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101. Improving Pediatric Cancer Survivorship Care Through SurvivorLink - 2011 | Digital Healthcare Research
     digital.ahrq.gov/ahrq-funded-projects/improving-pediatric-cancer-survivorship-care-through-survivorlink/annual-summary/2011
     January 01, 2011 - Patients and their parents expressed concern about privacy from insurance companies, colleges, and employers

102. Bedside Notes: A Multicenter Trial to Improve Family Clinical Note Access and Outcomes for Hospitalized Children | Digital Healthcare Research
     digital.ahrq.gov/ahrq-funded-projects/bedside-notes-multicenter-trial-improve-family-clinical-note-access-and
     September 30, 2024 - Bedside Notes: A Multicenter Trial to Improve Family Clinical Note Access and Outcomes for Hospitalized Children Project Description Increasing caregiver access to clinical notes during their child’s hospitalization can increase access to trusted health information, improve car…

103. Improving Pediatric Cancer Survivorship Care through SurvivorLink - 2012 | Digital Healthcare Research
     digital.ahrq.gov/ahrq-funded-projects/improving-pediatric-cancer-survivorship-care-through-survivorlink/annual-summary/2012
     January 01, 2012 - Patients and their parents expressed concern about privacy, particularly from insurance companies, colleges

104. Trust and Patient-Centeredness Workgroup: Patient and Caregiver Perspectives on Generative Artificial Intelligence in Patient-Centered Clinical Decision Support (pdf file)
     digital.ahrq.gov/sites/default/files/OY1_FINAL%20TPC%20Patient%20Perspectives%20Generative%20AI.pdf
     May 01, 2024 - to generate follow-up questions in real time and collect additional information about the patient’s concern … tool is generating the right prompt or question and yielding results or outcomes relevant to their concern … ’ attitudes vary on the proliferation of AI in daily life, with many reporting both excitement and concern … facilitators to trustworthy and ethical AI-enabled 15 medical care identified a similar ethical concern

105. NICU-2-HOME: Using Health IT to Support Parents of NICU Graduates Transitioning to Home - Final Report (pdf file)
     digital.ahrq.gov/sites/default/files/docs/citation/r21hs020316-garfield-final-report-2014.pdf
     January 01, 2014 - During the transition to home almost half of parents voiced lingering concern over feeding issues, such … able to handle having this new baby in the house because I know how she is, the constant worry and concern

106. Personal Health Records and Elder Medication Use Quality - 2010 | Digital Healthcare Research
     digital.ahrq.gov/ahrq-funded-projects/personal-health-records-and-elder-medication-use-quality/annual-summary/2010
     January 01, 2010 - medications, and that PHR-gained information allows patients to shift their beliefs about medication from concern

107. IQHealth: Patient Enrollment Experience and Expectations (pdf file)
     digital.ahrq.gov/sites/default/files/docs/survey/iq-health-patient-enrollment.pdf
     June 16, 2021 - IQHealth: Patient Enrollment Experience and Expectations IQHealth: Patient's Enrollment Experience and Expectations University of Missouri, Columbia MO This is a questionnaire designed to be completed by patients in a home setting. The tool includes questions to assess the current state of personal health records …

108. Survey About Parents’ Vaccination Decision for their Child (pdf file)
     digital.ahrq.gov/sites/default/files/docs/survey/parents-vaccination-decision-for-child.pdf
     June 16, 2021 - Survey About Parents’ Vaccination Decision for their Child Survey About Parents’ Vaccination Decision for their Child Kaiser Foundation Research Institute, Oakland, California This is a questionnaire designe…

109. Improving Health Care Quality through Health IT for Persons with Intellectual Disabilities: A Final Report and Lessons Learned (pdf file)
     digital.ahrq.gov/sites/default/files/docs/publication/r21hs018766-rimmer-final-report-2012.pdf
     January 01, 2012 - difficulties in using the USB card (e.g., some providers’ staff did not trust it with their computers out of concern … In one case, the physician reportedly expressed concern that plugging in the USB might spread a virus … Another parent expressed concern that the USB was of no use to her child’s physician because the office … A caregiver expressed concern related to backing up the information on the USB.

110. Dorr D et al. 2007 "Informatics systems to promote improved care for chronic illness: a literature review." | Digital Healthcare Research
     digital.ahrq.gov/health-it-tools-and-resources/workflow-assessment-health-it-toolkit/research/dorr-d-et-al-2007
     January 01, 2007 - Dorr D et al. 2007 "Informatics systems to promote improved care for chronic illness: a literature review." Reference Dorr D, Bonner LM, Cohen AN, et al. Informatics systems to promote improved care for chronic illness: a literature review. J Am Med Inform Assoc 2007;14(2):156-163. [Link] Abst…

111. Lattie, Emily Gardiner | Digital Healthcare Research
     digital.ahrq.gov/principal-investigator/lattie-emily-gardiner
     January 01, 2023 - Lattie, Emily Gardiner "Our job is to be so temporary": Designing digital tools that meet the needs of care managers and their patients with mental health concerns. Citation Kornfield R, Lattie EG, Nicholas J, Knapp AA, Mohr DC, Reddy M. "Our job is to be so temporary": Design…

112. Hsu J et al. 2005 "Health information technology and physician-patient interactions: impact of computers on communication during outpatient primary care visits." | Digital Healthcare Research
     digital.ahrq.gov/health-it-tools-and-resources/workflow-assessment-health-it-toolkit/research/hsu-j-et-al-2005-health
     January 01, 2005 - Hsu J et al. 2005 "Health information technology and physician-patient interactions: impact of computers on communication during outpatient primary care visits." Reference Hsu J, Huang J, Fung V, et al. Health information technology and physician-patient interactions: impact of computers on communicat…

113. Project ECHO iHealth Test Document (pdf file)
     digital.ahrq.gov/sites/default/files/docs/resource/b4_arora_018171_archives_1.pdf
     May 15, 2010 - Within the ‘Area of Concern’ free text box, type anything. 4.

114. Patients as Safeguards: Understanding the Information Needs of Hospitalized Patients in Voicing Safety Concerns - Final Report (pdf file)
     digital.ahrq.gov/sites/default/files/docs/citation/r01hs022894-pratt-final-report-2020.pdf
     January 01, 2020 - Patients as Safeguards: Understanding the Information Needs of Hospitalized Patients in Voicing Safety Concerns - Final Report AHRQ Final Report Patients as Safeguards: Understanding the Information Needs of Hospitalized Patients in Voicing Safety Concerns Principal I…

115. Personal Health Records and Elder Medication Use Quality - 2011 | Digital Healthcare Research
     digital.ahrq.gov/ahrq-funded-projects/personal-health-records-and-elder-medication-use-quality/annual-summary/2011
     January 01, 2011 - medications; and 3) PHR-gained information allows patients to shift their beliefs about medication from concern

116. Using An Electronic Personal Health Record To Empower Patients With Hypertension - 2011 | Digital Healthcare Research
     digital.ahrq.gov/ahrq-funded-projects/using-electronic-personal-health-record-empower-patients-hypertension/annual-summary/2011
     January 01, 2011 - Providers expressed concern about patient worry, confusion, and the potential for offense by documentation

117. El Dorado County Safety Net Technology Project/Access El Dorado County (ACCEL) - 2009 | Digital Healthcare Research
     digital.ahrq.gov/ahrq-funded-projects/el-dorado-county-safety-net-technology-projectaccess-el-dorado-county-accel/annual-summary/2009
     January 01, 2009 - Data accuracy is an evolving concern with Care Pathways since inconsistencies have been uncovered via

118. NICU-2-HOME: Using Health IT to Support Parents of NICU Graduates Transitioning to Home | Digital Healthcare Research
     digital.ahrq.gov/ahrq-funded-projects/nicu-2-home-using-health-it-support-parents-nicu-graduates-transitioning-home
     January 01, 2023 - NICU-2-HOME: Using Health IT to Support Parents of NICU Graduates Transitioning to Home Project Final Report ( PDF , 900.08 KB) Disclaimer Disclaimer The findings and conclusions in this document are those of the author(s), who are responsible for its content, and do not necess…

119. Ou MH et al. 2008 "Evaluation of TELEDERM for dermatological services in rural and remote areas." | Digital Healthcare Research
     digital.ahrq.gov/health-it-tools-and-resources/workflow-assessment-health-it-toolkit/research/ou-mh-et-al-2008
     January 01, 2008 - Ou MH et al. 2008 "Evaluation of TELEDERM for dermatological services in rural and remote areas." Reference Ou MH, West GA, Lazarescu M, et al. Evaluation of TELEDERM for dermatological services in rural and remote areas. Artif Intell Med 2008;44(1):27-40. Abstract "Objective: This paper descr…

120. Fish A, George S, Terrien E, et al. "Workflow concerns and workarounds of readers in an urban safety net teleretinal screening study." | Digital Healthcare Research
     digital.ahrq.gov/health-it-tools-and-resources/workflow-assessment-health-it-toolkit/research/fish-george-s-terrien-e
     January 01, 2023 - Fish A, George S, Terrien E, et al. "Workflow concerns and workarounds of readers in an urban safety net teleretinal screening study." Reference Fish A, George S, Terrien E, et al. Workflow concerns and workarounds of readers in an urban safety net teleretinal screening study. AMIA Annu Symp Proc 20…