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digital.ahrq.gov/sites/default/files/docs/page/2_DimensionsofBusinessPractices_1.pdf
June 16, 2021 - – Security administration policies and procedures require periodic review by data
owners of access … Security number, or gender—using exact (identical
match of data elements) and deterministic (exact … Dimensions of Business Practice:
Established data integrity processes, policies, and procedures ( … – Data backups are securely transported and stored off site, and recovery of data
from backups is … privileges to their systems and commonly maintained data
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digital.ahrq.gov/sites/default/files/docs/page/2_DimensionsofBusinessPractices_0.pdf
June 16, 2021 - – Security administration policies and procedures require periodic review by data
owners of access … Security number, or gender—using exact (identical
match of data elements) and deterministic (exact … and between
entities or individuals)
Legal documentation related to data integrity
Vendors or … – Data backups are securely transported and stored off site, and recovery of data
from backups is … privileges to their systems and commonly maintained data
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digital.ahrq.gov/ahrq-funded-projects/ahrq-patient-reported-outcome-challenge-competition-support
January 01, 2023 - Digital applications like the winners of the AHRQ Step Up App Challenge are transformative for PRO data … Technology
Consumer Health Informatics
SMART/FHIR
Mobile App
Patient-Generated Health Data … Most PRO data are collected via pen and paper, making the data difficult for patients and researchers … Developing an easily adoptable tool that collects and shares standardized data may solve this problem … , allowing data exchange across providers and direct use by clinicians and patients.
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digital.ahrq.gov/sites/default/files/docs/page/guide-to-evaluating-hie-projects-section-3.pdf
June 16, 2021 - Relationship Between Usage and Value
Users of HIE are generally interested in obtaining patient data … available
and the comprehensiveness of that data. … HIE
projects to obtain patient participation, add exchange partners, train users, and accumulate
data … , compared with not having access to HIE data.
14-15, 21
This
can be done by collecting data prospectively … data with data collected after HIE project
implementation.
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digital.ahrq.gov/ahrq-funded-projects/choice-coalition-hospices-organized-investigate-comparative-effectiveness
January 01, 2023 - Philadelphia
Pennsylvania
Project Dates
09/30/2012 - 09/29/2014
Technology
Data … CHOICE is a collaborative of hospices that have agreed to share their data for research purposes. … The project established that extracting EMR data from hospice on a large scale was feasible. … Key data elements included demographic data, indicators of illness severity, health outcomes, and indicators … of Hospices Organized to Investigate Comparative Effectiveness Document Type: Report Technology: Data
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digital.ahrq.gov/sites/default/files/docs/page/2006Overhage_051711comp.pdf
June 16, 2021 - • Public schools
• Pharmacies
• PBMs
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a
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at
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n
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an
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0% … management
Hospital
Data
repository
Health
Information
Exchange
Network
applications
Payers … Labs
tpatient RX
Physician office
Ambulatory centers Public health
Data access and use
Hospitals … Services
Clinical Quality Data Services (cont'd.)
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digital.ahrq.gov/telehealth
January 01, 2023 - sources for tracking medication adherence, but accuracy and relevance of data and data sources is still … Evaluating different forms of data collection to determine medication adherence include examining data … Associating Prescription Data with Pharmacy/Payer Data
The primary method used to determine medication … D data, timeliness of data, failed matches and patient-specific instructions. … and creating a standard tool to collect such data.
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digital.ahrq.gov/sites/default/files/docs/citation/r18hs025943-snyder-final-report-2024.pdf
January 01, 2024 - Data Collection
Qualitative data collection consisted of audio-recorded semi-structured interviews, … All quantitative data were
collected and managed using Research Electronic Data Capture (REDCap™). … Data Collection
Both qualitative and quantitative data were collected, with specific data sources varying … After both quantitative and qualitative data were analyzed independently, we synthesized the
data by … Penetration
data was collected from PatientToc™ administrative data and sustainability was collected
-
digital.ahrq.gov/sites/default/files/docs/citation/r21hs025502-dixon-final-report-2020.pdf
January 01, 2020 - The study included data on HIE use between 2011 and 2017. … Data Collection
We collected a variety of quantitative and qualitative data to support mixed methods … Data Analysis (Qualitative)
Transcribed interviews were loaded into qualitative data analysis software … Furthermore,
data are retained on secure drives. … The log data took a substantial amount of time to
acquire from the HIE and understand the data.
2.
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digital.ahrq.gov/principal-investigator/mann-devin-m
January 01, 2023 - Project Name
i-Matter: Investigating an mHealth Texting Tool for Embedding Patient-Reported Data … i-Matter: Investigating an mHealth Texting Tool for Embedding Patient-Reported Data … Project Name
i-Matter: Investigating an mHealth Texting Tool for Embedding Patient-Reported Data … Investigation of a mobile health texting tool for embedding patient-reported data … Project Name
i-Matter: Investigating an mHealth Texting Tool for Embedding Patient-Reported Data
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digital.ahrq.gov/ahrq-funded-projects/state-and-regional-demonstration-health-information-technology-in
January 01, 2023 - Dates
09/01/2004 - 07/31/2010
Technology
Clinical Decision Support System
Database
Data … operated since 1995, providing population-based, longitudinal, structurally coded, and text patient data … As of the end of 2010, the INPC stored data for 23 million unique patient registrations, representing … The Quality Health First® program, which relies on INPC data, had nearly 1,500 participating primary … Several HIE participants were concerned about data confidentiality.
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digital.ahrq.gov/ahrq-funded-projects/past-initiatives/medicaid-and-chip/medicaid-and-chip-repository/technology
January 01, 2023 - Data Standards and Improvement of Quality and Safety in Child Health Care
Author(s) : S. … standards in advancing health information systems for children, as well as how data standards could … in child health, and how child health professionals can engage in the work of creating data standards … J Am Med Inform Assoc 14 (6), 687 (2007)
Summary : Current efforts to define and implement health data … This paper reviews the motivations and requirements for standardized clinical research data, and the
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digital.ahrq.gov/ahrq-funded-projects/improving-quality-care-children-special-needs
January 01, 2023 - The project expanded an electronic health record linking data from newborn screening and newborn hearing … The planning project focused on integration/linkage of data for the Tennessee Child Health Profile (TN-CHP … ), with implementation of web browser data access to case managers and primary care physicians (with … TN-CHP will include data on each child linked via a secure data warehouse located at UHS on the same … Once consent has been given by the parent /guardian the child's health data will be imported from the
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digital.ahrq.gov/program-overview/research-stories/guidelines-meaningful-and-effective-electronic-patient-reported
January 01, 2023 - Health Systems in Advancing Care Delivery
Subtheme:
Integrating Patient-Generated Health Data … Difficulties of integrating valuable patient-reported outcomes PROs into care
PROs are data that can … Traditionally, PRO data were collected via pen and paper (e.g., answering paper survey questions about … However, integrating PRO data into existing systems and workflows is difficult. … Leveraging ePRO data requires scaling and balancing the needs of individual users with the health system
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digital.ahrq.gov/sites/default/files/docs/survey/cccn-online-publication-education.pdf
June 16, 2021 - Data Entry and Use
1) Do you use the diabetes registry lab data, and if so is it useful? … �
2) Do you use diabetes registry pharmacy data and is it useful? … 3) Do you use historical data (e.g. last 3 recorded weights) and is it useful? … Data Entry and Use
D. Accessibility
E. … Physician: Off
6) Who updates the registry with current visit data?
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digital.ahrq.gov/sites/default/files/docs/citation/health-equity-practical-guide.pdf
February 15, 2024 - privacy, data security, and
interoperability)
• Characteristics of Data
(e.g. data accuracy, data … Quantitative data, such as
survey data, shed light on the magnitude and prevalence of problems related … Qualitative data sources, such as an interview
or focus group data, increase understanding of context … Data Walks: Getting data into the community’s hands. https://www.urban.org/urban-wire/data-walks-getting … -
data-communitys-hands.
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digital.ahrq.gov/sites/default/files/docs/page/2006Cauley_051311comp.pdf
June 16, 2021 - Information
Organizations
You’ve seen one, you’ve seen one…
Conceptually:
RHIOs provide access to data … the largest geographic
or business area politically feasible
Regional hubs facilitate access to data … RHIOs: Common Factors
Data is transmitted from one organization
to another. … Data sharing agreements define purposes
and types of transmissions. … warehouse
Router
eligibility queries
transactions
Switchboard
Central data repository
Disease
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digital.ahrq.gov/principal-investigator/anderson-heather
January 01, 2023 - Integrating Patient-Reported Outcomes and Electronic Health Record Data … Integrating Patient-Reported Outcomes and Electronic Health Record Data to Improve Clinical Decision … Heather
Project Name
Integrating Patient-Reported Outcomes and Electronic Health Record Data … Treatment
Integrating Patient-Reported Outcomes and Electronic Health Record Data … Depression Treatment
Description
This project developed, implemented, and assessed a patient data
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digital.ahrq.gov/sites/default/files/docs/page/guide-to-evaluating-hie-projects-section-1.pdf
June 16, 2021 - being exchanged, in order to determine what data are available
for the evaluation and to estimate the … effort required to collect and process the data. … While technical expertise enables data exchange and captures the raw
measurement data, health care operations … expertise is needed to understand how the
data can be used to create meaningful measures. … analyze quantitative data and interpret
study results.
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digital.ahrq.gov/sites/default/files/docs/citation/r21hs028511-held-final-report-2024.pdf
January 01, 2024 - To develop our models, we utilized a platform that
processed unstructured data of all encounters into … Model predictions were validated against retrospective encounter
data validated by a team of experts … including convolutional neural networks (CNNs), to analyze complex patient data. … Additionally,
RUSH uses robust data encryption and has adopted a secure data storage methodology. … of the EHR data.