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cdsic.ahrq.gov/cdsic/srf-patientprefstandards
August 01, 2023 - Developed by the AHRQ CDSiC Standards and Regulatory Frameworks Workgroup, this report examines data … standards currently available for collecting and using patient-preference data to guide patient-centered … evolving landscape, this report includes:
Exemplar PC CDS applications (apps) that collect or use data … This report identifies opportunities for further advancing standard patient-preference data that can … be used for PC CDS, including three key takeaways:
Data in some patient preference domains were more
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cdsic.ahrq.gov/sites/default/files/2024-05/Patient%20Centered%20CDS%20Infographic_508_1.pdf
January 01, 2024 - findings from comparative
effectiveness research and
patient-centered outcomes
research
Patient Data … Incorporating health data
affecting individual patient
health:
• patient-generated health
data … Support (PC CDS)
Tools that significantly incorporate patient-centered factors
related to knowledge, data … Rights
Patient-Centered Care
Patient-Centered Clinical Decision Support (PC CDS)
Knowledge
Patient Data
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cdsic.ahrq.gov/sites/default/files/2023-09/FINAL%20OO%20PC%20CDS%20SDM%20Report.pdf
January 01, 2023 - Data Visualization and Risk Communication: Data visualization tools can help aggregate, interpret,
and … Incorporating data
affecting individual
patient health such as
patient-generated health
data, including … • Patient-contributed data such PGHD and SDOH. … The Share My Health Data, Annie, and My VA Images apps
allow veterans to share images, videos, and data … Data.
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cdsic.ahrq.gov/sites/default/files/2024-09/Quartz%20Assessment%20Report_Public%20Version_0.pdf
January 01, 2024 - ,
and systems to identify erroneous data. … Data focuses on the incorporation of patient-generated health data, patient preferences, social
determinants … 3.2 Data Collection Methods
This study uses qualitative and quantitative data collection methods. … , the data are filed as
physician entered. … , and slower speed times loading the data.
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cdsic.ahrq.gov/sites/default/files/2023-05/InnovationCenterQ4ProgressReportFinalForDTPFINAL.pdf
January 01, 2023 - Collection and use of patient-reported outcomes (PRO) data
2. … Collection and use of patient-generated health data (PGHD)
3. … load and improving summarization of patient data. … The team plans to use synthetic data designed to mimic real-world data to test
the PGHD dashboard. … Data in Care Delivery and
Research Through 2024.
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cdsic.ahrq.gov/sites/default/files/2023-08/Innovation%20Center%20Q2%202023%20Progress%20Report.pdf
January 01, 2023 - Collection and use of patient-reported outcomes (PRO) data
2. … load and improving summarization of patient data. … PGHD Data Visualization Apps. … PGHD Data Visualization Manuscript. … data in care delivery and
research through 2024.
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cdsic.ahrq.gov/sites/default/files/2023-06/InnovationCenterQ12023ProgressReportDraft.pdf
January 01, 2023 - Collection and use of patient-reported outcomes (PRO) data
2. … load and improving summarization of patient data. … PGHD Data Visualization Dashboards. … PGHD Data Visualization Manuscript. … Data in Care Delivery and
Research Through 2024.
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cdsic.ahrq.gov/cdsic/innovation-center/conducting-coordinating-cds
May 22, 2025 - implements best practices for presentation and analysis of selected types of patient generated health data … and practical guides and resources for patient-centered design principles, accelerating advances in data … Patient-Generated Health Data (PGHD) Visualization Software Toolkit Overview
This software toolkit … allows users to adapt or create new visualizations involving patient-generated health data (PGHD) for … Visualization of Patient-Generated Health Data: A Scoping Review of Dashboard Designs
From the AHRQ
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cdsic.ahrq.gov/sites/default/files/2025-03/Final_MO_Patient%20Preference%20Report_6.7.24.pdf
January 01, 2025 - Data focuses on the incorporation of patient-generated health data, patient
preferences, social determinants … We abstracted literature data and measurement tools into the Inventory using the organizing
framework … Without standard data
collection, health systems capture data differently, making it difficult to exchange … Such unstructured data are
often not included in CDS tools that could support care integration. … • Mitigates potential safety
implications of omitting
patient health data from PC
CDS.
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cdsic.ahrq.gov/sites/default/files/2023-10/CDSiC%20Innovation%20Core-PRO%20Dashboards%20Overview%20Revised_Small_1.pdf
January 01, 2023 - For the PROM selected, the diagram displays data from across all departments of
ACME Medical Center … This data could be useful for identifying disparities related to PROM
competition or viewing within … For this use case
example, the data is only
hypothetical and not
reflective of real patients. … Use the tabs below to select PROM to view data for. … For this use case example,
the data is only
hypothetical and not
reflective of real patients.
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cdsic.ahrq.gov/sites/default/files/2024-09/Final%20IAS%20PC%20CDS%20Case%20Studies%20Report_2.pdf
January 01, 2024 - 14
Data Infrastructure
In addition to the interoperability data standards, PC CDS integration … Evaluate Data Quality. … Implementers should plan to evaluate data quality to assess the adequacy of
the data and logic required … patient serum HbA1c test data. … • Patient Data: Incorporates patient-
reported data on pain and physical
function.
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cdsic.ahrq.gov/cdsic/environmental-scan-fact-sheet
June 17, 2024 - technical landscape: Standards for Translating Clinical Guidelines into PC CDS Standards for Managing Data … Provenance Patient-Generated Health Data (PGHD) Standards Standard PC CDS Insertion Points Standards … for Non-Clinical Patient-Centered Data Integration of PGHD into EHRs CDS-Focused Application Programming … Trust and Patient-Centeredness Workgroup: Action Plan to Collect and Use Social Determinants of Health Data … Decision Support
February 29, 2024
View More
See More About the Topic
Data
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cdsic.ahrq.gov/cdsic/patient-centered-clinical-cds-infographic
May 01, 2024 - Patient Data – Incorporating patient-generated health data, patient reported outcomes and preferences … , and patient-specific data including social determinants of health data. … More About the Topic
Mobile Applications
Patient Generated Health Data
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cdsic.ahrq.gov/cdsic/developers
May 22, 2025 - implementation of the electronic health record (EHR) has revolutionized healthcare by making health data … alike are eager for solutions that enhance patient-centered and value-based care by utilizing that EHR data … Patient-Generated Health Data (PGHD) Visualization Software Toolkit Overview
This software toolkit … allows users to adapt or create new visualizations involving patient-generated health data (PGHD) for … Visualization of Patient-Generated Health Data: A Scoping Review of Dashboard Designs
From the AHRQ
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cdsic.ahrq.gov/sites/default/files/2025-06/TPC%20Topic%20Highlight%20Patient%20Preferences.pdf
January 01, 2025 - outcomes (knowledge),
2) Incorporating information provided directly by and
important to patients (data … No. 25-0055
June 2025
How Can Patient Preference Data Be Collected? … Preference data can be collected at three main timepoints: before a clinical visit (i.e., outside of … The PC CDS tool then sends a summary of the patient’s data and
preferences to their clinician. … How Can Patient Preference Data Be Collected?
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cdsic.ahrq.gov/sites/default/files/2024-07/Final%20IAS_AI%20Landscape%20Assessment%206.24.24%20(003).pdf
January 01, 2024 - Developers can consider using synthetic data to train
data models to protect patient-identifiable data … Developers can consider using synthetic data to train
data models to protect patient-identifiable data … The
organization is using LLMs to conduct data profiling
and data transformation tasks—the AI tool … Data security concerns. … data security.
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cdsic.ahrq.gov/sites/default/files/2024-07/OY1_FINAL%20TPC%20Patient%20Perspectives%20Generative%20AI.pdf
January 01, 2024 - and providing users with information on the tool’s
ownership, data sharing, and storage practices. … Understanding who has access to patient data collected by the tool. … Receiving information about the underlying data source. … This
includes transparency about the underlying data used to inform and train AI-enabled tools. … What the data says about Americans’ views of artificial intelligence. Pew
Research Center.
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cdsic.ahrq.gov/sites/default/files/2025-06/IAS%20Topic%20Highlight%20AI%20and%20PC%20CDS_508%20Compliant.pdf
January 01, 2025 - AI uses mathematics and computer science to analyze data and complete tasks that mimic human
behavior … .4,5 There are different types of AI that analyze data in various ways. … Generative AI can create new text, images, and data based on models it has been trained on. … AI-supported technology is being used to detect patient
symptoms using patient-provided data. … Evaluating AI-enabled clinical
decision and diagnostic support tools using real-world data.
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cdsic.ahrq.gov/sites/default/files/2025-03/Innovation%20Center%20Q1%202025%20Progress%20Report_03.25.25.pdf
January 01, 2025 - The Patient-centered Clinical Decision Support Lifecycle Framework
Data Collection. … visit recordings, patient-
generated health data [PGHD]).8 Because of the rapid growth of GenAI and … This year, the Core 2 team will enhance the app to collect blood pressure data from patients and
will … captured by the app and the
decision support it provides to support patient monitoring; and 4) data … The team plans to collect qualitative data from the technical team
on their experience updating and
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cdsic.ahrq.gov/sites/default/files/2024-10/CDSiC%20Stakeholder%20Center%20Quarterly%20Report%20Q3%202024_0.pdf
January 01, 2024 - sharing
(e.g., how data is stored and shared). … Additionally, the product can inform
efforts to standardize patient preference data elements, such as … in future versions of the United States
Core Data for Interoperability (USCDI). … Action Plan to Collect and Use Social Determinants of Health Data in PC CDS (Level 2)
The Workgroup … By promoting the use of SDOH data in PC CDS, this product can support enhanced
patient and clinician