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cdsic.ahrq.gov/cdsic/pghd-visualization-software-toolkit
May 01, 2024 - software toolkit allows users to adapt or create new visualizations involving patient-generated health data … May 1, 2024
PGHD – data created or gathered by or from patients/caregivers – … demonstration app that can be used by patients to contribute PGHD and to visualize their historical data … and clinician demonstration apps Modules and utility scripts for creating synthetic patient-generated data … Trust and Patient-Centeredness Workgroup: Action Plan to Collect and Use Social Determinants of Health Data
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cdsic.ahrq.gov/cdsic/patient-app-topic-highlight
June 25, 2025 - state of interoperability between clinical health IT systems and patient-facing apps, the types of data … that can be exchanged, and the key data standards for interoperability. … Patient-facing apps often need to exchange data with clinical health IT systems, such as electronic health … that can be exchanged Key data standards for interoperability Examples of app-clinical system integration … Decision Support
November 9, 2022
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Data
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cdsic.ahrq.gov/sites/default/files/2024-09/AHRQ%20Final%20TPC%20SDOH%20Action%20Plan.pdf
January 01, 2024 - Standardize Representation of SDOH Data to Support Data Capture and Integration
for PC CDS Development … of PC CDS tools integrate high-
quality SDOH data and support care teams incorporating such data into … Cross-Sector Data-Sharing of SDOH Data Relevant for PC CDS and Closed-Loop Referrals. … set of SDOH data elements. … data sources.
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cdsic.ahrq.gov/cdsic/patient-preferences-standardization
August 01, 2024 - Patient preference information, when it is collected, is often collected as unstructured data in electronic … About the Report A prior CDSiC report that describes available standards for patient preferences data … Participants discussed challenges they anticipate with standardizing patient-preference data. … Ultimately, standardizing patient preference information can advance the incorporation of these data … Decision Support
November 9, 2022
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Data
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cdsic.ahrq.gov/cdsic/pro-dashboard-overview
October 01, 2023 - PROs) – reports of a patient’s health condition that come directly from the patient – provide valuable data … The Patients section that provides patient-level data for those who received concerning scores. … intended to support clinical director-level personnel and informaticians/CDS developers in analyzing data … dashboard can be integrated with an organization’s electronic health record to receive and display data … Trust and Patient-Centeredness Workgroup: Action Plan to Collect and Use Social Determinants of Health Data
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cdsic.ahrq.gov/sites/default/files/2024-08/TPC%20Patient%20Preferences%20Workflow%20Lifeflow_8.15.2.pdf
January 01, 2024 - Key Findings: When and How Patient Preference Data Are Collected.............. 7
3.1. … Data focuses
on the incorporation of patient-generated health data, patient preferences, social determinants … Ensure patient preference data are easily accessible to clinicians. … language processing methods: feasibility
study with real-world data. … Key Findings: When and How Patient Preference Data Are Collected
3.1.
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cdsic.ahrq.gov/cdsic/interoperability-patientapps
August 01, 2023 - Greater interoperability is needed between apps and EHRs to allow for patient data collected by apps … Without integration across systems and technologies, patient data collected by apps remains sequestered … developers, payers, and patients and their caregivers can use this report to:
Visualize the flow of data … Trust and Patient-Centeredness Workgroup: Action Plan to Collect and Use Social Determinants of Health Data … Decision Support
November 9, 2022
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Data
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cdsic.ahrq.gov/cdsic/PCCDS-SDM-topic-highlight
July 02, 2025 - PC CDS can support shared decision making through four patient-centered factors: knowledge, data, delivery … can support each of the five steps of the SHARE Approach, along with the PC CDS factors of knowledge, data … Clinicians can see how tools support data collection, communication, and information exchange for shared … Annual Meeting
September 18, 2024
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Data
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cdsic.ahrq.gov/cdsic/pccds-shared-decisionmaking
September 01, 2023 - September 1, 2023
As patients’ access to health data, information, and tools … and their clinician through shared decision making (SDM), improved integration of patient-contributed data … phases of SDM with three elements of PC CDS:
Knowledge (e.g., patient-centered outcomes research),
Data … September 18, 2024
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Patient Generated Health Data
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cdsic.ahrq.gov/cdsic/implementation-case-studies
August 01, 2024 - decision making tools that significantly incorporate patient-centered factors related to knowledge, data … ensure representation across varied patient populations in PC CDS research and implementation Enhancing data … interoperability standards, optimizing IT resource capacity, and investing in data quality review of … cost-effective deployment options How To Use This Report By addressing challenges in patient engagement, data
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cdsic.ahrq.gov/cdsic/patient-preferences-topic-highlight
June 25, 2025 - This topic highlight describes the different ways PC CDS can support the collection of data about an … PC CDS tools can help collect patient preference data before, during, or after a clinical visit and apply … About the Topic Highlight This resource defines the different types of patient preference data, describes … developers can use this resource to develop new PC CDS tools in ways that facilitate patient preference data
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cdsic.ahrq.gov/cdsic/action-plan-SDOH
September 20, 2024 - Trust and Patient-Centeredness Workgroup: Action Plan to Collect and Use Social Determinants of Health Data … needs and 11 opportunities to support the collection and use of social determinants of health (SDOH) data … key challenges, current efforts, and future opportunities to support the collection and use of SDOH data … Identifying clinical guidelines that incorporate SDOH to develop PC CDS tools Understanding what SDOH data … to support data capture and integration for PC CDS development Measuring the effectiveness of PC CDS
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cdsic.ahrq.gov/cdsic/pghd_dashboard_manuscript
September 13, 2023 - Involved
Visualization of Patient-Generated Health Data … Clinical Informatics (ACI) shares findings from a scoping review of studies of patient-generated health data … Visualization of Patient-Generated Health Data: A Scoping Review of Dashboard Designs [published online
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cdsic.ahrq.gov/cdsic/planning-reporting-user-guide
September 23, 2024 - CDS, such as patient needs elicitation, patient co-design, incorporation of patient generated health data … Four Workgroups
February 3, 2023
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See More About the Topic
Data … Standards
Patient Generated Health Data
Patient Participation
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cdsic.ahrq.gov/sites/default/files/2025-06/SRF%20Topic%20Highlight%20Patient%20App%20Interoperability.pdf
January 01, 2025 - that can be exchanged,
and the key data standards for interoperability. … the likelihood that they will use the data
in decision making. … Data focuses
on the incorporation of patient-
generated health data, patient
preferences, social
determinants … Data Standards
Data representation and exchange standards are
critical for achieving interoperability … United States Core Data for
Interoperability (USCDI). HealthIT.gov.
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cdsic.ahrq.gov/sites/default/files/2024-06/CDSiC%20Factsheet_508.pdf
January 01, 2024 - Stage 2: Standards for Managing
Data Provenance. … Provenance can support the represen-
tation and tracking of data provenance of
different data sources … HL7 Bulk Data Access (Flat FHIR)
API
Standards are emerging; the SMART/HL7 Bulk
Data Access (Flat … FHIR) API supports bulk data
export … • Differentiate use cases for using bulk data (e.g.,
informing research and data aggregation for
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cdsic.ahrq.gov/sites/default/files/2025-03/SRF%20Standards%20for%20Patient%20Preferences.pdf
January 01, 2025 - data into PC CDS tools. … patient data.
4. … We did not find codes in the data domain for patient preference for data use. … data into PC CDS tools. … data"
"research data access"
"patient data sharing clinical trials"
"patient data permission"
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cdsic.ahrq.gov/sites/default/files/2023-08/CDSiC%20App%20Interoperability%20Report_508.pdf
January 01, 2023 - claim data, and contains relevant data elements and
defines constraints on the data.26,27 Resources … data
repositories, and present the data in an integrated view. … Storing all app data in an
internal clinical data repository may assist with integrating data from various … One option for
reviewing app data and EHR data in a single view is to pull data into a SMART on FHIR … 4.2.1 Considerations for Reviewing Data
4.2.2 Standards for Reviewing Data
4.2.3 Viewing Data: Challenges
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cdsic.ahrq.gov/sites/default/files/2024-09/SRF_Patient%20Preference%20Standardization%20Priorities_508.pdf
January 01, 2024 - Standardized, structured encoding of
patient-preference data will allow those data to be used by and … Standardized, structured encoding
of patient-preference data will allow those data to be used by and … for Interoperability (USCDI), which is “a standardized set of health data classes and
constituent data … How do we define patient-preference data? … How do we define patient-preference data?
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cdsic.ahrq.gov/sites/default/files/2025-07/CDSiC%20Topic%20Highlight_PC%20CDS%20and%20SDM_508_0.pdf
January 01, 2025 - data, and data about each patient, including demographics and health-
related social needs. … Data: Tools can use data about each patient to personalize the risks, benefits, and
potential harms … Data: Tools can help patients and clinicians reach a decision that is guided by
patient-provided data … Data: Tools can collect patient data needed to monitor progress towards clinical or
personal goals. … PainManager sends clinicians
reminders to review the patient-provided data in the EHR.