahrq.gov/sites/default/files/ahrq_community_forum_webinar_branson.pdf
October 13, 2011 - SRA.
4
Characteristics of Patient
Representatives
• Have personal experience with the
disease … and/or the science of the disease
• Are able to be objective and move beyond
their own personal experience … – Advocacy experience
– Ability to represent other patients/survivors
– Knowledge and skills … related to disease area
– Alternate disease experience
– Work experience
– Education
• Interview … – Provides the patient/consumer representative
with a colleague in the experience
Significant
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/transparency-mental-health_research-protocol.pdf
September 01, 2016 - If yes, what barriers did you experience?
4. … [If relevant] Your experience of study conduct and processes may be valuable to
others attempting a … [If relevant] What barriers did you experience or anticipate in using a clinical trials
registry to … [If relevant] What barriers did you experience or anticipate in using a clinical trials
registry to … [If relevant] What barriers did you experience or anticipate in using a clinical trials
registry to
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/stakeholders-engagement-others_slides-2011.pdf
January 01, 2011 - The AHRQ panel consisted of patients and consumers who have had the
experience of representing the … By definition, the individual must
have personal experience with the disease in question. … They should be objective and
able to move beyond their own personal experience to represent others. … Based on this exercise, the researcher can
develop a specific description of the experience needed … A key point to successful collaborations was making the experience “personal.”
-
effectivehealthcare.ahrq.gov/sites/default/files/thompson_eccs2012.pdf
January 01, 2012 - health providers or simply to
what the health system
proscribes
Reliance on data consistent with experience … of evidential preferences
in health
decisions.
• Discuss the role and importance of personal experience … and Health Decisions
(1 of 2)
• Testimonials and statements related to personal, family or group experience … Slide 19: Personal Experience and Health Decisions
• Individuals reflect on their experience in terms … were more likely to report trust when evidential statements
were consistent
with their personal
experience
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/clinical-care-protocol.pdf
January 01, 2024 - Programs for responding after patients experience harm in the course of their health care
were identified … additional details.1
Overview of the Topic
How healthcare organizations respond after patients experience … 4the clinician(s)/organization, 2,3 clinicians’ ability to learn and adapt after their patients
experience … Associations Between Organizational
Communication and Patients' Experience of Prolonged Emotional Impact … Programs for responding after patients experience harm in the course of their health care were identified
-
effectivehealthcare.ahrq.gov/sites/default/files/product/pdf/practical-considerations.pdf
March 01, 2022 - This white paper describes the team’s
experience in implementing the protocol that was developed a priori … AHRQ’s Experience ................................................................................... … AHRQ’s Experience
2.1 Interim Reports Before the Original Systematic Review Is
Complete
The starting … More
time and experience are needed to understand the impact on accuracy or burnout. … AHRQ’s Experience
2.1 Interim Reports Before the Original Systematic Review Is Complete
2.2 Scope
-
effectivehealthcare.ahrq.gov/sites/default/files/module_iv1.ppt
May 29, 2025 - Experience among investigators with engaging these types of stakeholders is varied. … Investigators with the most experience engaging a wide range of stakeholders often share the view that … *
Challenge: Managing Bias
Everyone is biased
Bias can represent:
Personal experience
Unique … The EHC Program is actively seeking to understand those biases in the form of stakeholder experience, … One way to support their involvement is:
Recognize stakeholders as experts in their own experience/perspective
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/TND_0122_06-29-2009.pdf
January 01, 2009 - including maternal and
child health outcomes, efficacy of pain relief, satisfaction with the birth experience … of pain relief, maternal satisfaction with pain relief, maternal
satisfaction with labor and birth experience … What are the effects on the birth experience and maternal and child health
outcomes?
3.
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/cer-269-respectful-maternity-care-disposition-comments.pdf
January 02, 2024 - of birth, rather than a lack of negative experience? … definition of a Positive childbirth experience: Women want a positive
childbirth experience that fulfils … However, given that a positive birth experience has been elevated by
the WHO as a reasonable goal for … This review focuses on patient experience
measures for care; however, patient experience is a function … Consider noting that in the US, even the most privileged individuals experience worse
outcomes than
-
effectivehealthcare.ahrq.gov/sites/default/files/module-iv-skills-for-successful-engagement.pdf
May 29, 2025 - Experience
among investigators with engaging these types of stakeholders is varied. … Investigators with the most experience engaging a wide range of stakeholders often share the
view that … Slide 20
Challenge: Managing Bias
§ Everyone is biased
§ Bias can represent:
§ Personal experience … The EHC Program is actively seeking to understand
those biases in the form of stakeholder experience … One way to support their involvement is:
• Recognize stakeholders as experts in their own experience
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/dyspnea_research.pdf
April 01, 2010 - .........................................1
Part 1: Quality Measures of the Palliative Dyspnea Care Experience … Part 1: Quality Measures of the Palliative Dyspnea
Care Experience
A dyspnea quality measure review … These assessments may be sufficiently sensitive for initially
monitoring the dyspnea experience and … However, not all patients who experience dyspnea are able to reliably self-report because of
impairments … The symptom experience involves
both the interpreted perception of the sensation of
dyspnea and a personal
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/TND_0260_07-16-2010.pdf
January 01, 2010 - Staff-Generated PICO
Population(s): Patients with or without hearing loss who experience the symptoms … )
Patients who experience the symptoms of chronic tinnitus often suffer from interference in
-
effectivehealthcare.ahrq.gov/sites/default/files/cer-249-malnutrition-hospitalized-adults-evidence-summary.pdf
October 01, 2021 - o Patients requiring ICU care and diagnosed with malnutrition (using SGA)
are likely to experience prolonged … Patients requiring ICU care and diagnosed with malnutrition (using Mini
Nutritional Assessment [MNA]) may experience … traumatic injury and screened at risk of
malnutrition (using Nutritional Risk Screening [NRS]-2002) may
experience … o Patients hospitalized with cancer and diagnosed with malnutrition (using
SGA) may experience prolonged
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/cer-249-malnutrition-hospitalized-adults-evidence-summary_0.pdf
October 01, 2021 - o Patients requiring ICU care and diagnosed with malnutrition (using SGA)
are likely to experience prolonged … Patients requiring ICU care and diagnosed with malnutrition (using Mini
Nutritional Assessment [MNA]) may experience … traumatic injury and screened at risk of
malnutrition (using Nutritional Risk Screening [NRS]-2002) may
experience … o Patients hospitalized with cancer and diagnosed with malnutrition (using
SGA) may experience prolonged
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/deliberative-methods-demonstration-executive-131125.pdf
November 01, 2013 - Student facilitators with no prior
experience in facilitation or health care moderated these groups; … Other comments
indicated that participants equated evidence with experience—the doctor’s accumulated … experience and clinical judgment, personal lived experiences, or common sense. … Impact of
deliberative experience included whether participants thought the process affected their … For participant reports on the impact
of the deliberative experience, CD reported higher scores for
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/home-dialysis-ESKD-rapid-research.pdf
April 01, 2025 - as there has been very little
contemporary experience in the United States. … It
also became clear that there was almost no contemporary U.S. experience with staff-assisted
home … Initial anecdotal and pilot experience
(which is buttressed by international
experience) suggests that … Experience with
maintenance peritoneal dialysis in the home. … Tell us about your role/experience with home dialysis?
2.
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/key-informant-interviews-research.pdf
December 19, 2017 - • What the experience was like participating in the interview and/or group stakeholder
discussion … Why don’t we ask him what his experience was like?’ … This
experience was in sharp contrast to their experience in similar discussion groups sponsored by … be able to remember or assess their experience. … If you could briefly walk us through that experience, it would be very
helpful.
-
effectivehealthcare.ahrq.gov/sites/default/files/pdf/palliative-care-tools_research-protocol.pdf
April 14, 2016 - (Text Box) as well as a ninth domain comprised of tools
that cross multiple domains (i.e., patient experience … The Key Informants have extensive
experience in diverse aspects of tool development, application, and … reviews, ranging from
patient- and caregiver-reported outcomes to quality indicators and patient experience … ▪ Use of assessment tools or surveys, such as ratings of symptoms or a questionnaire
about their experience … Measuring Experience With End-of-Life Care: A
Systematic Literature Review.