-
cdsic.ahrq.gov/cdsic/Rachel-Richesson
of multi-national multi-site clinical research and epidemiological studies, including the NIH Rare Diseases … including formal ontologies and heterogeneous data integration), the design of patient registries, and rare diseases
-
cdsic.ahrq.gov/sites/default/files/2023-10/CDSiC%20Innovation%20Core-PRO%20Dashboards%20Overview%20Revised_Small_1.pdf
January 01, 2023 - developed dashboards depicting hypothetical use cases of PRO CDS:
Depression
Inflammatory Bowel Disease … ≥ 15, or who indicated suicidality on question 9
(where administered).
7
Inflammatory Bowel
Disease … 18
IBD Care Model
For our second use case, we focused on
PROMs related to inflammatory bowel
disease … The Short Inflammatory Bowel Disease Questionnaire: a quality of life instrument
for community physicians … managing inflammatory bowel disease.
-
cdsic.ahrq.gov/cdsic/Lipika-Samal
decision support tools for primary care physicians in order to improve the quality and safety of chronic disease … majority of her time is devoted to research on clinical decision support in the area of chronic kidney disease
-
cdsic.ahrq.gov/cdsic/Maria-Michaels
Maria Michaels, MBA, PMP
CDSiC Steering Committee
Centers for Disease … Maria Michaels, MBA, PMP, is a Public Health Advisor at the Centers for Disease
-
cdsic.ahrq.gov/cdsic/pro-dashboard-overview
October 01, 2023 - demonstrate a dashboard using PROs for depression and another dashboard using PROs for inflammatory bowel disease … Overall Assessment Scores section that includes a graph displaying the distribution of total scores by disease
-
cdsic.ahrq.gov/sites/default/files/2023-09/SMD%20PC%20CDS%20Performance%20Measurement%20Inventory_FINAL_9.19.23.xlsx
January 01, 2023 - Integrated displays to improve chronic disease management in ambulatory care: A SMART on FHIR application … Integrated displays to improve chronic disease management in ambulatory care: A SMART on FHIR application … Decision quality instruments (DQIs) developed for specific decisions and diseases (e.g., Hip-Knee Osteoarthritis … outcomes Completion of patient documentation: number of documented international classification of diseases … Integrated displays to improve chronic disease management in ambulatory care: A SMART on FHIR application
-
cdsic.ahrq.gov/sites/default/files/2023-09/FINAL%20OO%20PC%20CDS%20SDM%20Report.pdf
January 01, 2023 - Retrieved from:
https://www.healthwise.net
Decision aid for
people with
Chronic Kidney
Disease … and signs
of Coronary Heart
Disease
Coronary Artery
Disease
Treatment Patients with
coronary … artery
disease and kidney
disease and their
care teams
Website Risk factors and treatment
adapts … Decision Aid for
Chronic Kidney Disease & Signs of
Coronary Heart Disease. … Known,
progressive chronic
kidney disease
(CKD). 2.
-
cdsic.ahrq.gov/sites/default/files/2023-08/Exec%20Sum_SMD%20Workflow%20Measurement%20Approaches%20Report%20to%20AHRQ%208.9.23_508.pdf
January 01, 2023 - Use
Knowledge Changes in knowledge about a disease/condition, risks and benefits, treatment
options … Scant attention to
measures composed of patient-reported
outcomes/items to assess aspects, such as
disease … Conduct research and utilize disease activity and
functional status measures that can be adapted for … study-specific assessment
tools and may support intervention efforts to
improve knowledge about a disease … Adaptation of
American College of Rheumatology rheumatoid arthritis disease activity and functional
-
cdsic.ahrq.gov/sites/default/files/2023-10/TPC%20Pat%20Engage%20Handbook%20Final.pdf
January 01, 2023 - publicly
available resources to help researchers engage and document patients’ experiences with chronic
diseases … in a modified Delphi process to select measures reflective of
value in care for inflammatory bowel disease … Digital Technology for Adolescents and Young Persons with
Inflammatory Bowel Disease PSP Protocol. … The impact of introducing patient-reported
inflammatory bowel disease symptoms via electronic survey … Development of balanced whole system value
measures for inflammatory bowel disease care in the IBD Gorus
-
cdsic.ahrq.gov/sites/default/files/2024-09/SRF_Patient%20Preference%20Standardization%20Priorities_508.pdf
January 01, 2024 - Disease-specific treatment preferences (such as preferences for
receiving a transplant for advanced … Conduct and participate in further research to advance disease-specific validated
preference solicitation … Participants shared preferences related to location of clinical care and health services and
disease-specific … patient with an aggressive form of cancer whose
treatment preferences evolved over the course of
her disease … As an example, a patient with end-stage renal disease may initially indicate a preference
for dialysis
-
cdsic.ahrq.gov/cdsic/Mustafa-Ozkaynak
supported by the Agency for Healthcare Research and Quality, National Library of Medicine, and Center for Disease
-
cdsic.ahrq.gov/sites/default/files/2025-03/Final_MO_Patient%20Preference%20Report_6.7.24.pdf
January 01, 2025 - This column describes the patient population the tool is designed for.
5
Condition/Disease Context … This column describes whether a tool is tailored to a specific
condition or disease, or if it is agnostic … Condition/Disease Context. … Nearly half (n=20) of the tools in the Inventory were developed for
a specific condition/disease, with … Condition- /disease-specific tools span a variety of disease or condition contexts,
with cancer and
-
cdsic.ahrq.gov/sites/default/files/2023-10/Final%20OO%20Patient%20Outcomes%20of%20PC%20CDS%20to%20AHRQ%2010.6.23.pdf
January 01, 2023 - ), well-
controlled disease, and poorly controlled disease (Table 3).11
Table 3. … The
database includes different query fields to qualify searches
including disease category, disease … doi:10.7326/M15-0971
106 Centers for Disease Control and Prevention. … Retrieved from:
https://www.hopkinsmedicine.org/health/conditions-and-diseases/heart-failure-symptoms … survivors/patients/side-effects-of-treatment.htm
https://www.hopkinsmedicine.org/health/conditions-and-diseases
-
cdsic.ahrq.gov/cdsic/Wesley-Sargent
Sargent, Jr., EdD, EdS, MA
CDSiC Steering Committee
Centers for Disease Control and
-
cdsic.ahrq.gov/sites/default/files/2024-07/Final%20MO%20Patient%20Prioritization%20of%20Measurement%20Areas%207.18.24.pdf
January 01, 2024 - and worked with cancer advocacy or cancer research organizations; two
participants worked with rare disease … or condition, but with rare diseases or complex situations, knowledge may not be available. … As participants
noted, the importance of some of these measurement areas depends on the disease
stage … Knowledge What patients know about their disease or condition, including how to
manage and monitor it … Self-Management The activities or behaviors patients take to control their disease or
condition (e.g
-
cdsic.ahrq.gov/sites/default/files/2024-06/Final_MO_Patient%20Preference%20Report_6.7.24_0.pdf
January 01, 2024 - This column describes the patient population the tool is designed for.
5
Condition/Disease Context … This column describes whether a tool is tailored to a specific
condition or disease, or if it is agnostic … Condition/Disease Context. … Nearly half (n=20) of the tools in the Inventory were developed for
a specific condition/disease, with … Condition- /disease-specific tools span a variety of disease or condition contexts,
with cancer and
-
cdsic.ahrq.gov/cdsic/Angela-Dobes
toward precision medicine and improve the lives of children and adults affected by inflammatory bowel disease
-
cdsic.ahrq.gov/cdsic/patient-preference-measurement-tools-inventory
June 20, 2024 - of each instrument/tool: Delivery method Extent of adoption in healthcare Use population Condition/disease
-
cdsic.ahrq.gov/sites/default/files/2023-08/SMD%20Workflow%20Measurement%20Approaches%20Report_to%20AHRQ%208.9.23_508.pdf
January 01, 2023 - Use
Knowledge Changes in knowledge about a disease/condition, risks and benefits, treatment
options … Usability and the rapid deployable infectious disease decision support
system. … Adaptation of
American College of Rheumatology rheumatoid arthritis disease activity and functional … Effectiveness of mobile applications on medication adherence in
adults with chronic diseases: A systematic … Functions and outcomes of personal health
records for patients with chronic diseases: A systematic review
-
cdsic.ahrq.gov/cdsic/people/steering-committee
Sargent, Jr., EdD, EdS, MA Centers for Disease Control and Prevention (CDC)
Patrick Schoen, MSc