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effectivehealthcare.ahrq.gov/sites/default/files/related_files/pilot-projects-supplementing-white-paper.pdf
December 01, 2024 - limited data usability … Children’s
Hospital of
Philadelphia
Epic (2017–
2022)
• Data were extracted from the Clinical Data … review of commonly used
data … standardization of variable responses across
care sites, incomplete data dictionary, missing
data, … https://pcornet.org/data/
https://cosmos.epic.com/
https://www.ahrq.gov/data/hcup/index.html
https://
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/machine-learning-tools-appendix-d.xlsx
January 01, 2024 - extraction Data extraction: descriptive data + results NA xml data elements Human extraction NR 311 … Web-based Free but requires registration NR NR NR Data extraction Data extraction: results NA xml data … extraction data extraction: descriptive data + results; relationships among data elements NA xml data … extraction data extraction: descriptive data NA html data elements (highlighted text fragments) Human … extraction data extraction: descriptive data NA html data elements (highlighted text fragments) Human
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effectivehealthcare.ahrq.gov/sites/default/files/pdf/dcis-mri-utilization_research.pdf
August 01, 2012 - Data Points 13: Use of Preoperative Breast MRI among older women with ductal carcinoma in situ and locally … invasive breast cancer
Use of Preoperative Breast MRI Data Points # 13
Use of preoperative MRI among … Data Points • # 13 • Use of Preoperative Breast MRI
6
AUTHORS
Todd M. … The interpretation and reporting of these data
are the sole responsibility of the authors. … The SEER-
Medicare Data Files were used in accordance with a
data use agreement from the National Cancer
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effectivehealthcare.ahrq.gov/sites/default/files/pdf/dcis-prognostic-tests_research.pdf
August 22, 2012 - Data Points 15: Breast Cancer Diagnostic Workup: Prognostic factor testing among older women with ductal … data do not
allow separating of ER only, PR only, and
combined ER/PR testing. … See Appendices B, C, and D for data on years
2004-2006. … See Appendices
B, C, and D for data on 2004-2006. … The SEER-Medicare data files were used in ac-
cordance with a data use agreement from the National
Cancer
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/ced-appendix-3.xlsx
June 24, 2022 - Duke-M Data Practice appropriate data hygiene perhaps using tools developed for using claims data (e.g … data. … NEST_data • Data Permission: Appropriate agreements are in place for all data used for RWD/RWE, data … of EHR data collected and used as electronic source data in clinical investigations
FDA Data Ensure … FDA Data Asses Data Reliability (Data Accrual and Data Assurance) and Relevance
FDA Data Address Gaps
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/monitoring-programs-rapid-research-appendix-c.xlsx
May 31, 2025 - and advancement of the profession Drug shortages resulting from the COVID-19 pandemic Integrated big data … gathering, consolidation, and interpretation because of multiple data sources in different formats
4 … standards
3) Data inaccuracy
4) Duplication of core activities
5) Lack of information technology
6) … And can provide:
1) Increased access to data across the organization
2) Improved data security
3) Decision … support
4) Data analysis capabilities Facilitators for preparing for implementation
1) Motivation to
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effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/registry-of-patient-registries_research.pdf
April 15, 2019 - Data Sources. … common data definitions. … )
Data harmonization
Provides basic recommended data elements for 18 domains (e.g.,
demographics, … , and
data standards used in cancer research.54
Diabetes Data Strategy (Diabe-DS) Data harmonization … NINDS Common Data Elements.
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/ptsd-pharm-non-pharm-treatment-update-disposition-comments.pdf
August 28, 2024 - data
summary. … These data are
available in the
evidence tables. … Additional information
on secondary
publication data was
added to the data
abstraction section in … We have
added clarification on
data presented for
suicide outcomes. … Our main
focus is on the
comprehensive data
available through this
project.
-
effectivehealthcare.ahrq.gov/sites/default/files/clifford.pdf
May 29, 2025 - This is a patient who chose to make their data public. … And I can show you six
months of this user's data. … So there's a lot of data here. … All this data is stored. … So we have all of this data on the backend in
longitudinal data tables.
-
effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/stakeholder-report_0824.pdf
August 01, 2024 - data on clinician knowledge and bias. … high-
quality data and methods. … Collecting Data on Clinician Knowledge, Attitudes, Ableism, and Bias
Need for more data on
clinician … Collecting Data on Context and Accommodations
Lack of data on patients’
situational context
• What … • The benefits of exploring data harmonization to enable the analysis of data from multiple
studies
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/machine-learning-tools-white-paper.pdf
December 01, 2024 - Data Extracted for Studies of Data Extraction, Risk of Bias Assessment, Analysis,
and Writing (Excel … and Data Management
Data from included studies were extracted into a Google Sheet. … data from the full
publication … ChatPDF failed to extract data
from the tables of continuous data. … summarize data.
-
effectivehealthcare.ahrq.gov/sites/default/files/tech-brief-32-pharm-non-pharm-ptsd.pdf
May 14, 2019 - This data element is captured in outcomes, as
we abstracted data on depression measures. … than lumping all of the data into a single data element. … Future iterations of the
abtracted data may see separate data
elements for these categories as this … Future iterations of the
extracted data may see separate data
elements for these categories as this … and/or
trying to sort data.
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/misuse-adhd-prescription-rapid-research.pdf
July 01, 2025 - Analysis of data from the U.S. … https://www.samhsa.gov/data/report/2023-nsduh-annual-national-report
https://www.samhsa.gov/data/report … https://www.samhsa.gov/data/report/2022-nsduh-annual-national-report
https://www.samhsa.gov/data/report … Faraone,201926
Data source: U.S. … Unclear, “data
available for 98” unclear how many did
not respond
Wong,202269
Kerr, 202380
Data
-
effectivehealthcare.ahrq.gov/sites/default/files/ebctandcfinal.pdf
May 29, 2025 - as an entry complies with appropriate policies, procedures and protections
for access to relevant data … Subject to applicable terms regarding release and use of data, AHRQ, through its Contracting Officer, … U.S.C 401 or 402 and acknowledgement of Government sponsorship (including contract number) to
the data … when such data are delivered to the Government, as well as when the data are published or
deposited … others acting on its behalf, a paid-up, nonexclusive,
irrevocable, worldwide license for all such data
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/white-paper-machine-learning-tools-v2.pdf
July 01, 2025 - and Data Management
Data from included studies were extracted into a Google Sheet. … to extract data from the tables of
continuous data. … of data analysis. … Extraction and Data Management
2.5 Data Synthesis
3. … Data Extracted for All Studies
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/ced-topic-refinement.pdf
November 01, 2022 - • “Real-world data are the data relating to patient health status and/or the
delivery of health care … , data registry, data source, data
sufficiency, data validation, design, bias, blinding, censoring, … J Data source When feasible and appropriate for answering the CED question,
data for the study should … Data use No existing requirement Perceived need for a data validity
requirement to improve scientific … We
also clarified that secondary
data are “existing data.”
K.
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/cer-235-pharma-nonpharma-ptsd-update-summary.pdf
November 01, 2020 - A
comprehensive data repository allows future systematic reviews to easily identify
includable studies … and extract data relevant to their review … • Reporting was incomplete for many data elements in published studies: less than
half of studies … research gaps to determine future
research priorities and encourage researchers to adopt standard data … Limitations
Many data elements were not reported or were reported in an inconsistent manner
across
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effectivehealthcare.ahrq.gov/sites/default/files/related_files/screening-counseling-interventions-protocol-amendment.pdf
February 05, 2025 - Data Abstraction and Data Management
For studies that meet our inclusion criteria, we will extract and … and verify all data extracted by Claude 2. … Data Synthesis
We will summarize data narratively, structuring the synthesis of the evidence
following … Youth Risk Behavior
Survey: data summary & trends report. … /data/yrbs/pdf/YRBS_Data-Summary-Trends_Report2023_508.pdf
https://www.samhsa.gov/data/report/2021-nsduh-annual-national-report
-
effectivehealthcare.ahrq.gov/sites/default/files/selection-of-data-sources-chapter-8.pptx
January 01, 2013 - Secondary Data (1 of 3)
Secondary Data (1 of 3)
Many secondary data that are used for comparative … Secondary Data (3 of 3)
Secondary Data (3 of 3)
Regulatory Data
The U.S. … Repurposed Trial Data or Data From Completed Observational Studies
A vast amount of data are collected … of data. … An alternative to data pooling is data networking, sometimes referred to as virtual data networks or
-
effectivehealthcare.ahrq.gov/sites/default/files/related_files/primary-healthcare-spending-disposition-comments.pdf
May 17, 2024 - The VHA does
not use MEPS
data. … This was not the result of limited data or different
data specifications, but rather different values … must
reprogram their data pulls. … in APCDs, and
whether self-funded data is included in MEPS data
for the purpose of measuring primary … And we do have data since mid
1990s with Dr Barbara Starfield’s data and NASEM 2021
report showing