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cdsic.ahrq.gov/cdsic/pccds-shared-decisionmaking
September 01, 2023 - September 1, 2023
As patients’ access to health data, information, and tools … Data (e.g., patient-reported outcomes [PROs], social determinants of health [SDOH]),
Delivery (e.g., access … Connect With Us
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cdsic.ahrq.gov/sites/default/files/2024-07/Final%20MO%20Patient%20Prioritization%20of%20Measurement%20Areas%207.18.24.pdf
January 01, 2024 - Additionally, there are potentially evolving measurement needs
related to access to information, and … Access to
information was the only area where a participant chose the response option “I don’t know. … to appointments or not
have access to the same services. … Participants in the
final round of this activity ranked access to information highly. … CMS Interoperability and Patient Access Final Rule (CMS-9115-F) | CMS.
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cdsic.ahrq.gov/sites/default/files/2025-03/SRF%20Standards%20for%20Patient%20Preferences.pdf
January 01, 2025 - Access Patient access to their own data
Clinician access
Designee access
Research access
Level … of patient data (e.g., patient access to
own data, clinician access, designee access, research access … exchange)
"data access"
"provider access"
"clinician access"
Designee access(e.g., family … member) "proxy access"
"designee access"
"data sharing"
Research access (e.g., consent processes … health record)
"data access level"
"access granted"
Duration of access (i.e., expiration of access
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cdsic.ahrq.gov/sites/default/files/2025-03/Copy%20of%20Final_MO_Patient%20Preference%20Inventory_6.7.24_508.xlsx
January 01, 2025 - Published 2018 Oct 1. doi:10.2196/jmir.9497
Data Access N/A N/A N/A N/A • Level of access (e.g., … preferences for electronic health data storage, access, sharing, and security. … Data Access, Use of data N/A N/A N/A N/A • Patient access to their own data
• Clinician access (e.g … ., coordination, health information exchange)
• Designee access (e.g., family member)
• Research access … and Care Experience Accessibility
Access and Care Experience IT enabled support tools
Access and
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cdsic.ahrq.gov/sites/default/files/2024-09/SRF_Patient%20Preference%20Standardization%20Priorities_508.pdf
January 01, 2024 - access to IT-enabled support tools. … )
• Access to community of peer support (e.g.,
access to “patients like me” for support in
managing … one’s health condition)
Data Access • Patient access to their own data
• Clinician access (e.g., … coordination, health
information exchange)
• Designee access (e.g., family member)
• Research access … granular control of sharing one’s EHR data)
• Duration of access (e.g., expiration of
access agreement
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cdsic.ahrq.gov/sites/default/files/2025-03/Final_MO_Patient%20Preference%20Report_6.7.24.pdf
January 01, 2025 - IT-enabled
support tools
• Telehealth access
• Self-scheduling (e.g.,
web/mobile appointment … Clinician /
System
• Clinician qualifications/skills
• Clinician identity factors
• Access to … )
• Access to community of peer
support (e.g., access to
“patients like me” for support in
managing … access (e.g., family
member)
• Research access (e.g., consent
processes to share data for
research … of access (e.g.,
expiration of access
agreement)
• Enhances the relevance
and accuracy of PC
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cdsic.ahrq.gov/sites/default/files/2024-06/CDSiC%20Factsheet_508.pdf
January 01, 2024 - • Focus new FHIR-based API development on patient
data access and write capabilities and engage pa … HL7 Bulk Data Access (Flat FHIR)
API
Standards are emerging; the SMART/HL7 Bulk
Data Access (Flat … • Promote use of standards to enable patient
oversight of proxy access to medical records.
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cdsic.ahrq.gov/sites/default/files/2024-09/CDSiC%20Infographic%202024_508_0.pdf
January 01, 2024 - Access and care experience
This domain encompasses preferences
around the range of interactions a patient … Data
This domain encompasses patient
preferences around access and use of
personal health data and … Focus
Six Patient Preference Domains
Personal characteristics
Healthcare services
Communication
Access
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cdsic.ahrq.gov/cdsic/patient-prioritization-measurement-areas
July 24, 2024 - prioritization, the top three measurement areas included: Communication quality Trust in clinician Access … Additionally, there are potentially evolving measurement needs related to access to information, and … Connect With Us
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cdsic.ahrq.gov/sites/default/files/2025-09/Final%20508_Measuring%20Patient%20Experience%20of%20PC%20CDS_0.pdf
January 01, 2025 - Access to Healthcare. … Access to Healthcare
Access to healthcare encompasses patients’ ability to receive “personal health … Several available instruments probe patient experience with access to care
generally. … Access information to understand the benefits, risks, and
harms of treatment options
C. … Access to Care. Updated May 2023.
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cdsic.ahrq.gov/sites/default/files/2023-09/Stakeholder%20Center%202023%20Q3%20Report%20to%20AHRQ%209.27.23.pdf
January 01, 2023 - The report was
published May 2023; access it here. … The report was published
August 2023; access it here. … The report was published August 2023; access it here. … The report was published
July 2023; access it here. … The report was published July 2023;
access it here.
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cdsic.ahrq.gov/sites/default/files/2024-07/OY1_FINAL%20TPC%20Patient%20Perspectives%20Generative%20AI.pdf
January 01, 2024 - Participants believed that this could
hinder access to healthcare and create additional burdens for … access and efficiency. I do think there
need to be precautions, and there needs
to be oversight. … Understanding who has access to patient data collected by the tool. … Participants highlighted
factors such as limited health literacy, access to
technology, and overall … Does it take into
account someone’s inability to access
technology?
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cdsic.ahrq.gov/sites/default/files/2025-06/SRF%20Topic%20Highlight%20Patient%20App%20Interoperability.pdf
January 01, 2025 - patient-centered
clinical decision support (PC CDS) app market is expanding
rapidly,1 providing patients access … This forces
clinicians to access multiple systems to review the data, which
adds burden and reduces … framework that allows third-party applications, such as
patient-facing apps or CDS tools, to share and access … 2025
Specifically, SMART on FHIR provides a means of authentication and authorization for apps to access … various
healthcare systems, including the
variability in EHR systems and
standards, as well as data access
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cdsic.ahrq.gov/cdsic/patient-preferences-infographic
September 20, 2024 - relevant to PC CDS: • Personal characteristics • Healthcare services • Communication • Access … Connect With Us
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cdsic.ahrq.gov/sites/default/files/2023-08/CDSiC%20App%20Interoperability%20Report_508.pdf
January 01, 2023 - • Promote development and implementation of FHIR APIs that
allow write access to EHRs, especially … Without integration,
healthcare teams often cannot efficiently access data from patient apps within … Moreover, if the app cannot access EHR data, then the app’s
11
guidance to the patient may be … access to EHRs, and guidelines specifying how data should be shared in an interoperable manner. … Retrieved from:
https://hl7.org/fhir/uv/bulkdata/
68 Open Epic.FHIR Bulk Data Access Tutorial.
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cdsic.ahrq.gov/sites/default/files/2023-09/FINAL%20OO%20PC%20CDS%20SDM%20Report.pdf
January 01, 2023 - (e.g., patient-reported outcomes
[PROs], social determinants of health [SDOH]) and delivery (e.g., access … Conclusion
As patients’ access to health data, information, and tools continues to increase, patients … to the tools and/or infrastructure to access the PC CDS that is
intended to facilitate SDM. … Beyond potential lack of access, other patient populations may not be accustomed to taking an active … Tool Name* Health
Condition
Type of
Decision
Target
Audience
Mode of
Access
[web, app
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cdsic.ahrq.gov/cdsic/patient-preferences-standardization
August 01, 2024 - Preferences pertaining to engagement, access to information, communication, caregiving, and treatment … Connect With Us
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cdsic.ahrq.gov/cdsic/AI-perspectives
July 08, 2024 - these considerations throughout their design and implementation phases have the potential to improve access … Connect With Us
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cdsic.ahrq.gov/cdsic/patient-preference-taxonomy
May 01, 2023 - six preference domains relevant to PC CDS, including:
Personal characteristics
Communication
Access … Connect With Us
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cdsic.ahrq.gov/cdsic/involving-endusers-codesign
August 01, 2023 - Establish an infrastructure for end users to easily access codesign platforms and supportive resources … Connect With Us
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