-
cdsic.ahrq.gov/sites/default/files/2025-03/Copy%20of%20Final_MO_Patient%20Preference%20Inventory_6.7.24_508.xlsx
January 01, 2025 - .
• Condition/Disease Context: This column describes whether a tool is tailored to a specific condition … of results N/A N/A • Mode (How the patient prefers to receive information related to their care or condition … Receipt of results • Mode (How the patient prefers to receive information related to their care or condition … health information)
• Mode (How the patient prefers to receive information related to their care or condition … portal, etc.)
• Degree (Level/amount of information a patient prefers to receive about their health condition
-
cdsic.ahrq.gov/sites/default/files/2024-06/Copy%20of%20Final_MO_Patient%20Preference%20Inventory_6.7.24_508_0.xlsx
January 01, 2024 - .
• Condition/Disease Context: This column describes whether a tool is tailored to a specific condition … of results N/A N/A • Mode (How the patient prefers to receive information related to their care or condition … Receipt of results • Mode (How the patient prefers to receive information related to their care or condition … health information)
• Mode (How the patient prefers to receive information related to their care or condition … portal, etc.)
• Degree (Level/amount of information a patient prefers to receive about their health condition
-
cdsic.ahrq.gov/sites/default/files/2025-03/Final_MO_Patient%20Preference%20Report_6.7.24.pdf
January 01, 2025 - This column describes the patient population the tool is designed for.
5
Condition/Disease Context … Condition/Disease Context. … Nearly half (n=20) of the tools in the Inventory were developed for
a specific condition/disease, with … Condition- /disease-specific tools span a variety of disease or condition contexts,
with cancer and … )
• Degree (level/amount of
information a patient prefers to
receive about their health
condition
-
cdsic.ahrq.gov/sites/default/files/2024-06/Final_MO_Patient%20Preference%20Report_6.7.24_0.pdf
January 01, 2024 - This column describes the patient population the tool is designed for.
5
Condition/Disease Context … Condition/Disease Context. … Nearly half (n=20) of the tools in the Inventory were developed for
a specific condition/disease, with … Condition- /disease-specific tools span a variety of disease or condition contexts,
with cancer and … )
• Degree (level/amount of information
a patient prefers to receive about
their health condition
-
cdsic.ahrq.gov/sites/default/files/2023-07/Updated_OOPatientPreferenceTaxonomy.pdf
January 01, 2023 - Information seeking refers to preferences around the receipt of
information related to a patient’s condition … Preference stability varies
depending on the patient, their health condition, symptom severity, prognosis … While some patients may prefer to
receive extensive information about their health condition, treatment … For example, an individual’s treatment
preferences for a specific health condition and risk tolerance … • How do preferences change over time by domain, subdomain, and
context (i.e., knowledge, condition,
-
cdsic.ahrq.gov/sites/default/files/2023-10/Final%20OO%20Patient%20Outcomes%20of%20PC%20CDS%20to%20AHRQ%2010.6.23.pdf
January 01, 2023 - Health-related quality of life, both condition-specific and
condition-agnostic, was the most common … Each use case first presents the clinical context for a specific condition, followed by a description … Many health-related
quality-of-life measures were condition-specific. … Condition-specific instruments used to assess general perceived health in the CDS studies
include the … A measure needs to be selected and tailored (by condition, setting,
population, or service-specific
-
cdsic.ahrq.gov/cdsic/pro-dashboard-overview
October 01, 2023 - October 1, 2023
Patient reported outcomes (PROs) – reports of a patient’s health condition
-
cdsic.ahrq.gov/cdsic/Rachel-Richesson
including terminologies and classifications such as SNOMED CT, ICD, LOINC, RxNorm, CTCAE and MedDRA, and condition-specific
-
cdsic.ahrq.gov/cdsic/srf-patientprefstandards
August 01, 2023 - healthcare system, preferences for receiving information, goals for managing a specific disease or condition
-
cdsic.ahrq.gov/sites/default/files/2024-09/CDSiC%20Infographic%202024_508.pdf
January 01, 2024 - Preference stability varies depending on the
patient, their health condition, symptom severity, prognosis
-
cdsic.ahrq.gov/sites/default/files/2025-03/CDSiC%20Infographic%202024_508.pdf
January 01, 2025 - Preference stability varies depending on the
patient, their health condition, symptom severity, prognosis
-
cdsic.ahrq.gov/sites/default/files/2024-09/CDSiC%20Infographic%202024_508_0.pdf
January 01, 2024 - Preference stability varies depending on the
patient, their health condition, symptom severity, prognosis
-
cdsic.ahrq.gov/sites/default/files/2024-02/Innovation%20Center%20Q4%202023%20Progress%20Report_508_01052024.pdf
January 01, 2024 - Projects varied by types of data and
technology leveraged as well as the user population and condition … Progress Report 4
Quarterly Status Update December 2023
Category Characteristics
Medical/Social Condition … Prototype, members suggested different workflows and goals for
patients based on the severity of their condition
-
cdsic.ahrq.gov/cdsic/patient-preference-measurement-tools-inventory
June 20, 2024 - following aspects of each instrument/tool: Delivery method Extent of adoption in healthcare Use population Condition
-
cdsic.ahrq.gov/cdsic/patientfocusedmeasures
September 01, 2023 - engagement with providers and systems, as well as the patient’s experience of living with their health condition
-
cdsic.ahrq.gov/sites/default/files/2025-03/SRF%20Standards%20for%20Patient%20Preferences.pdf
January 01, 2025 - healthcare system, preferences
for receiving information, goals for managing a specific disease or condition … healthcare
system, preferences for receiving information, goals for managing a specific disease or condition … Information
seeking
Receipt of information related to
one’s condition or care including
mode, degree … community of peer support (i.e., access to “patients
like me” for support in managing one’s health condition … Mode (how the patient prefers to receive information related to
their care or condition, e.g., verbal
-
cdsic.ahrq.gov/sites/default/files/2023-09/SRF%20Standards%20for%20Patient%20Preferences.pdf
January 01, 2023 - healthcare system, preferences
for receiving information, goals for managing a specific disease or condition … healthcare
system, preferences for receiving information, goals for managing a specific disease or condition … Information
seeking
Receipt of information related to
one’s condition or care including
mode, degree … Mode (how the patient prefers to receive information
related to their care or condition, e.g., verbal … of treatment/intervention (Preferences related
to the actions or ways of treating a patient or a
condition
-
cdsic.ahrq.gov/sites/default/files/2023-09/FINAL%20OO%20PC%20CDS%20SDM%20Report.pdf
January 01, 2023 - Tool Name* Health Condition
Type of
Decision
Target
Audience
Mode of
Access
[web, app, … ID=1849
https://mykidneylifeplan.org/
18
Tool Name* Health Condition
Type of
Decision … ID=1439
https://decisionhelp.qcancercare.com/
19
Tool Name* Health Condition
Type of
Decision … doi:10.2196/jmir.1576
20
Tool Name* Health Condition
Type of
Decision
Target
Audience … decisions.dynamed.com/shared-decision-making/breast-cancer-screening
21
Tool Name* Health Condition
-
cdsic.ahrq.gov/sites/default/files/2023-10/TPC%20Pat%20Engage%20Handbook%20Final.pdf
January 01, 2023 - the appropriate sample size and representativeness of the patient population to reflect the
health condition … This method has frequently been used to gather patient input and
feedback on disease- or condition-specific … emphasizes the importance of including individuals who have experienced or who are affected
by the condition … it can serve
as a valuable method to understand what success looks like for a specific disease or condition … For example, “When you seek
care for your condition, what are you hoping to improve or make happen?”
-
cdsic.ahrq.gov/sites/default/files/2024-08/TPC%20Patient%20Preferences%20Workflow%20Lifeflow_8.15.2.pdf
January 01, 2024 - preferences at multiple points over time,
given that preferences often change over the course of a condition … engagement preferences, such as the amount of information a patient prefers to
receive about their health condition … time, given that preferences understandably change as patients live
with and learn more about their condition … engagement, such as the patient’s preferences related to supporting their ability
to self-manage their condition … While our scenario focuses on a particular condition,
these processes could be applied to other scenarios