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  1. effectivehealthcare.ahrq.gov/sites/default/files/related_files/pilot-projects-supplementing-white-paper.pdf
    December 01, 2024 - limited data usability … Children’s Hospital of Philadelphia Epic (2017– 2022) • Data were extracted from the Clinical Data … review of commonly used data … standardization of variable responses across care sites, incomplete data dictionary, missing data, … https://pcornet.org/data/ https://cosmos.epic.com/ https://www.ahrq.gov/data/hcup/index.html https://
  2. effectivehealthcare.ahrq.gov/sites/default/files/related_files/machine-learning-tools-appendix-d.xlsx
    January 01, 2024 - extraction Data extraction: descriptive data + results NA xml data elements Human extraction NR 311 … Web-based Free but requires registration NR NR NR Data extraction Data extraction: results NA xml data … extraction data extraction: descriptive data + results; relationships among data elements NA xml data … extraction data extraction: descriptive data NA html data elements (highlighted text fragments) Human … extraction data extraction: descriptive data NA html data elements (highlighted text fragments) Human
  3. effectivehealthcare.ahrq.gov/sites/default/files/pdf/dcis-mri-utilization_research.pdf
    August 01, 2012 - Data Points 13: Use of Preoperative Breast MRI among older women with ductal carcinoma in situ and locally … invasive breast cancer Use of Preoperative Breast MRI Data Points # 13 Use of preoperative MRI among … Data Points • # 13 • Use of Preoperative Breast MRI 6 AUTHORS Todd M. … The interpretation and reporting of these data are the sole responsibility of the authors. … The SEER- Medicare Data Files were used in accordance with a data use agreement from the National Cancer
  4. effectivehealthcare.ahrq.gov/sites/default/files/pdf/dcis-prognostic-tests_research.pdf
    August 22, 2012 - Data Points 15: Breast Cancer Diagnostic Workup: Prognostic factor testing among older women with ductal … data do not allow separating of ER only, PR only, and combined ER/PR testing. … See Appendices B, C, and D for data on years 2004-2006. … See Appendices B, C, and D for data on 2004-2006. … The SEER-Medicare data files were used in ac- cordance with a data use agreement from the National Cancer
  5. Ced-Appendix-3 (xls file)

    effectivehealthcare.ahrq.gov/sites/default/files/related_files/ced-appendix-3.xlsx
    June 24, 2022 - Duke-M Data Practice appropriate data hygiene perhaps using tools developed for using claims data (e.g … data. … NEST_data • Data Permission: Appropriate agreements are in place for all data used for RWD/RWE, data … of EHR data collected and used as electronic source data in clinical investigations FDA Data Ensure … FDA Data Asses Data Reliability (Data Accrual and Data Assurance) and Relevance FDA Data Address Gaps
  6. effectivehealthcare.ahrq.gov/sites/default/files/related_files/monitoring-programs-rapid-research-appendix-c.xlsx
    May 31, 2025 - and advancement of the profession Drug shortages resulting from the COVID-19 pandemic Integrated big data … gathering, consolidation, and interpretation because of multiple data sources in different formats 4 … standards 3) Data inaccuracy 4) Duplication of core activities 5) Lack of information technology 6) … And can provide: 1) Increased access to data across the organization 2) Improved data security 3) Decision … support 4) Data analysis capabilities Facilitators for preparing for implementation 1) Motivation to
  7. effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/registry-of-patient-registries_research.pdf
    April 15, 2019 - Data Sources. … common data definitions. … ) Data harmonization Provides basic recommended data elements for 18 domains (e.g., demographics, … , and data standards used in cancer research.54 Diabetes Data Strategy (Diabe-DS) Data harmonization … NINDS Common Data Elements.
  8. effectivehealthcare.ahrq.gov/sites/default/files/related_files/ptsd-pharm-non-pharm-treatment-update-disposition-comments.pdf
    August 28, 2024 - data summary. … These data are available in the evidence tables. … Additional information on secondary publication data was added to the data abstraction section in … We have added clarification on data presented for suicide outcomes. … Our main focus is on the comprehensive data available through this project.
  9. PATIENTSLIKEME (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/clifford.pdf
    May 29, 2025 - This is a patient who chose to make their data public. … And I can show you six months of this user's data. … So there's a lot of data here. … All this data is stored. … So we have all of this data on the backend in longitudinal data tables.
  10. effectivehealthcare.ahrq.gov/sites/default/files/wysiwyg/stakeholder-report_0824.pdf
    August 01, 2024 - data on clinician knowledge and bias. … high- quality data and methods. … Collecting Data on Clinician Knowledge, Attitudes, Ableism, and Bias Need for more data on clinician … Collecting Data on Context and Accommodations Lack of data on patients’ situational context • What … • The benefits of exploring data harmonization to enable the analysis of data from multiple studies
  11. effectivehealthcare.ahrq.gov/sites/default/files/related_files/machine-learning-tools-white-paper.pdf
    December 01, 2024 - Data Extracted for Studies of Data Extraction, Risk of Bias Assessment, Analysis, and Writing (Excel … and Data Management Data from included studies were extracted into a Google Sheet. … data from the full publication … ChatPDF failed to extract data from the tables of continuous data. … summarize data.
  12. effectivehealthcare.ahrq.gov/sites/default/files/tech-brief-32-pharm-non-pharm-ptsd.pdf
    May 14, 2019 - This data element is captured in outcomes, as we abstracted data on depression measures. … than lumping all of the data into a single data element. … Future iterations of the abtracted data may see separate data elements for these categories as this … Future iterations of the extracted data may see separate data elements for these categories as this … and/or trying to sort data.
  13. effectivehealthcare.ahrq.gov/sites/default/files/related_files/misuse-adhd-prescription-rapid-research.pdf
    July 01, 2025 - Analysis of data from the U.S. … https://www.samhsa.gov/data/report/2023-nsduh-annual-national-report https://www.samhsa.gov/data/report … https://www.samhsa.gov/data/report/2022-nsduh-annual-national-report https://www.samhsa.gov/data/report … Faraone,201926 Data source: U.S. … Unclear, “data available for 98” unclear how many did not respond Wong,202269 Kerr, 202380 Data
  14. Ebctandcfinal (pdf file)

    effectivehealthcare.ahrq.gov/sites/default/files/ebctandcfinal.pdf
    May 29, 2025 - as an entry complies with appropriate policies, procedures and protections for access to relevant data … Subject to applicable terms regarding release and use of data, AHRQ, through its Contracting Officer, … U.S.C 401 or 402 and acknowledgement of Government sponsorship (including contract number) to the data … when such data are delivered to the Government, as well as when the data are published or deposited … others acting on its behalf, a paid-up, nonexclusive, irrevocable, worldwide license for all such data
  15. effectivehealthcare.ahrq.gov/sites/default/files/related_files/white-paper-machine-learning-tools-v2.pdf
    July 01, 2025 - and Data Management Data from included studies were extracted into a Google Sheet. … to extract data from the tables of continuous data. … of data analysis. … Extraction and Data Management 2.5 Data Synthesis 3. … Data Extracted for All Studies
  16. effectivehealthcare.ahrq.gov/sites/default/files/related_files/ced-topic-refinement.pdf
    November 01, 2022 - • “Real-world data are the data relating to patient health status and/or the delivery of health care … , data registry, data source, data sufficiency, data validation, design, bias, blinding, censoring, … J Data source When feasible and appropriate for answering the CED question, data for the study should … Data use No existing requirement Perceived need for a data validity requirement to improve scientific … We also clarified that secondary data are “existing data.” K.
  17. effectivehealthcare.ahrq.gov/sites/default/files/related_files/cer-235-pharma-nonpharma-ptsd-update-summary.pdf
    November 01, 2020 - A comprehensive data repository allows future systematic reviews to easily identify includable studies … and extract data relevant to their review … • Reporting was incomplete for many data elements in published studies: less than half of studies … research gaps to determine future research priorities and encourage researchers to adopt standard data … Limitations Many data elements were not reported or were reported in an inconsistent manner across
  18. effectivehealthcare.ahrq.gov/sites/default/files/related_files/screening-counseling-interventions-protocol-amendment.pdf
    February 05, 2025 - Data Abstraction and Data Management For studies that meet our inclusion criteria, we will extract and … and verify all data extracted by Claude 2. … Data Synthesis We will summarize data narratively, structuring the synthesis of the evidence following … Youth Risk Behavior Survey: data summary & trends report. … /data/yrbs/pdf/YRBS_Data-Summary-Trends_Report2023_508.pdf https://www.samhsa.gov/data/report/2021-nsduh-annual-national-report
  19. effectivehealthcare.ahrq.gov/sites/default/files/selection-of-data-sources-chapter-8.pptx
    January 01, 2013 - Secondary Data (1 of 3) Secondary Data (1 of 3) Many secondary data that are used for comparative … Secondary Data (3 of 3) Secondary Data (3 of 3) Regulatory Data The U.S. … Repurposed Trial Data or Data From Completed Observational Studies A vast amount of data are collected … of data. … An alternative to data pooling is data networking, sometimes referred to as virtual data networks or
  20. effectivehealthcare.ahrq.gov/sites/default/files/related_files/primary-healthcare-spending-disposition-comments.pdf
    May 17, 2024 - The VHA does not use MEPS data. … This was not the result of limited data or different data specifications, but rather different values … must reprogram their data pulls. … in APCDs, and whether self-funded data is included in MEPS data for the purpose of measuring primary … And we do have data since mid 1990s with Dr Barbara Starfield’s data and NASEM 2021 report showing

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